Hi Richard, Thanks so much for your encouragement. From what I can see most people in this group are from USA so many are on at diff tmes to me in Australia. It's really the first contact I've had with other people with CML so am really pleased I've joined.
Thanks, Steph --- In CML@yahoogroups.com, Richard Troxel <[EMAIL PROTECTED]> wrote: > > Hi Candidasa, > > Welcome to the group no one wants to join! > > My experience was very much like yours. However, before my diagnosis I could > not walk my dog more than a few blocks without extreme fatigue setting in. > This is what sent me to the doctor and how I discovered that I had CML. My > ONC discovered that I was close to heart failure due to the terrible > condition of my blood. > > Anyway, yes fatigue is normal but I don't think it is all the Gleevec. > First, you have CML, which is a terrible, potentially fatal, leukemia; this > stresses your body tremendously! Second your body, with the help of Gleevec > is fighting for your life and this takes an enormous amount of energy from > your daily reserve. Finally, the Gleevec is busy suppressing the production > of some blood cells which can cause an anemia that steals your energy. The > good news is that, for most CML patients, Gleevec gives hope where there was > little to hope for. As dumb as it sounds, the remedy for energy loss is more > exercise. Try to stay active, push your body to provide your energy needs > (within reason). I walk my dog and try to play nine holes of golf every day. > I am exhausted by the end of the day but my spirit and energy is up for the > heart of most days. > > Hang in there and stay with this group, these are a great bunch of people > who have a lot to add to our knowledge and spirit. > > Richard Troxel male/61 years/LA California > dx 2/2003 Gleevec 3/2003 PCRU 9/2004 > > On 1/3/06, candidasa72 <[EMAIL PROTECTED]> wrote: > > > > Hi everyone, I'm new to the group and was dignosed with CML Sept 2005. > > started Glivec 2 weeks later and have had relatively few side effects > > apart from extreme tiredness and lack of energy. Prior to diagnosis > > and glivec I was walking 8km a day with my dogs but now I struggle to > > do 5km and if I don't have a sleep at lunchtime I feel completely > > exhausted by the end of the day. Does anyone else have this side > > effect and did it subside? I'm used to being really active but just > > find myself drained so easily. I'm on 400mg glivec a day. > > > > Luckily, touch wood, I haven't had any real problems with cramps apart > > from the few odd times but since being diagnosed and starting glivec > > I've also been taking a complete magnesium supplement that may have > > helped with the cramps. I'm also seeing an acupuncturist who > > specialises in blood conditions and herbal medicine. I figure the more > > complimentary medicines can only assist and make the whole process > > easier. > > > > > > > > > > > > > > New! Sign up for local CML support group meetings in your local community > > at http://cml.meetup.com > > > > Apply for Commercial Real Estate loans online and submit your deal to > > dozens of hungry lenders in just minutes. Loan programs for all types of > > business and commercial real estate. Apply anytime at > > http://realestatezoo.com > > > > CML (Chronic Myelogenous Leukemia Support List) > > --------------------------------- > > Part Of CMLHope.Com > > An International Community Of CML Patients > > For more information: http://cmlhope.com > > > > Post Message: cml@yahoogroups.com > > Subscribe: [EMAIL PROTECTED] > > Unsubscribe: [EMAIL PROTECTED] > > Change To No Mail/Web: [EMAIL PROTECTED] > > Change To Digest: [EMAIL PROTECTED] > > Change To Email: [EMAIL PROTECTED] > > List Help: [EMAIL PROTECTED] > > CML Group Web Site http://groups.yahoo.com/group/CML > > > > Yahoo! Groups Links > > > > > > > > > > > > > > > > > -- > Please visit my Yahoo 360 page at > http://360.yahoo.com/brorichard2005 > ------------------------ Yahoo! Groups Sponsor --------------------~--> AIDS has a woman's face. Help women to protect themselves. http://us.click.yahoo.com/VHwV5B/TREMAA/xGEGAA/8zSolB/TM --------------------------------------------------------------------~-> New! Sign up for local CML support group meetings in your local community at http://cml.meetup.com Apply for Commercial Real Estate loans online and submit your deal to dozens of hungry lenders in just minutes. Loan programs for all types of business and commercial real estate. Apply anytime at http://realestatezoo.com CML (Chronic Myelogenous Leukemia Support List) --------------------------------- Part Of CMLHope.Com An International Community Of CML Patients For more information: http://cmlhope.com Post Message: cml@yahoogroups.com Subscribe: [EMAIL PROTECTED] Unsubscribe: [EMAIL PROTECTED] Change To No Mail/Web: [EMAIL PROTECTED] Change To Digest: [EMAIL PROTECTED] Change To Email: [EMAIL PROTECTED] List Help: [EMAIL PROTECTED] CML Group Web Site http://groups.yahoo.com/group/CML Yahoo! Groups Links <*> To visit your group on the web, go to: http://groups.yahoo.com/group/CML/ <*> To unsubscribe from this group, send an email to: [EMAIL PROTECTED] <*> Your use of Yahoo! Groups is subject to: http://docs.yahoo.com/info/terms/
