U of M Dr Talpaz one of the discovering doctors for all cml drugs. Your doctor probably confers with Dr Talpaz. On Sep 30, 2011 7:45 AM, <cak...@aol.com> wrote: > I was taken off Gleevec in March due to acute kidney failure. Started > Sprycel one week later. I am doing much better on Sprycel than Gleevec. i had > very serious side effects for 10 years, The cramps are gone, I have stopped > throwing up, my hemoglobin has climbed from 9 to 11, my white count is up > to normal, and my kidneys are slowly recovering. I am on 100mg daily. The > only 2 side effects I am having now is bone pain in my legs and a rash. > Overall, I feel so much better. I am also a Michigan resident. Where do you > treat at? I see Dr Shurafa at Great lakes Cancer Management in Grosse Point. I > started with him when he was at Henry ford in Detroit. wonderful man. > Carol kalat > > > In a message dated 9/30/2011 6:35:21 A.M. Eastern Daylight Time, > cmlhope@googlegroups.com writes: > > Today's Topic Summary > Group: _http://groups.google.com/group/cmlhope/topics_ > (http://groups.google.com/group/cmlhope/topics) > * _Just got the bad news, Gleevec out after 7 years!_ > (mip://09e06990/default.html#group_thread_0) [1 Update] > * _Problems with Food and Gleevec_ > (mip://09e06990/default.html#group_thread_1) [1 Update] > Topic: _Just got the bad news, Gleevec out after 7 years!_ > (http://groups.google.com/group/cmlhope/t/d1cf240f129f33ff) > teepee...@aol.com Sep 29 10:18PM -0400 _^_ > (mip://09e06990/default.html#digest_top) > > > Could anyone give me info about nose bleeds and Gleevec > Teepee > > > In a message dated 3/29/2011 8:58:13 A.M. Eastern Daylight Time, > kneesrb...@gmail.com writes: > > Thannk you for the information. > > On Wed, Mar 23, 2011 at 4:38 PM, John Kuptz <_jkuptz@milwpc.com_ > (mailto:jku...@milwpc.com) > wrote: > > I was diagnosed in 11-05 and started on Gleevec but within 2 months had > developed liver function failure. Was started on Sprycel 70mg bid and that
> just about wiped out my platlets. Waited for bone marrow to recover and > was > put on only 20 mg bid. I have been on that ever since. My pcr tests > comes back UNDECTABLE almost every time they do it every three months. > Once in > a great while a very smalll amount is detected. Onocologist said that is > the name of the game. I do have joint pain and have put on 30 lbs but > basically that is the only side effect in 4 years. Best of luck to you. > Carolyn > ----- Original Message ----- From: "kneesrbad2" <_kneesrbad2@gmail.com_ > (mailto:kneesrb...@gmail.com) > > To: "CMLHope" <_cmlhope@googlegroups.com_ > (mailto:cmlhope@googlegroups.com) > > Sent: Tuesday, March 22, 2011 10:59 PM > > Subject: [CMLHope] Just got the bad news, Gleevec out after 7 years! > > > > > > > I don't know what went wrong but my abnormal cells increased 3 fold on > my last BMA. Now going onto Sprycel! I need everyone who is on > Sprycel to give me your quick stories of what to expect with the new > round of side affects from Sprycel. On Gleevec, here is MY list of > side affects, Diarehea, fatique, eye bleeds, water retention, thin > skin, pale skin (burn easily), cramps, sinus operation, pumpkin face, > joint pains, insomnia, etc etc etc. > > What am I faced with for side affects on Sprycel? Suppose to start > it next week. > > I am a 55 year old, male, Michigan resident, DX'd on my Wedding > anniversary in 2004, in full blast stage with a spleen they were going > to take out immediately and when I say immediately, I mean 3:30 am > with a full siren ambulance to a major hospital but they saved it!! I > was tested for a full Bone Marrow Transplant with my brothers and I > have a 100% match from my younger brother if I need it. I just want > to hear the good, the bad and the ugly from those on Sprycel, > please. > > Also, and almost as important to our CML family for one reason or > another I have a few extra bottles of Gleevec 400 mg bottles still > with the seal on it if anyone is interested in talking with me in > private. I would like to help someone who may have a huge co pay on > their Gleevec payments. This will be handled away from this site and > all parties will get to know who the other parties are. I just don't > want these expensive drugs to go to waste because my body decides, the > heck with you, drug change. > > Please reply and let me know! Thanks > > -- > [CMLHope] > A support group of __http://cmlhope.com__ (http://cmlhope.com_/) > (_http://cmlhope.com/_ (http://cmlhope.com/) ) > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to _CMLHope@googlegroups.com_ > (mailto:CMLHope@googlegroups.com) > To unsubscribe from this group, send email to > _CMLHope-unsubscribe@googlegroups.com_ > (mailto:cmlhope-unsubscr...