Trey! Thank you thank you thank you!!! I have had a "heart beat" in my right ear now for almost four years!!!! It started the summer before I was dx'ed and I have asked EVERY Dr. I have seen about it and no one knew why it was happening! That first year it about drove me crazy anytime anything happened that raised my heart beat it got louder and louder and at times I had great difficulty hearing. I couldnt stand a lot of noise because it made it worse. Over the last three years it slowly went away almost completely (I guess as you said as my counts dropped) But since October when the doc left me off of gleevec for two months and my wbc went up (although slightly) but the CML increased by 6% it is back and as loud as ever. But now I know why, and now I know that as my disease regresses so will the heart beat. Thank you again. Hugs, Katy
-- "The innocent and the beautiful have no enemy but time." -William Butler Yeats "Women and cats will do as they please, and men and dogs should relax and get used to the idea." -Robert A. Heinlein Katy DX: 10/03 #677 in Zero Club xanga.com/katybug45 -------------- Original message ---------------------- From: "Trey" <[EMAIL PROTECTED]> > > The "freight train in the ear" is not normally tinnitis (ringing), but > rather the sound of blood rushing through the vessels in the head where > they go near the ears. With leukemia at diagnosis, the blood is > thicker than normal with all the extra blood cells and platelets. This > causes a rushing sound in the ears, especially when sitting in a very > quiet spot. I had this issue, and it decreased over time as the blood > counts returned to normal. > > As for the BMB, I do not want to minimize that the BMB process is > unpleasant. But it is very necessary to properly assess the status of > the disease. I am surprised that a diagnosis was made without it (I > assume a FISH or PCR was done with blood). But a BMB is the proper way > to diagnose CML and to determine if there are other issues. I have had > two BMBs, and used only a local anethestic at the hip. I did not find > it that bad. The biggest issue was some pain several hours afterward > when sitting, but that went away fairly quickly. If sedation is > preferred, then there is no reason for concern about the process, since > he won't feel it at all. > > --Trey > Dx Oct 2005 > > On Jan 24, 8:37 pm, <[EMAIL PROTECTED]> wrote: > > My brother, Ron, was just dx with CML and is now taking Gleevec. He has > > some > strange symptioms: he says he has a freight train in each ear. Has anyone > else > had such a symptom? Also, he is afraid of having the bone marrow biopsy. I > have found a great doctor at H. Lee Moffitt Cancer Center in Tampa, Florida I > am > trying to get his to see. This institute was one of 15 such National Cancer > Institutes sites to run clinical trials on Gleevec. Any feedback is welcome. > > My brother is too sick to use his computer and my sister-in-law works > full-time > so I am the designated family researcher, etc. Thanks. DD > > > > --~--~---------~--~----~------------~-------~--~----~ [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to [EMAIL PROTECTED] For more options, visit this group at http://groups.google.com/group/CMLHope -~----------~----~----~----~------~----~------~--~---
