Ibunya Syifa, 

Ini ada info tentang craniosynostosis, mudah2an bermanfaat.

Meu

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What is Craniosynostosis?
Craniosynostosis is a congenital anomaly characterized by premature
closure-before the completion of brain growth-of one or more cranial sutures
(the fibrous joints between the bones of the skull). The disorder results in
an abnormality of the shape of the skull. The condition may be familial; a
result of a chromosomal or genetic abnormality; or it may occur
sporadically, with no other affected relatives. Some cases are associated
with disorders such as microcephaly (abnormally small head) and
hydrocephalus (excessive accumulation of cerebrospinal fluid in the brain).
The first sign is an abnormal head shape. Other symptoms, which include
increased intracranial pressure, developmental delay, and mental
retardation, may be caused by constriction of the growing brain. Seizures
and blindness may also occur.
Is there any treatment?
Treatment for craniosynostosis generally consists of surgery (usually
performed early in life) to relieve increased intracranial pressure, assure
capacity of the skull to accommodate brain growth, and improve the
appearance of the head.

What is the prognosis?
Prognosis for craniosynostosis varies depending on whether single or
multiple sutures are involved and the presence of associated abnormalities.
Prognosis is better for those with single suture involvement and no
associated abnormalities.

What research is being done?
The NINDS conducts and supports a wide range of studies that explore the
complex mechanisms of early neurological development. The knowledge gained
from these fundamental studies provides the foundation for understanding how
this process can go awry and, thus, offers hope for new means to treat and
prevent congenital anomalies, including craniosynostosis.

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> ----------
> From:         D.Andriani L[SMTP:[EMAIL PROTECTED]
> Reply To:     [EMAIL PROTECTED]
> Sent:         Wednesday, June 04, 2003 5:10 PM
> To:   [EMAIL PROTECTED]
> Subject:      Re: [balita-anda] Bayi dengan Craniosynostosis
> 
> Mbak Winda,
> 
> kalau saya ngga salah mengartikan, istilah awamnya adalah ubun-ubun
> menutup
> dengan cepat. Kalau ubun-2 cepat menutup maka perkembangan otak bayi tidak
> akan optimal dan akan ditakutkan akan berdampak buruk dikemudian hari
> yaitu
> "tidak cerdas" (saat ini perkembangan adik masih baik/ normal untuk anak
> seusianya). Disini saya berpacu dengan waktu karena perkembangan otak bayi
> secara optimal adalah 1 tahun.
> 
> Saya ingin mendapat second opinion dari masukan-masukan rekan-2 mengenai
> pengalaman, dokter atau rumah sakit yang pernah menangani kasus seperti
> ini
> atau sejenisnya.
> 
> 
> Salam,
> 
> Andri - Ibunya Syifa + Fakhri
> 
> ----- Original Message -----
> From: "Winda (Accounting Layer, PKP-HO)" <[EMAIL PROTECTED]>
> To: <[EMAIL PROTECTED]>
> Sent: Wednesday, June 04, 2003 1:30 PM
> Subject: RE: [balita-anda] Bayi dengan Craniosynostosis
> 
> 
> > apa ya itu ??
> > maaf nggak tau soalnya
> >
> > Winda Adjizar
> > PT. Primatama Karya Persada
> > PT.Adijaya Guna Satwatama-Head Office
> > Mail to : [EMAIL PROTECTED]
> > Phone : 62-021-831 0255-57
> >
> >
> >
> > ========= Smile and world will smile with you ==========
> >
> >
> > -----Original Message-----
> > From: D.Andriani L [mailto:[EMAIL PROTECTED]
> > Sent: Wednesday, June 04, 2003 3:07 PM
> > To: [EMAIL PROTECTED]
> > Subject: [balita-anda] Bayi dengan Craniosynostosis
> >
> >
> > Dear rekan milis,
> >
> > Apakah ada diantara member milis ini yang -punya atau kenal atau tau-
> > informasi balita dengan riwayat Craniosynostosis? kalau ada saya mohon
> > informasi secepatnya.
> >
> > Mungkin rekan milis bisa membantu saya dengan menyebarkan email saya ini
> ke
> > milis atau rekan-rekan yang lain.
> >
> > Sebelumnya saya ucapkan terima kasih atas bantuannya.
> > Informasi dapat dikirim via japri melalui :
> > [EMAIL PROTECTED]
> >
> > Salam,
> >
> > Andri - Ibunya Syifa + Fakhri
> >
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> >
> 
> 
> ---------------------------------------------------------------------
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> 
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