@googlegroups.com) > For more options, visit this group at > __http://groups.google.com/group/CMLHope__ > (http://groups.google.com/group/CMLHope_) (_ http://groups.google.com/group/CMLHope_ > (http://groups.google.com/group/CMLHope) ) > > > > > -- > [CMLHope] > A support group of __http://cmlhope.com__ (http://cmlhope.com_/) > (_http://cmlhope.com/_ (http://cmlhope.com/) ) > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to _CMLHope@googlegroups.com_ > (mailto:CMLHope@googlegroups.com) > To unsubscribe from this group, send email to > _CMLHope-unsubscribe@googlegroups.com_ > (mailto:cmlhope-unsubscr...@googlegroups.com) > For more options, visit this group at > __http://groups.google.com/group/CMLHope__ > (http://groups.google.com/group/CMLHope_) (_ http://groups.google.com/group/CMLHope_ > (http://groups.google.com/group/CMLHope) ) > > > > > -- > [CMLHope] > A support group of __http://cmlhope.com__ (http://cmlhope.com_/) > (_http://cmlhope.com/_ (http://cmlhope.com/) ) > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at > __http://groups.google.com/group/CMLHope__ > (http://groups.google.com/group/CMLHope_) (_ http://groups.google.com/group/CMLHope_ > (http://groups.google.com/group/CMLHope) ) > > Topic: _Problems with Food and Gleevec_ > (http://groups.google.com/group/cmlhope/t/14a9abc196016adc) > teepee...@aol.com Sep 29 10:07PM -0400 _^_ > (mip://09e06990/default.html#digest_top) > > > I Was Wondering if there is any connection with nose bleeds to Gleevec. > could anyone give me some information about this and is serious? > > Thanks > > Teepee > > > > In a message dated 9/27/2011 1:33:36 P.M. Eastern Daylight Time, > kneesrb...@gmail.com writes: > > Dr. Moshe Talpaz U of M 734-647-8901. > On Sep 27, 2011 11:07 AM, <_Myvety2k@aol.com_ (mailto:myvet...@aol.com) > > wrote: >> Kelly, I don't know how far away you are from Chicago but you could try >> calling Northwestern Medical Faculty Foundation Comprehensive Cancer > Center >> Groups >>> "CMLHope" group. >>> To post to this group, send email to _CMLHope@googlegroups.com_ > (mailto:CMLHope@googlegroups.com) >>> To unsubscribe from this group, send email to >>> _CMLHope-unsubscribe@googlegroups.com_ > (mailto:cmlhope-unsubscr...@googlegroups.com) >>> For more options, visit this group at >> __http://groups.google.com/group/CMLHope__ > (http://groups.google.com/group/CMLHope_) > (_http://groups.google.com/group/CMLHope_ > (http://groups.google.com/group/CMLHope) ) >> A support group of __http://cmlhope.com__ (http://cmlhope.com_/) > (_http://cmlhope.com/_ (http://cmlhope.com/) ) >> ------------------------------------------------- > >> You received this message because you are subscribed to the Google > Groups >> "CMLHope" group. >> To post to this group, send email to _CMLHope@googlegroups.com_ > (mailto:CMLHope@googlegroups.com) >> To unsubscribe from this group, send email to >> _CMLHope-unsubscribe@googlegroups.com_ > (mailto:cmlhope-unsubscr...@googlegroups.com) >> For more options, visit this group at >> __http://groups.google.com/group/CMLHope__ > (http://groups.google.com/group/CMLHope_) > (_http://groups.google.com/group/CMLHope_ > (http://groups.google.com/group/CMLHope) ) >> A support group of __http://cmlhope.com__ (http://cmlhope.com_/) > (_http://cmlhope.com/_ (http://cmlhope.com/) ) >> ------------------------------------------------- > >> You received this message because you are subscribed to the Google > Groups "CMLHope" group. >> To post to this group, send email to _CMLHope@googlegroups.com_ > (mailto:CMLHope@googlegroups.com) >> To unsubscribe from this group, send email to > _CMLHope-unsubscribe@googlegroups.com_ > (mailto:cmlhope-unsubscr...@googlegroups.com) >> For more options, visit this group at > __http://groups.google.com/group/CMLHope__ > (http://groups.google.com/group/CMLHope_) (_ http://groups.google.com/group/CMLHope_ > (http://groups.google.com/group/CMLHope) ) > > -- > [CMLHope] > A support group of __http://cmlhope.com__ (http://cmlhope.com_/) > (_http://cmlhope.com/_ (http://cmlhope.com/) ) > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at > __http://groups.google.com/group/CMLHope__ > (http://groups.google.com/group/CMLHope_) (_ http://groups.google.com/group/CMLHope_ > (http://groups.google.com/group/CMLHope) ) > > -- > [CMLHope] > A support group of _http://cmlhope.com_ (http://cmlhope.com/) > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at > _http://groups.google.com/group/CMLHope_ ( http://groups.google.com/group/CMLHope) > > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at http://groups.google.com/group/CMLHope -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope
