**Be your own advocate. **Be part of a cml community. **Find a cml expert, even for consultations.
**Lab should use international scale. **Need more people in trials. Thinks drs. must do a better job educating people about trials. **Risk for relapse, toxicity or failure to achieve ccr is in the 1st 3 yrs. of taking a cml drug. **Fit the drug to the patient. All drugs are options. In the 1st 3-4 years want the drug that brings effects sooner. **Do not miss more that 3 doses per month. **Split dosages have not been tested & therefore are not recommended. **Over time, they are seeing less relapse & shift out of chronic phase. **Drs. are not ready to take people with long-term remission off gleevec as protocol. **Ponatinib: Ariad trial now in phase 2. Showing promising results in cml patients who lost their response or failed 2-3 drugs. **QT prolongation---my note here is incomplete because I didn't write down what QT stands for. Will probably feel really dumb when one of you says what it means. Mauro ended his presentation with a quote by Oscar Wilde: "I have the simplest of tastes. I am always satisfied with the best." I think I covered his bases. These drs. are amazing. Lucky for us. Ruth Marcon -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope
