Hi John, Thank you for your support. My son is already in the best CML hospital in Brazil. In fact, his doctor has been awarded by Novartis ( the lab which makes Gleevec). The problem is the Psychiatrist, and we've changed for another one who works in the same hospital.
Now I think that we're in the right direction, because this new psychiatrist is talking to the oncologist to deal with my son together. Thanks a lot, Ricardo On 10/20/08, john de soto <[EMAIL PROTECTED]> wrote: > > > Our son, now 18, was diagnosed with CML in 2004. Gleevec has kept the > disease under control and he is doing well except for delayed growth. > For the first three years he was under the care of an oncologist at a > major teaching hospital in San Francisco. Because CML is so rare in > young people, he was the only CML patient in the pediatric unit. > A year ago we changed MD's when a noted CML specialist arrived at the > hospital. This doctor has a large number of CML patients, is doing > clinical trials and research, and is right up to date on new > developments in the field. > We strongly suggest that you seek a CML specialist for you son. A > regular oncologist can not be expected to have the breadth of > knowledge necessary to provide the best available treatment for this > rare disease. > As to your son's lab results, you need expert interpretation. The > small change in the wrong direction is probably not significant. Only > a CML expert has the experience to give a proper interpretation > because he sees lots of patients and lots of test results and is > familiar with the technical aspects of the tests. > You may email me privately if you want more information on contacting > a CML specialist in the San Francisco Bay Area. > Run, don't walk, to a CML specialist. Your son deserves the best. > John > > > > --~--~---------~--~----~------------~-------~--~----~ [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to [EMAIL PROTECTED] For more options, visit this group at http://groups.google.com/group/CMLHope -~----------~----~----~----~------~----~------~--~---
