Great Richard, and that is exactly what I do.
I have had several BMA in the 10 years I have been fighting this disease.
I was put to sleep with my last 3 so I didn't feel any pain, however there
is pain where the needle goes in for quite a while. They say the PCR test
will tell you just about as much as the BMA and I done those done
regularly. I have had two mutations and changed my meds twice, am now on
Spyrcel.
Good luck,
Jeanie<3
In a message dated 9/3/2014 12:11:35 A.M. Eastern Daylight Time,
richard1huff...@comcast.net writes:
Hope you receive good news after your CBC. My ONC has a lab in his office
and I have my results after about a 1/32 hour wait. I have Iron Deficient
Anemia that was found after I was diagnosised with CML. He doesn't like to
have a patient do a bone marrow biopsy because it is too painful. I was
on Gleevec for 5 + years and off for almost 6. In Oct. I will do the
mutation testing as I have something happening in my medical life. I have
several
things can be causing my blood test to be out of sync, so we must do some
elinination testing to find what tand who should be the lead Dr. to manage
treatment.
My favorite response to the question "How are you doing?". "I stood up
this morning looked around and said "Thank you God. Its going to be a great
day. I hope you are having one also."
Richard H.
On Tuesday, September 2, 2014 9:24:59 PM UTC-5, Maria Cashion wrote:
Hello everyone!!!! God bless you all!!! I have been out of touch for a
while. My situation is still complicated, but rather uneventfull. I went
to my appointment and my oncologist for the day told me that I might need
another bone marrow aspiration and biopsy soon. She was worried because my
platelets went down. The problem is that I have not been able to take my
sprycel steadily. I have skipped some days. Sprycel acts really strongly on
my platelet count, and I know this is what is happenning. Apparently, I
have an infection also running around my system. To make it more
interesting, I have been out of medication for a whole week due to insurance
red
tape...
I will resume my Sprycel 70 mcg dose daily tomorrow after I do another CBC.
I have an appointment in two weeks...
Well, please take care!!!! Love you!!!!
Blessings!!! :)
Maria
On Tue, Sep 2, 2014 at 6:17 AM, <_cml...@googlegroups.com_ (javascript:) >
wrote:
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(https://groups.google.com/forum/?utm_source=digest&utm_medium=email/#!forum/cmlhope/topics)
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* _painful jaw?_
(mip://09eeaa20/default.html#CAKVoHpA_0+iEwPLqE3yY+XsaF7423FEw3LTLs2qS_V4Gzvr0Kw@mail.gmail.com_14835
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_ICANDO...@aol.com_ (javascript:) : Sep 01 10:38AM -0400
Hi Marty and thanks, yes I am going to get an antibiotic for it. I have
been treating it with heat and etc. but no luck. It is something new that
I
have never had before, so it is a worry. I have had strep throat a lot of
my young adult life, but not in later years, and it had to be treated
with
antibiotics.
How are you?
I am good except for this new pain. Looking forward to the fall.
Blessings,
Jeanie<3
In a message dated 8/31/2014 11:31:20 A.M. Eastern Daylight Time,
_wa2...@gmail.com_ (javascript:) writes:
Hi Jeanie,
Having ear infections is not uncommon. However please don't do nothing
about it because you don't want it to spread if it is an infection. Go get
it
treated by your doctor usually an antibiotic is all that you will need and
once on it you would start feeling much better in a couple of days.
Also, having CML and being on any TKI you should look to avoid the sun.
I hope that you will feel better real soon.
18's,
Marty
On Sun, Aug 31, 2014 at 11:06 AM, ICANDOALLTTC via CMLHope
<_cmlhope@googlegroups.com_ (mailto:_cml...@googlegroups.cml_ (javascript:)
) > wrote:
Hello to all my cml warriors,
I have been sick; my jaw is sore and it feels like my ear is infected. I
have been home treating it with hot compresses and etc. Has anyone else
had this happen? It is very painful.
Yes, I always get really hot if I don't keep my air going. I always spent
time in the sun, but now this time is very limited.
I had really bad night sweats when I was first dx. I would run a fever,
take a tylenol and sweat it off. Then it would come back again.
With Sprycel, I don't sweat unless I get really hot. I always thought
sweat was another way for the body to expel waste products, so it isn't a
bad
thing.
Sorry to hear some can't take the Sprycel, as it has done wonders for me.
We are all different so we have to listen to our bodies and decide along
with our doctors advice.
Still worried about the high platelets, but don't get tested until the end
of Sept.
Thanks for the prayers and all; we need them.
Pray for all in need at this time.
