Hi Susan, I'm up so late, or early, depending on how you look at it, but had a very late nap today and wanted to catch up on some things. I'm heading up to bed very soon. I had my computer guy work on this computer and now it's not bringing in my e-mail or sending it out right, so I have to do it manually, and so that's what I'm doing. I wrote him earlier, so perhaps tomorrow he'll get on and straighten the mess out.
I deal with things different then a lot of people. I know that we all have issues, just different kinds. I also am a very compassionate person and wanted to work with Hospice but in the shape I'm in, couldn't do it now. I couldn't get from point A to point B to do it. The doctor is going to try to get me back on Home Care and that means I don't leave the house. I have such a hard time even getting dressed that most days I'm in my pajamas all day. I'm exhausted just trying to get dressed. I do love helping people though and it seems to make my life mean something. I know how everyone on this site has problems, some better then others and some a lot worse. I just have to try to deal with what is. I've been given a lot more time then I ever expected as when I was diagnosed I was given 5 years unless I had a bone transplant and I was on the border age wise (they don't work after a certain age). I was pushing that age, and opted to give those 5 years to my children. Well, I've been given 3 times that time and I'm so happy for what I've had. I'm not giving in to anything, but just know how lucky I am to have had this time. The thing I mind the most is not being able to get out with my friends to the quilt shows and now to my guild meetings. They mean so much to me, and now I'm unable to do these things. I just have to be happy with doing what I can at home and keeping busy. I do get tired very easy so at 4:00 P.M. had to take a nap and so I did. I don't sleep well at night anyway. I tell my family that I should work nights and sleep during the day. Seems to be what my body wants to do. You take care and let me know how it's going. I know that you have a lot of issues with the medication. I think it affects us all, because I did so well on tasigna with no side effects, except constipation and now can't take it because of my liver, so we shall see what they're going to do. I do have great faith in my Oncologist. He's like part of my family now after 20 years and I can't say enough nice things about him. What he doesn't know, he'll try to find out, but I keep him busy trying to figure me out. I tell him that he's earning the money that I have to pay him. :>) Talk to you soon. Let me know how things are going for you. I'm always here to listen. Many hugs and lots of Marty's 18's...Millie -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/groups/opt_out.
