Hi Penny, Thanks for replying. In reading some of the notes I've received, I have learned just how lucky I am....so many people on this board have had a much harder row to hoe. It is also sounds like many people who find Gleevec no longer works are switched to sprycel and do very well. If sprycel isn't the drug for you (but I pray it is), one of the other ones will be. Sounds like the drugs are different enough that where one fails, another succeeds. My thoughts and prayers are with you. Please keep in touch and let me know how you are doing. Best wishes, Mylissa
________________________________ From: Penny <boogie_woo...@yahoo.com> To: cmlhope@googlegroups.com Sent: Thursday, March 14, 2013 10:33:30 PM Subject: [CMLHope] Re: Thankyou Hi, I am Penny....diag. 2002 my story is very close to yours. This year Gleevec stopped working for me and I am back to being extremely tired. My onc has put me on Sprycel we shall see how that works. I hope you have continued success with Gleevec. On Sunday, March 10, 2013 6:42:53 PM UTC-6, myli...@yahoo.ca wrote: Hi there, > >I want to thank everyone for all the kind responses and helpful suggestions. >I can't tell you how much it means to hear that there is a light at the end of >the tunnel, I just need to be patient to get there. I will absolutely try the >dial soap trick and the tonic water to help with the cramps. For cramps >through the day, would it work to carry it in my pocket? > >Marty, my name is Mylissa...didn't mean to be a mystery person - lol. I live >in Markham, Ontario, Canada. I am so glad I found this group...I don't know >anyone else with CML and my onc is not open to a lot of questions and has told >me not to research CML on the internet. Think he's trying to keep me from >getting scared. So it means a lot to hear from all of you. It's reassuring >to know that what I am going through is part of the experience and not some >new added problem. > >Have to say, this has been a frightening experience but things are beginning >to look up, with white cells normal now. I just had cytogenetic testing done >last Tuesday and should have the results back from that by the end of March. >In the meantime, in speaking to the onc about the bone pain, he thought I >should try one week at 200mg, and then try 300mg to see if I tolerate that >better. I sure hope so - one of the reasons I wouldn't want to change from >Gleevec is that the patent expires in April 2013 in Canada.....which will >hopefully make it more affordable. This is a big issue for me, as I was >recently terminated at work, while I've been off on sick leave - so no more >benefits once the notice period is over. I'm sure that I will be denied >benefits at any new job I get as this will then be a "pre-existing" condition. > So affordable meds would definitely be good! I never knew medication could >be so expensive! I keep telling myself I am not allowed to throw up, because it would be like throwing up $130...lol. > >Thanks again to all who replied. Pat and Michele - I will have a read through >the links you sent me tonight; thanks for the info. > >18's back to you Marty. > >Mylissa-- -- [CMLHope] A support group of http://cmlhope.com/ ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to a topic in the Google Groups "CMLHope" group. To unsubscribe from this topic, visit https://groups.google.com/d/topic/cmlhope/Tx0yLOjocdE/unsubscribe?hl=en. To unsubscribe from this group and all its topics, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/groups/opt_out. -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/groups/opt_out.
