Millie & Judy:
Thanks for your replies. I have been on 37.5mg/day of triamterene for the water 
retention. I see my Onc.
in three weeks. He may decide to boost the triamterene or switch diuretics. I 
have found that stress at work tightens up the stomach and prevents easy 
urination even though I only work 6-7 hours per day. I also keep the stomach 
retention down by watching the salt intake and not overeating. Please let me 
know what your Docs say. Peace.
Dave

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> == 1 of 3 == 
> Date: Mon, Oct 22 2007 11:06 am 
> From: Dave 
> 
> 
> Hi Group: 
> I am closing in on my 7th year on Gleevec and have had severe edema 
> since January. I had one gallon of fluid removed after suffering for 
> two months not knowing the cause. The Docs did not think there was 
> anything abnormal. After I insisted on a CAT scan, the water retention 
> was obvious. My Onc changed me from 600mg/day to 400mg. I still have 
> edema in the stomach, but not as bad. I take Tiamterene as a diuretic. 
> Anyone else run into this? Peace. 
> Dave 
> 
> 
> 
> 
> 
> == 2 of 3 == 
> Date: Mon, Oct 22 2007 2:34 pm 
> From: "C.M. Houtz" 
> 
> 
> Hi Dave I've been on Gleevec about the same amount of time and from time to 
> time experience a lot of water retention. My doctor changed me to Sprycel, 
> but had to many side effects, so after being off of it was put back on a 
> couple of weeks ago. Right now I have such swelling in my legs, feet, 
> stomach and probably other places, but mostly I notice it there. I had a 
> sonogram a few months ago and it showed water retention . and so I went to a 
> specialist, who said not to worry about it. Meanwhile, I've had congestive 
> heart failure once....and don't want it again. I also am on water pills, 
> one or two a day, and right now it's not taking care of it, so tomorrow I 
> will call my doctor and see what she thinks. I am frustrated about it, but 
> don't know how to handle it either. Just wanted you to know that you're not 
> alone. I'll try to let you know what's happening when I do. Good luck and 
> hope that your water retention is not a permanent thing. Good luck to you 
> on all levels. 
> 
> Oh yes, I was on 800 mg. of Gleevec for over a year but now am taking 400 
> and won't know how I'm doing on that for a few weeks. Hang in 
> there......Millie 
> ----- Original Message ----- 
> From: "Dave" 
> To: "CMLHope" 
> Sent: Monday, October 22, 2007 2:06 PM 
> Subject: [CMLHope] Water Retention 
> 
> 
> > 
> > Hi Group: 
> > I am closing in on my 7th year on Gleevec and have had severe edema 
> > since January. I had one gallon of fluid removed after suffering for 
> > two months not knowing the cause. The Docs did not think there was 
> > anything abnormal. After I insisted on a CAT scan, the water retention 
> > was obvious. My Onc changed me from 600mg/day to 400mg. I still have 
> > edema in the stomach, but not as bad. I take Tiamterene as a diuretic. 
> > Anyone else run into this? Peace. 
> > Dave 
> > 
> > 
> > > 
> > 
> 
> 
> 
> 
> 
> == 3 of 3 == 
> Date: Mon, Oct 22 2007 10:46 pm 
> From: judy 
> 
> 
> Hi Dave I also have the adema. really bad at times. I take water pills bumix. 
> two a day and them I have to take 14 potassium to counter the potassium loss. 
> I had surgery a whild back and my potassium crashed and i ended staying in 
> the 
> hospital for 2 extra days. My ankles swell really bad but I guess being in 
> remission with the gleeves (7years also) I can handle the side effects. JUDY 
> 
> Dave wrote: 
> Hi Group: 
> I am closing in on my 7th year on Gleevec and have had severe edema 
> since January. I had one gallon of fluid removed after suffering for 
> two months not knowing the cause. The Docs did not think there was 
> anything abnormal. After I insisted on a CAT scan, the water retention 
> was obvious. My Onc changed me from 600mg/day to 400mg. I still have 
> edema in the stomach, but not as bad. I take Tiamterene as a diuretic. 
> Anyone else run into this? Peace. 
> Dave 
> 
> 
> 
> 
> 
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