Oh Susan - what WONDERFUL news!  Negative Nesting Testing............
wow.  :-)

Always more decisions - may you make the best one for you.
love
Annie
Steven's mom
www.livingwithcml.blogspot.com


On Feb 17, 10:13 am, "educatorsusan" <[EMAIL PROTECTED]> wrote:
> Well, I have successfully made it to almost 4 years (began Gleevec on
> April 10th but was Diagnosed on January 8, 2003)
>
> My PCR test came back negative AND when that happens the most
> sensitive test called the "nested" test must be performed.  I am happy
> to announce to the WORLD at large that my "nested" test came back
> NEGATIVE, again!  YEAH!!!!!!
>
> So, now the big decision comes and would appreciate any comments!
>
> I am on 300 one day and 200 the other, alternating days.  That makes
> an average of 250 mg.  Since my hemoglobin and hematocrit seems to
> still be affected somewhat, it seems that my husband does not want me
> to reduce the Gleevec to 200mg.  I have constant PK testing on the
> Gleevec levels.  I am still high in that range.  Dr. Druker has given
> the okay for me to reduce my dosage to 200 mg everyday.
>
> So, since I am in unchartered waters, can anyone help me decide what
> to do...or help my husband decide what to do???
>
> Hugs,
> Susan Rosenthal
> Miami, Florida


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