Penny, I am sorry to hear about your son. I don't know of any CML experts in Kentucky, but I would definitely look into some of the cancer centers such as MD Anderson in Houston, St. Louis, etc...
If you haven't already, you might look in depth into your son's insurance to see if some of the major cancer centers are covered in- network. When my husband had to have a transplant, we chose Seattle, and although it is very far away from where we live, it was in-network for us. I learned that it is common for insurance companies to contract with several of the major cancer centers to provide in-network services for major events such as cancer. I would definitely consider some of the clinical trials that are out there and try to see a CML expert for a second opinion. I also think, though, that your son might consider doing a preliminary search on the donor list...there is no charge for the preliminary search and you will at least know if there are any potential matches should it come to transplant. Also, you would be one step closer to an in depth search if your son decided to or needed to move forward with transplant. I wish you and your son much success in finding answers and treatment. All the best, Karly --- In CML@yahoogroups.com, "[EMAIL PROTECTED]" <[EMAIL PROTECTED]> wrote: > > Hi, > I am not one to write and post often but I do read the mail sent out on a regular basis. > I received some wonderful support some time ago when my son lost his remission and his gleevec was increased to 600 mg. per day. He had been doing well on that dosage but last night he was told that he is not doing well. His white count is up to 30,000. > He is in med school in eastern Kentucky and when he contacted his onc. she immediately told him to get on the bone marrow list so they can start hunting for a donor for a transplant. He has no natural siblings (only adopted). > I am a little surprised by her reaction. I would have thought she would have increased his gleevec or suggest he try to get in a trial instead of jumping right into transplant. He has 1 1/2 years of med school left and it would be great if he could get through that time before doing something drastic. > What do the rest of you think about this? Does anyone know of a good CML specialist in the Lexington area? He is about 2 hours from there but it is the closest big city which might have a CML doctor. > Any help of response will be greatly appreciated. > Thanks, Penny (a sad and worried mom) > ------------------------ Yahoo! Groups Sponsor --------------------~--> Ever feel sad or cry for no reason at all? Depression. Narrated by Kate Hudson. http://us.click.yahoo.com/Qn4NpD/ubOLAA/xGEGAA/8zSolB/TM --------------------------------------------------------------------~-> New! Sign up for local CML support group meetings in your local community at http://cml.meetup.com Apply for Commercial Real Estate loans online and submit your deal to dozens of hungry lenders in just minutes. Loan programs for all types of business and commercial real estate. Apply anytime at http://realestatezoo.com CML (Chronic Myelogenous Leukemia Support List) --------------------------------- Part Of CMLHope.Com An International Community Of CML Patients For more information: http://cmlhope.com Post Message: cml@yahoogroups.com Subscribe: [EMAIL PROTECTED] Unsubscribe: [EMAIL PROTECTED] Change To No Mail/Web: [EMAIL PROTECTED] Change To Digest: [EMAIL PROTECTED] Change To Email: [EMAIL PROTECTED] List Help: [EMAIL PROTECTED] CML Group Web Site http://groups.yahoo.com/group/CML Yahoo! Groups Links <*> To visit your group on the web, go to: http://groups.yahoo.com/group/CML/ <*> To unsubscribe from this group, send an email to: [EMAIL PROTECTED] <*> Your use of Yahoo! Groups is subject to: http://docs.yahoo.com/info/terms/
