I haven't posted in quite awhile and wanted to let everyone know that I'm doing fine since being dx'ed on 4/27/04. My onc is monitoring the disease via Q-PCR and the BCR-ABL percentage keeps dropping. My 6 month milestone on Gleevec is coming up on November so I'll have my first BMB/BMA since being dx'ed (20/20).
When I was dx'ed with CML, I went on a tear and read everything I possibly could about CML, Gleevec and BMT's. I needed some time away to decompress from CML and rediscover my old pre-cancer life.
I'll try and post more often. So far my biggest problem w/ Gleevec is fatigue. Before CML I was very active and used to go on 3-mile jogs and workouts at the gym. I'm finding exercise difficult these days... the energy just doesn't seem to be the same. I've also gained 20 pounds (still gaining!) which has me concerned. Judging by the peri-orbital swelling I think a lot of it is edema but it still has me concerned. Also moderate bone pain occasionally and stomach upsets. Nothing insurmountable though.
I know that people describe Gleevec as a wonder drug and it is putting my CML into remission but I am counting the days when something with lower toxicity is available (hopefully the new BMS drug or AMN-107).
I hope everyone else is doing well and their counts are decreasing or at least stable.
Regards,
Mark
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