Blessings,
Jeanie<3
In a message dated 8/25/2014 5:05:53 P.M. Eastern Daylight Time,
_ksnwoods@prodigy.net_ (mailto:_ksnw...@prodigy.net_ (javascript:) )
writes:
On Monday, August 25, 2014 4:04 PM, NICK WOODS <_ksnwoods@prodigy.net_
(mailto:_ksnw...@prodigy.net_ (javascript:) ) > wrote:
Thanks, Peter. We think it's part of the body reaction to the medicine,
too. You're so right! You do run out of steam when that happens.
Elizabeth W.
On Monday, August 25, 2014 3:48 PM, Peter <_pkschaub@gmail.com_
(mailto:_pksc...@gmail.com_ (javascript:) ) > wrote:
Hi Elizabeth.
I am on Tasigna. Whenever I do anything involving physical activity, like
mowing the lawn, I am usually ok for the first 10 or 20 minutes. Then
almost instantly, I start sweating profusely, especially in the face and
around
the neck and it isn't long after that, when I start running out of steam.
It was like that too when I was taking Gleevec. So, I figure that this is
part of the deal.
Peter
On Monday, August 25, 2014 3:53:00 PM UTC-4, Nick wrote:
We've had some hopeful news. Nick's hemoglobin is moving up a little.
His Oncologists decided to lower the amount of Gleevec per week. Nick's
feeling so much better, too. Sure hope the hemoglobin will continue to
move
back to a normal level. We are thankful to have a very thoughtful
Oncologist who keeps up with all the latest medical information on CML.
Thank you all for sharing your updates and information on how different
CML treatments affect you. Nick sweats a lot. He has to keep hydrated
especially with this high heat. Do any of you sweat perfusely?
On Sunday, August 24, 2014 5:26 AM, "cml...@googlegroups.com"
<cml...@googlegroups.com> wrote:
_cmlhope@googlegroups.com_
(_https://groups.google.com/https://groups.google.co&utm_utm_<WBR>medium=ema
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c5bs20a#.<WBR>ra_
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_Greenie and Susan _
(_http://groups.google.com/http://groups.gohttp://groups.google.com/<WBhttp:
/&utm_medium=email_
(http://groups.google.com/group/cmlhope/t/358154c7de47d903?utm_source=digest&utm_medium=email)
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Marty Gartenberg <wa2...@gmail.com>: Aug 23 08:41AM -0400
Hi Susan,
Praying for you. I know that GOD listens to my prayers. Things will
get better for you, don't you worry about that.
When I say 18's you know it means life and that is what your going to
have. A good life!
So, I double my 18's for you to 36. Two times Chai.
Marty
On Fri, Aug 22, 2014 at 10:37 PM, 'Susan Zimmerman' via CMLHope
"Nadia Noles" <nadi...@earthlink.net>: Aug 23 07:20PM -0400
Thank you Marty, I do good, if after 7 yahre on Gleevec. I love to read
from cmlhope, but don't post. Today you deserve a big Merci. Nadia
-----Original Message-----
From: cml...@googlegroups.com [mailto:cml...@googlegroups. com] On Behalf
Of Marty Gartenberg
Sent: Friday, August 22, 2014 7:27 PM
To: cml...@googlegroups.com
Subject: [CMLHope]
What happened to everyone? I hope that everyone is doing well..
18's,
Marty
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Marty Gartenberg <wa2...@gmail.com>: Aug 23 10:26PM -0400
Thank you Nadia,
It was nice hearing from you. Why don't you post more often? You are
always welcome here.
Please stay in touch.
18's,
Marty
Susan Zimmerman <rszi...@aol.com>: Aug 24 12:10AM -0400
Marty,
You are precious and I feel your prayers! I think He's about to give me
another rest from medicine, (already!) because of the elevated liver
enzymes.
I have decided that is a good thing! I'm sure my numbers are even lower
than 1.70 (last month), so it's all good. I'm looking forward to getting
more
energy back.
How are things going for you nowadays? No posting about your own issues,
come on and share. I know you need a transplant and I and many others are
praying hard for that to happen soon!
So sweet to give me a 36, I give you a 54!!!!
Susan F. Zimmerman
-----Original Message-----
From: Marty Gartenberg <wa2...@gmail.com>
To: cmlhope <cml...@googlegroups.com>
Sent: Sat, Aug 23, 2014 8:41 am
Subject: Re: [CMLHope] Greenie and Susan
Hi Susan,
Praying for you. I know that GOD listens to my prayers. Things will
get better for you, don't you worry about that.
When I say 18's you know it means life and that is what your going to
have. A good life!
So, I double my 18's for you to 36. Two times Chai.
Marty
On Fri, Aug 22, 2014 at 10:37 PM, 'Susan Zimmerman' via CMLHope
> To unsubscribe from this group and stop receiving emails from it, send an
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_ICANDO...@aol.com_ (javascript:) : Sep 01 10:43AM -0400
Hi Marty and yes it was a feast. He makes his own barbecue sauce with
green peppers and onion. Yummy to the tummy!
