Thanks everyone for your good wishes!! It has been a long haul, that's for sure. Patrick, I'm sorry, I screwed up - I am on 200 mg a day of Tasigna. 1 capsule once a day. Kelly
On Saturday, September 29, 2012 10:15:49 AM UTC-4, kellyelise wrote: > > Hi folks! > It's been awhile since I last posted...but, I had such good news, I had to > share! Some of you might remember that I developed a severe case of > pulmonary hypertension. My docs were in disagreement as to the cause of > this, but, with recent testing - I have completely recovered! > > This is proof that the Sprycel caused the PAH. So....they will be removing > the Hickman and Remodulin pump in the next month or so..after I have a > cardiac cath to make sure the echocardiogram is accurate. > > I am currently taking Tasigna 100 mg/day and have remained nondetectable > since 4 months after initiation of the Tasigna. I have to say...this drug > has been such a relief compared to the Gleevec and Sprycel. Probably > because of the low-dose. It's hard to tell what side effects are caused by > the Remodulin, Revatio or Tasigna...but, I am doing well. > > So, please fellow Sprycel users, please be aware of the PAH possibility. > It is very hard to detect and it "sneaks" up on you. > > Wishing everyone well! > Kelly > -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope
