Hi Mark, Tracey,
Sorry for the slow response. I was out of town for the holidays.
Well, way back in September, I was in the hospital for about a week and a half. After a myriad of tests, I got daily leukapheresis treatments along with 5 grams of hydrea per day. After my fourth treatment, my WBC was down in the 20's and then it only took me a few weeks to get it down into the 6-7 range. so I think I was pretty lucky.
Yes, I had a huge spleen for the longest time, but it is back down to normal size now. I was looking through my notes to find a measurement, and at dx it was 21 CM. The Dr notes from the CT scan showed a lot more interest in a couple hemorrhages in my posterior temporal lobe. I'm really lucky to be here, whew! All of my early medical records have Acute Leukemia all over them, but the final diagnosis was CML, Chronic Phase w/ 5% blasts. A single clone was identified with the PH, 9,22 translocation and mild reticulin fibrosis.
My last BMB showed 60% of the 20 cells examined as blasts, so things are turning around. If my eyes would get back to normal or at least close, I would be really happy.
You had some whopping WBC counts yourself. Hope things are going well for you. I assume you are on Gleevec too? Has your Dr. bumped you up above 400mg? My doc is against it, so I'm getting a second opinion tomorrow.
Thanks for the response and happy new year.
John
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