Richard, Thanks for posting this, I was thinking of doing the same. I was surprised to find out on the last newsletter that they only have 24 people enrolled currently, thought they would get more. For those that are considering it, its real easy no meds or anything. They send a survey every 6 months and a kit to have blood drawn and send to them. The blood draw is done by your dr during your regular appt. They now also are allowed to provide some of the test results back to your dr. I think the more we can get involved the better as the more data they can collect the more they should be able to learn. Sharon --- In [EMAIL PROTECTED], rrockef1 <[EMAIL PROTECTED]> wrote: > Dear Friends, > > I've been meaning to send the following to you for ages, but have been > delayed because of because I became so time-consumingly (and unexpectedly) > involved in presidential electoral politics. Respecting this group's > non-political ground rules I won't say on whose side, though those of you > who know me can probably guess - and I'm happy to tell others off- list if > you email me. I've been in Wisconsin for much of the past two weeks. > > But back to my point: though the Harvard CML Study has been working to > recruit volunteers for some time, they still need help. It's described > clearly below, so I won't repeat any of it - but will say that getting as > many of us as possible involved will result in information that will benefit > all of us here, as well as other sufferers from this disease who are not so > fortunate as to be part of this (usually, except when we're fighting) > wonderful family. Please join the study if you're can. > > Love, > Richard R > __________________ > > Harvard Chronic Myeloid Leukemia > > (CML) Study > > > A study for people with CML > > Toll Free: > 1-866-HAVE-CML > (1-866-428-3265) > > What is the Harvard CML Study? > > The Harvard CML Study is for people across the United States who have > chronic myeloid leukemia (CML). The goal of the study is to learn more about > people in the United States with CML, and how their disease is being > treated. > > Your participation in this study will help us learn important things about > people with CML, such as: > > � How are treatment decisions made? > � What kinds of things are associated with good or poor responses to > treatment? > � What are the long-term effects of treatment? > � What health, emotional, insurance, and work issues are important to people > with CML? > > Researchers on the study will learn about people with CML by analyzing > survey information and blood samples. > > Who can join? > > You are eligible to join if you: > > � have been diagnosed with CML in the last one year > � are age 18 or older > > > > What will I be asked to do if I join the Harvard CML Study? > > > > If you would like to take part in the study, we would ask you to: > > > > � Complete a survey every six months. Each survey would be mailed to your > home and would take between 20 and 30 minutes to complete. The surveys will > contain questions about your diagnosis of CML, your treatment, your quality > of life, your symptoms and general health, and your experiences as a CML > patient. > > � Donate blood samples every six months. Specimen kit used for drawing blood > will also be sent to your home and 35-50 cc�s (about 7-10 teaspoons) of > blood will be collected when your blood is being drawn for routine care. You > may choose to allow us to provide your doctor with any standard test results > performed on your blood samples that your doctor could have ordered. To > receive the results, you would need to contact your physician. > > � Sign a release of medical information form. This will allow us to request > copies of medical records that relate to your CML diagnosis and treatment. > > > > How do I find out more? > > If you are interested in joining the study or would like more information, > please call our toll-free number 1-866-HAVE-CML (1-866-428-3265) or email > [EMAIL PROTECTED] ------------------------ Yahoo! Groups Sponsor --------------------~--> Make a clean sweep of pop-up ads. Yahoo! Companion Toolbar. Now with Pop-Up Blocker. Get it for free! http://us.click.yahoo.com/L5YrjA/eSIIAA/yQLSAA/8zSolB/TM --------------------------------------------------------------------~-> New! Sign up for local CML support group meetings in your local community at http://cml.meetup.com Apply for Commercial Real Estate loans online and submit your deal to dozens of hungry lenders in just minutes. Loan programs for all types of business and commercial real estate. Apply anytime at http://realestatezoo.com CML (Chronic Myelogenous Leukemia Support List) --------------------------------- Part Of CMLHope.Com An International Community Of CML Patients For more information: http://cmlhope.com Post Message: [EMAIL PROTECTED] Subscribe: [EMAIL PROTECTED] Unsubscribe: [EMAIL PROTECTED] Change To No Mail/Web: [EMAIL PROTECTED] Change To Digest: [EMAIL PROTECTED] Change To Email: [EMAIL PROTECTED] List Help: [EMAIL PROTECTED] CML Group Web Site http://groups.yahoo.com/group/CML Yahoo! Groups Links <*> To visit your group on the web, go to: http://groups.yahoo.com/group/CML/ <*> To unsubscribe from this group, send an email to: [EMAIL PROTECTED] <*> Your use of Yahoo! Groups is subject to: http://docs.yahoo.com/info/terms/
