Hi Lori and Zavie I appreciate your responses. Thanks for your comments. I have known that you are really against BMTs Zavie, with previous posts. And I think your challenge to read up on stats is a good one. Lori, you are young so it is a stronger consideration. The success rate is much greater with young patients. I really appreciate your struggle with the decision. It is always in my mind. At any rate, thank you both. I wish all of us the same Zavie, a long and healthy life. That is the goal for all of us eh? Barb
On Jun 17, 9:19 pm, "Zavie Miller" <[EMAIL PROTECTED]> wrote: > Hi Barb, > > From everything that I have read, I believe that if you want to see your > granddaughter grow into a woman and have babies, a MUD BMT at this point in > time is not the way to go. See if you can get the mortality statistics for a > MUD at the City of Hope. The ones that I have seen say that 50% of MUD > transplants are dead within 5 years. Not high enough for this body. > > With the rapid advances in new drugs there is an excellent chance that we > will see a cure for CML within 20 years. > > Which ever way you decide, you will have my prayers for a long healthy life. > Enjoy your granddaughter as she grows up. > > Zavie > > Zavie Miller (age 69) > 67 Shoreham Avenue > Ottawa, Canada, dxd AUG/99 > INF OCT/99 to FEB/00, CHF > No meds FEB/00 to JAN/01 > Gleevec since MAR/27/01 (400 mg) > CCR SEP/01. #102 in Zero Club > PCRU 5/02 at RVH (suspect) > 2.8 log reduction Sep/05 > 3.0 log reduction Jan/06 > PCRU 11/06 at The Ottawa Hospital > e-mail: [EMAIL PROTECTED] > Tel: 613-726-1117 > Fax: 309-296-0807 > Cell: 613-202-0204 > Yahoo ID: zaviem > On 6/16/07, > > Barb in AZ <[EMAIL PROTECTED]> wrote: > > > > > > > > > Hello All > > The posts from Doug and the story of his journey has really brought > > to the forefront for me, once again, the thought about my age, the > > window of opportunity, the "cure" and thoughts where I am questioning > > whether I am dong the right thing or not. I just turned 56. I was > > diagnosed 5/5/02. I reached remission, PCRU 3/03. I have two MUDs, > > 12/12. I live within 10 miles of City of Hope, Phoenix, who > > specializes in transplants. The Mini- Allos are really proving to be > > successful and there are drugs that work well after transplant to wipe > > out GVHD. I think the thing that is foremost in my mind is that my > > only grandchild was born Dec. 6 and when I look in her eyes, and > > think about being here for HER babies, well, I start thinking again > > about whether I should go for the cure. Maybe this is why it is > > foremost in my mind. I know, gleevec is a miracle drug that has > > brought me 5 years of life. Please understand I am so grateful for > > that. I also know that the side effects for me are tremendous. I KNOW > > that sprycel and other drugs are available as a safety net, but I also > > know my mother died of a liver tumor from 12 years of hydroxeura for > > CLL. Will my liver hold up? Will I be able to live to see the > > cure? The vacinne? > > I was in this 'space' once before and then shrugged it off as just a > > phase I was going through. But Doug and his journey have really > > spurred in me, the consideration all over again. > > > I guess I just needed to vent about it and would welcome any thoughts > > on the subject anyone would care to give. I know the decision is such > > a personal one. My family has said all along they would support me > > with any choice. They are my cheer squad - no matter what. But the > > 'what if's' are literally occupying my every thought. > > > Thanks for listening. > > Barb > > --- Hide quoted text - > > - Show quoted text - --~--~---------~--~----~------------~-------~--~----~ [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to [EMAIL PROTECTED] For more options, visit this group at http://groups.google.com/group/CMLHope -~----------~----~----~----~------~----~------~--~---
