Hi Susan,
 
I am on 800mg/day , my haemoglobin has gone up from 86 to 99 but am still anaemic, I am going to ask my haemotologist about Procrit.  What is Edema?  Other than that I only have occasional cramps in my legs and slightly swollen ankles sometimes.
 
Jackie Petropoulos
 
 
----- Original Message -----
Sent: Saturday, December 31, 2005 4:25 PM
Subject: Re: [CML] fish test results

Hi Sue,I think sense his blood work is so good right now,he just wanted to give him two more months to see if it would get below 20%.I'm not real sure though.He seams to be a good Onc.All we can do is hope he is right.Thank,Sandy

Susan Loewenkamp <[EMAIL PROTECTED]> wrote:
Hi Sandy,
 
I don't know why your onc is waiting another two months.  But, having said that, the jump from 400 to 600 mg is usually pretty easy.  It's when you get to 800 mg that, for most people, the side effects are more daunting.  However, I'm on 800 mg and the two side effects I have can be overcome with medication --procrit for the anemia and furosemide (Lasix) for the edema.
 
Good luck!
 
Susan L
----- Original Message -----
Sent: Wednesday, December 28, 2005 1:33 PM
Subject: [CML] fish test results

Hello everyone,Randy(husband)went for his fish test results today.When he was dx in August of 05 his cancer cells were 97% positive.Now they are 50% positive.I thought that sounded good for only being on gleevec for 4 months.Well the onc  was not that happy with the results.He thought it should be more around 20% by now.He said he would leave him on the 400mg  of gleevec for two more months.If it isn't down to 20% than he wants to increase gleevec to 600mg.I said I hated to see him increase the gleevec because of all the side effects.He told us that sense Randy had no side effects with 400mg that he should do as well on 600mg.So doe's all of this sound right to all of you?Thanks for any response.Have a great New Years everyone.Sandy

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