To fellow coldies & thin skins: I have been on 600mg of Gleevec for 3 3/4 years. I am convinced that the Gleevec has removed my outside skin level (epidermis?). I am not only always cold, but even a slight draft makes me cold. I am the only one I come in contact with who has this problem. I think that the easlily breaking of the skin by only touching something with an edge relates to the lack of an outer skin. My counts have always been below the normal range and have been on thyroid meds for a while. The side effects work differently on each of us, but my list is quite long. Most have been reduced with meds other than the fatigue problem. Beats the alternative! Dave
>From: "Paul" <[EMAIL PROTECTED]> >Reply-To: [email protected] >To: [email protected] >Subject: [CML] Re: Always cold - Brrrrrrr! - Lynn and everyone_Cheryl Anne >Date: Mon, 17 Jan 2005 16:55:15 -0000 > > >Hi, > >I do get cold as well, but nothing as bad as what people are >describing here. Mostly I notice it after drinking something cold; I >feel much better if I drink something hot. > >For the most part if I wear a sweatshirt or something, I'm good to go. > >Paul > >--- In [email protected], "snickersunny" <[EMAIL PROTECTED]> wrote: > > > > > > Hi Cheryl Anne! > > > > I'm thinking we should get a group discount on the pashmina for all > > the cml ladies in the group! :-) That sounds really nice! > > > > I also find it interesting that the men haven't replied to this > > post! They must be like furnaces,, just like I thought! Maybe >it's > > because they have more muscle mass, and their internal metabolism > > heater runs better. > > > > I talked to my Hem/Onc the other day about it, and he said that he > > has 5 other cml patients, and I'm the only one who has the problem > > with feeling cold. > > > > I've also never bought silk longjohns, so that may be the next >step. > > Any place to get those on the cheap? > > > > Thanks for the reply. I appreciate it very much! > > > > > > > > > > > > > > > > > > --- In [email protected], "Cheryl-Anne Simon > > > > > > > > > > <[EMAIL PROTECTED]> wrote: > > > From: "snickersunny" <[EMAIL PROTECTED]> > > > > > > Subject: Always cold - Brrrrrrr! > > > > > > Hello Everyone! > > > > > > I have a question to post to the group. I am always COLD (even >when > > wearing > > > layers and the heat turned up to 65 or so.) > > > > > > From Cheryl-Anne: > > > > > > Hello Lynn and everyone, I am always cold too. I have often > > wondered if it > > > is because of the fact that I also have Raynaud's Phenomenon, >which > > is an > > > auto-immune disease. Interestingly, more women suffer from > > Raynaud's than > > > men. If you ever notice your extremities turning a white waxy >color > > > accompanied with a numb and/or tingling feeling, it may be > > Raynaud's. I am > > > not yet prepared to blame it on Gleevec, but I have been thinking > > that it > > > probably has more to do with the having CML in general. I have > > found peace > > > with the idea that I am not going to enjoy the great quality of > > life that I > > > do have without some side effects ;>)! > > > > > > That being said, the first thing I put on in the morning is my > > winter silk's > > > long john underclothing and cashmere socks, then I pile other > > layers (this > > > weekend I just might finish that sweater I have been knitting)! > > When I am > > > not at work I can keep physically active, but at work I spend a > > great deal > > > of time either on the phone, at the computer or in meetings. >Very > > often I > > > am working with my clients and I figured I couldn't walk around >in > > the > > > fleece blanket I kept in my office. Pashmina's are really cozy > > warm and > > > look nice, but I refused to pay the price they were selling for >in > > the > > > stores, so I found a place on-line ><http://www.pashminagolden.com> > > > www.pashminagolden.com. My Pashmina arrived in less than a week > > for 1/4 of > > > the price that you would pay for a 100% pashmina. Now I can go >off > > to > > > meetings, look fashionable, and none are the wiser of my > > sensitivity to the > > > cold. The other thing that makes me nice and warm is the lovely > > steam bath > > > at my health club. > > > > > > Now for the "twist" in my story. I cannot tolerate any heat at > > night, and > > > no, I do not get hot flashes. I do not turn on any heat in my > > bedroom, in > > > fact sometimes I open the window even if it is minus 20 outside! > > > > > > As I write this I am not too far from the fireplace with a hot > > steaming cup > > > of coffee. > > > > > > Cheers, > > > > > > Cheryl-Anne > > > ------------------------ Yahoo! Groups Sponsor --------------------~--> Give the gift of life to a sick child. 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