So all are disabled, or will be disabled, so cheer up...
And stop treating disabled as pitiable objects.
THE temporarily able-bodied, or TABs. That’s what disability activists
call those who are not physically or mentally impaired. And they like
to remind them that disability is a porous state; anyone can enter or
leave at any time. Live long enough and you will almost certainly
enter it.
http://www.nytimes.com/2013/11/03/education/edlife/disability-studies-a-new-normal.html?pagewanted=2&_r=1&ref=health&&pagewanted=all
a field that didn’t even exist 20 years ago. The reasons are mainly
demographic: as the population ages, the number of disabled will grow
— by 21 percent between 2007 and 2030, according to the Census Bureau.

At the other end of the generational spectrum are those raised after
the passage of the Americans With Disabilities Act in 1990. They are
now in college or entering the work force. They are educated, perhaps
without even realizing it, in the politics and realities of
disability, having sat in the same classrooms in a more accessible
society.

Universities have long studied the disabled in medical and health care
curriculums. But when the first disability studies program emerged at
Syracuse University in 1994, it was a radical departure from the
medical model that had dominated offerings for decades and had
approached disability as a deficit that needed fixing.

Like black studies, women’s studies and other liberation-movement
disciplines, disability studies teaches that it is an unaccepting
society that needs normalizing, not the minority group. “Disablement
comes from a confluence of social factors that shape one’s identity,”
says Tammy Berberi, president of the Society for Disability Studies.
“It is not a distinct physical condition or a private struggle.”

WHAT YOU’LL STUDY

The Modern Language Association, which promotes the study of
literature and the humanities, established disability studies in 2005
as a “division of study.” This says much about how far the field has
come in the last 20 years, and about its mission.

Through courses in disability history, theory, legislation, policy,
ethics and the arts, students are taught to think critically about the
“lived lives” of the disabled, and to work to improve quality of life
and to advocate for civil rights. “It’s more than teaching the
disabled how to make an omelet,” Dr. Berberi says. The emphasis is on
applying lessons from the humanities to solving the social struggle at
hand.

Steven J. Taylor, who created the Syracuse program, puts it
succinctly: “Disability studies starts with accepting the disability.
Then it asks the question: ‘How do we equalize the playing field?’ ”

WHERE YOU CAN STUDY

Some 35 colleges and universities tackle that question through
graduate and undergraduate degrees, minors and certificates. Not all
get to the answer in the same way, or agree on what constitutes a
successful endgame. Mariette J. Bates, academic director for the
program at the City University of New York School of Professional
Studies, says the differences stem from a fragmented field (“cognitive
doesn’t talk to physical, and no one talks to mental”) and divergent
academic approaches (theoretical versus clinical).

CUNY, Syracuse University and the University of Illinois at Chicago
have the oldest and best-known programs. A complete, vetted list can
be found on the web site for Syracuse’s Center on Human Policy, Law
and Disability Studies.

Because of its history and student body, CUNY takes the most applied
approach. The program grew from a Kennedy Fellows program in special
education and rehabilitative counseling, and 70 percent of those
seeking a credential there in disability studies work at service
agencies. CUNY started a four-course graduate certificate in 2004 and,
because of student demand, created a master’s in 2009 and a bachelor’s
— the first in the field and completely online — in 2012.

Syracuse’s program — an undergraduate minor and an advanced
certificate — emerged from its school of education at a time when the
university was emphasizing educational mainstreaming and dissolving
its special education program. At the graduate school level,
candidates from any discipline can enroll in the certificate of
advanced study, or combine disability studies with law. The only
free-standing Ph.D. is at the University of Illinois’s Chicago campus.

WHY STUDY IT

The rationale for the interdisciplinary approach? Jobs. Disability
studies has its greatest impact when taken up with another pursuit,
academic or professional, Dr. Taylor says. For doctoral students, an
interdisciplinary approach increases the odds of landing an academic
appointment, since there are few professorships in disability studies
alone.

Graduates can go on to careers in architecture, management,
engineering, policy, law, rehabilitative medicine, music and the arts.
The most obvious application is in education and human services,
including social work and health care, where advancement often
requires certification or a graduate degree.

What a credential “signals,” says Noam Ostrander, who has a Ph.D. in
disability studies from U.I.C. and is director of the Master of Social
Work program at DePaul University, “is a nuanced understanding of
disability that is not the tragic, scientific model but a progressive
model of disability that is more empowering.”

WHO IS STUDYING IT

Joseph Plutz, the coordinator of disability services at the Fashion
Institute of Technology, began as an administrative assistant 10 years
ago. With a background in finance, 15 years in the corporate world and
no formal training in education or social services, he was looking to
be promoted to a counselor position. His office coordinator suggested
CUNY’s certificate, which he earned in 2010. He then continued for a
master’s. The degree, he said, positioned him to work directly with
students, most with cognitive or learning impairments, advising them
on course scheduling, time management and ways to advocate for
educational and, eventually, on-the-job needs.

The discipline, unsurprisingly, attracts students with disabilities,
or those with a disabled loved one. Forty percent of the students in
the U.I.C. master’s, minor and certificate programs are disabled;
about 60 percent of those enrolled in CUNY’s bachelor’s program have a
disability or a disabled child.

April Coughlin has been in a wheelchair since a car accident left her
a paraplegic at age 6. That didn’t stop her from becoming a triathlete
wheelchair racer or a middle and high school English teacher. Her six
years working in New York City schools galvanized her. She routinely
encountered access issues. She was unable to consider jobs in older
school buildings, some of which house the city’s top schools, because
they were not wheelchair accessible. If she couldn’t get in to teach
in certain schools, she realized, many children with disabilities
couldn’t learn in them either, or see a person with a disability
leading the classroom.

She wove a disability perspective into her literature curriculum, but
saw a bigger calling: educating teachers across the board about the
needs of students with disabilities. She completed a master’s in
disability studies at CUNY in 2011 and is a Ph.D. candidate in special
education and disability studies at Syracuse. “Disability studies
provided me with the language I needed to describe what I had been
going through my whole life,” she says.

Her goal is to train future educators at the college level. She
already has a start. Last summer she was a trainer for New York City
Teaching Fellows. She also teaches an online course in disability and
embodiment for CUNY, in which she uses memoir writing, videos and film
to convey the experience of being disabled.

The best way to learn is from those who have lived it, she says. “I
can’t help but bring my real-world stories to the classroom. I like to
think my disability gives me credibility.”


Cecilia Capuzzi Simon writes about education from Washington.


-- 
Avinash Shahi
M.Phil Research Scholar
Centre for The Study of Law and Governance
Jawaharlal Nehru University
New Delhi India

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