Dear friend My son is badly in need of Gleevec. Pls help in any way you can. tks rgds Marwan Abdeh
On 26 February 2012 23:55, Martin Gartenberg <wa2...@gmail.com> wrote: > Hey Skip, where have you been hiding. I have really missed you. Glad to be > hearing from you again. > > I have been going through some difficult times with the hemodialysis and am > starting a new kind called peritneal that can be done at home but that will > take about a month before I can do that. > > You are the longest CML person that is still kicking that I know of. I don't > know if I hold second place going on 23 years this May 21st which was the > day I received my bone marrow transplant. May 21st was the actual day that I > was born and on May 21st was my bone marrow transplant forty five years > later. > > Been looking for you on Echolink and Skype. Don't be a stranger. > > Take care and 18's along with 73's my friend > > Marty > > On Sat, Feb 25, 2012 at 7:25 PM, Skip Duffie <skipd_2...@yahoo.com> wrote: >> >> Hello Victoria and Marty >> Guess I am one who is just resting, There are, in the CML community, >> people >> that say, "living so close to people who have CML, one becomes burnt out". >> Not sure if this is the case here. Some others are fighting health >> problems >> on many fronts, I do read all the posts but as you say "they are few and >> far >> between". In my case I have had CML for over 35 years, whenever I >> see a new case on here, I feel for them but let them know it is treatable. >> Be safe all >> SkipD >> >> >> ________________________________ >> From: Martin Gartenberg <wa2...@gmail.com> >> To: cmlhope@googlegroups.com >> Sent: Saturday, February 25, 2012 4:26:33 PM >> >> Subject: Re: [CMLHope] Digest for cmlhope@googlegroups.com - 2 Messages in >> 2 Topics >> >> Hi Victoria, >> >> Sometimes some among us just decides to take a break. Sometimes others >> become depressed at what they are reading about others. There could be a >> host of reasons that people are not posting as they once did. >> >> If your talking about the "pioneers" then that is probably what I am. I >> had CML more then 22 years ago. This May it will be my 23rd year. I had a >> bone marrow transplant 22 years ago when the procedure was relatively new >> and there wasn't a lot of information about it. At that time there were no >> TKI's available so I had no other choice of getting onto a blind trial of >> Alpha Interferon or the transplant. >> >> If I were to go into that trial basis I could not be guaranteed if I would >> be receiving it or just a placebo. Since my white blood count was over >> 486,000 at the time and I was about to go into blast chrises I opted for the >> transplant because I had a suitable donor, my sister. >> >> So, there you have it, and just try to remember that sometimes people just >> like to keep to themselves unless that are comfortable about discussing >> their own problems with others, many of which are strangers to them. >> >> I always end any of my posts with the numbers 18. Those numbers 18 >> symbolizes life. >> >> 18's to you, >> >> Marty >> >> On Sat, Feb 25, 2012 at 9:58 AM, Victoria Reiter <vkrei...@gmail.com> >> wrote: >> >> It IS strange that no one, or very few, CMLers are posting. Have we >> become fatigued with focusing on our chronic condition and its >> side-effects? How many of us have decided just to get on with our lives >> and to live as fully as we can, trusting that Gleevec or the other >> inhibitors will keep us going? I think we may have forgotten how dismayed >> (euphemism) each of us was when we were first diagnosed and how glad we were >> to find this website and the information and support we received from it. >> Perhaps there are other, newer CML websites meant to provide information >> without demanding any personal, emotional involvement on the part of the >> reader. No doubt pioneers eventually get tired. Maybe that's what's at >> work here. >> >> On Sat, Feb 25, 2012 at 5:50 AM, <cmlhope@googlegroups.com> wrote: >> >> Today's Topic Summary >> Group: http://groups.google.com/group/cmlhope/topics >> >> FINALLY RELIEF FROM CRAMPS [1 Update] >> No posts [1 Update] >> >> FINALLY RELIEF FROM CRAMPS >> No posts >> You received this message because you are subscribed to the Google Group >> cmlhope. >> You can post via email. >> To unsubscribe from this group, send an empty message. >> For more options, visit this group. >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to CMLHope@googlegroups.com >> To unsubscribe from this group, send email to >> cmlhope-unsubscr...@googlegroups.com >> For more options, visit this group at >> http://groups.google.com/group/CMLHope >> >> >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to CMLHope@googlegroups.com >> To unsubscribe from this group, send email to >> cmlhope-unsubscr...@googlegroups.com >> For more options, visit this group at >> http://groups.google.com/group/CMLHope >> >> >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to CMLHope@googlegroups.com >> To unsubscribe from this group, send email to >> cmlhope-unsubscr...@googlegroups.com >> For more options, visit this group at >> http://groups.google.com/group/CMLHope >> >> >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to CMLHope@googlegroups.com >> To unsubscribe from this group, send email to >> cmlhope-unsubscr...@googlegroups.com >> For more options, visit this group at >> http://groups.google.com/group/CMLHope > > > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at http://groups.google.com/group/CMLHope -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. 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