hello, I had also diagnosed with retinitis pigmentosa in 1994. but I have come to know about assistive technologies and the real strength of a visually impaired in 2011. No doctors in matro cities as well as in AIIMS suggested me to look at the rehabilitation path. I have spoiled my 5 years in lack of awareness.
On 24/03/2015, Sucharu <[email protected]> wrote: > Dear Harish, > Actually I was diagnosed with RP around 10 years back at age of 24. > It happened at Apollo hospital in Delhi and I met some senior doctors at > Ganga Ram Hospital, Delhi, PGIMS Chandigarh and many others for second > opinion. It was very early phase of my marriage, pregnancy and career full > of high emotional pressures. > They all detailed me at length about its causes, effects(both short term > and > far going)and even how unfortunate I am. > But anybody hadn't bothered about even referring to any rehabilitation > facilities. > I am actually having a very strong feeling that they themselves don't know > that what blinds are doing in India and round the globe in this age. > I want somebody to come forward so that rehabilitation can be made a > compulsory and inevitable part of diagnosis. > Thanks, > Sucharu > > -----Original Message----- > From: AccessIndia [mailto:[email protected]] On Behalf > Of Kotian, H P > Sent: Tuesday, March 24, 2015 11:44 AM > To: AccessIndia: a list for discussing accessibility and issues concerning > the disabled. > Subject: Re: [AI] NGOworking in particular for late blinds > > Dear Sucharu > > The number of acquired blindness is far more than the congenital blind. Now > amongst the acquired blind, its spread, is very varied and it iss spread > out in different phase of one's life. > > The invervention in terms of rehabilitation usually has a large time > intervening it. > > To my understanding, your primary question, is there any support system > helping one during this vital stage. > Local NGO's should ideally filling up this requirement. Besides on a > national scale, there is the Helpdesk of NAB delhi and Eyeway providing > this service Harish Kotian > > -----Original Message----- > From: AccessIndia [mailto:[email protected]] On Behalf > Of Sucharu > Sent: 24 March 2015 11:33 > To: AccessIndia: a list for discussing accessibility and issues concerning > the disabled. > Subject: [AI] NGOworking in particular for late blinds > > Hello All, > > Is there any organization addressing to the concerns and needs of late > blinds in specific. > > Thanks, > > Sucharu > > > > Register at the dedicated AccessIndia list for discussing accessibility of > mobile phones / Tabs on: > http://mail.accessindia.org.in/mailman/listinfo/mobile.accessindia_accessind > ia.org.in > > > Search for old postings at: > http://www.mail-archive.com/[email protected]/ > > To unsubscribe send a message to > [email protected] > with the subject unsubscribe. > > To change your subscription to digest mode or make any other changes, > please > visit the list home page at > http://accessindia.org.in/mailman/listinfo/accessindia_accessindia.org.in > > > Disclaimer: > 1. 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Contents of the mails, factual, or otherwise, reflect the thinking of the > person sending the mail and AI in no way relates itself to its veracity; > > 2. AI cannot be held liable for any commission/omission based on the mails > sent through this mailing list.. > -- The most pathetic person in the world is someone who has sight but no vision. By "Helen Keller". The only thing worse than being blind is having sight but no vision. By "Helen Keller". ------ With Warm Regards, Akash Gupta Rajasthan Skype: akash.gupta2412 Register at the dedicated AccessIndia list for discussing accessibility of mobile phones / Tabs on: http://mail.accessindia.org.in/mailman/listinfo/mobile.accessindia_accessindia.org.in Search for old postings at: http://www.mail-archive.com/[email protected]/ To unsubscribe send a message to [email protected] with the subject unsubscribe. To change your subscription to digest mode or make any other changes, please visit the list home page at http://accessindia.org.in/mailman/listinfo/accessindia_accessindia.org.in Disclaimer: 1. Contents of the mails, factual, or otherwise, reflect the thinking of the person sending the mail and AI in no way relates itself to its veracity; 2. AI cannot be held liable for any commission/omission based on the mails sent through this mailing list..
