Hi Hans,
Thanks for your response. I guess I
offended Rob and Jennifer (not sure who they are except that they are the
sponsors of the CML support sites), concerning my offer to volunteer. I
would like to discuss with you my thoughts in providing a service and
developing a program for providing IT services to individuals and families
living with CML.
In regards to time, I am pretty flexible.
Let me know when it is convenient.
My office number is
(415)731-2884. If I am not there, just leave your number and a
short message with my assistant. Otherwise we can e-mail each other.
Thanks,
Peter
From: Hans Matheis
[mailto:[EMAIL PROTECTED]
Sent: Saturday, January 01, 2005
5:02 PM
To: [email protected]
Subject: RE: [CML] 2005 Goals
Besides that I have to share your #1 goal
for 2005 and adopt it for myself, I am rather intruigued by your idea of making
IT equipment, services and training more accessible.
I am the Service Department Manager in the
Syracuse location (Central/North NY Area) of the
one of the largest computer retailers in the US. I am thinking we should
get together at a convenient time and bounce ideas of eachother maybe
pool resources and develop a program.
For the members and/or families in the
Central/North NY area - please feel free to contact me privately - If I can
assist I will be more then happy to do so.
Everybody have a wonderfull 2005 and it
shall be the best NEW YEAR ever
-----Original Message-----
From: Peter Muraki
[mailto:[EMAIL PROTECTED]
Sent: Saturday, January 01, 2005
12:59 PM
To: [email protected]
Subject: [CML] 2005 Goals
Hi Everyone,
I hope everyone had a joyful and uneventful new
year celebration.
For the past month I have been preparing my
personal and business
goals and objectives for 2005. My #1
personal goal is to work with
my doctors in obtaining full remission of my CML
(I know it is
somewhat out of my control, but I can at least take
a very active
role in my treatments and work on alternatives for
reducing stress,
minizing depressive thoughts etc. that might
hinder my progress).
One of my other goals is become active within our
community by
volunteering and providing limited pro bono
services to other
individuals living with CML.
I am a information technology consultant and own a
information
technology consulting and training firm.
Since I am fairly new to
the club, I have noticed that some individuals
have problems getting
access to the internet. Is it lack of
computers? Costs for high
speed internet access? Computer
training?
If lack of computer is an issue, my company is
always swapping older
computers (work just fine and are quite usuable to
access the
Internet) from my clients and donating the
computers to non-
profits. I would be happy to start donating
these older computers
to individuals living with CML who either need a
computer or replace
their existing computers. I can also try to
work with SBC in
developing a lifeline program to provide high
speed internet access
for free or reduced costs (I am sure there is
already a program out
there. Does anyone know?).
I have been thinking of developing a program for
my trainers provide
free one-on-one computer training to individuals
and their families
living with CML (San Francisco Bay Area
only). The training could
not only teach computer literacy but also training
on newer versions
of computer applications (such as, Windows XP,
Microsoft Office
products) for individuals wanting to get back into
the workforce.
I plan to join my local chapter of the
Leukemia/Lymphoma Society.
But I am interested in providing services and
support directly to
individuals and families living with
CML. I am a bit leery of just
donating money to large organizations. I am
also not great at
counseling and listening (personal limitation of
mine). So if
there are any services that is not being fulfilled
for individuals
and families living with CML, please let me know.
Thanks,
Peter
dx 9/04
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---------------------------------
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