I used to know all the movie stars names, but now I have to crank up the
computer of a mind I have and sometimes the name just wont come. I have
always loved movies and especially mysteries. Betty Grable and Roy Rodgers
were two of my favorite. A lot of the youngsters might not know them hehe.
I have loved music also and taught myself how to play the piano when I was
young. I sang in the glee club in school and loved it!
I have a small electric organ that I play now; not as much as I should.
Pray for all,
Blessings and Love
Jeanie<3
In a message dated 8/31/2014 11:36:25 A.M. Eastern Daylight Time,
_wa2...@gmail.com_ (javascript:) writes:
Hi again Jeanie,
Hey your not the only one that forgets, so do I. If your above the age of
65 it's a disease called CRS. (Can't Remember S**T) Please pardon the
"French"
I hope that you and your son enjoy that fish you will be having for lunch.
With all of those trimmings it does sound like a feast.
18's,
Marty
On Sun, Aug 31, 2014 at 11:08 AM, ICANDOALLTTC via CMLHope
<_cmlhope@googlegroups.com_ (mailto:_cml...@googlegroups.cml_ (javascript:)
) > wrote:
Forgot, my son caught a big red fish and he is cooking it for my lunch
today! Can't wait. He makes grits and tomato gravy with a delicious tartar
sauce. He is also making hush puppies, so it will be a feast.
Blessings,
Jeanie<3
In a message dated 8/31/2014 11:06:11 A.M. Eastern Daylight Time,
_cmlhope@googlegroups.com_ (mailto:_cml...@googlegroups.cml_ (javascript:)
) writes:
Hello to all my cml warriors,
I have been sick; my jaw is sore and it feels like my ear is infected. I
have been home treating it with hot compresses and etc. Has anyone else
had this happen? It is very painful.
Yes, I always get really hot if I don't keep my air going. I always spent
time in the sun, but now this time is very limited.
I had really bad night sweats when I was first dx. I would run a fever,
take a tylenol and sweat it off. Then it would come back again.
With Sprycel, I don't sweat unless I get really hot. I always thought
sweat was another way for the body to expel waste products, so it isn't a
bad
thing.
Sorry to hear some can't take the Sprycel, as it has done wonders for me.
We are all different so we have to listen to our bodies and decide along
with our doctors advice.
Still worried about the high platelets, but don't get tested until the end
of Sept.
Thanks for the prayers and all; we need them.
Pray for all in need at this time.
Blessings,
Jeanie<3
In a message dated 8/25/2014 5:05:53 P.M. Eastern Daylight Time,
_ksnwoods@prodigy.net_ (mailto:_ksnw...@prodigy.net_ (javascript:) )
writes:
On Monday, August 25, 2014 4:04 PM, NICK WOODS <_ksnwoods@prodigy.net_
(mailto:_ksnw...@prodigy.net_ (javascript:) ) > wrote:
Thanks, Peter. We think it's part of the body reaction to the medicine,
too. You're so right! You do run out of steam when that happens.
Elizabeth W.
On Monday, August 25, 2014 3:48 PM, Peter <_pkschaub@gmail.com_
(mailto:_pksc...@gmail.com_ (javascript:) ) > wrote:
Hi Elizabeth.
I am on Tasigna. Whenever I do anything involving physical activity, like
mowing the lawn, I am usually ok for the first 10 or 20 minutes. Then
almost instantly, I start sweating profusely, especially in the face and
around
the neck and it isn't long after that, when I start running out of steam.
It was like that too when I was taking Gleevec. So, I figure that this is
part of the deal.
Peter
On Monday, August 25, 2014 3:53:00 PM UTC-4, Nick wrote:
We've had some hopeful news. Nick's hemoglobin is moving up a little.
His Oncologists decided to lower the amount of Gleevec per week. Nick's
feeling so much better, too. Sure hope the hemoglobin will continue to
move
back to a normal level. We are thankful to have a very thoughtful
Oncologist who keeps up with all the latest medical information on CML.
Thank you all for sharing your updates and information on how different
CML treatments affect you. Nick sweats a lot. He has to keep hydrated
especially with this high heat. Do any of you sweat perfusely?
On Sunday, August 24, 2014 5:26 AM, "cml...@googlegroups.com"
<cml...@googlegroups.com> wrote:
_cmlhope@googlegroups.com_
(_https://groups.google.com/https://groups.google.co&utm_utm_<WBR>medium=ema
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(_https://us-mg205.mail.yahoo.https://us-mg205.mail.yahoo&;..<WBR>rand=bbnesb
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(_http://groups.google.com/http://groups.gohttp://groups.google.com/<WBhttp:
/&utm_medium=email_
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Marty Gartenberg <wa2...@gmail.com>: Aug 23 08:41AM -0400
Hi Susan,
Praying for you. I know that GOD listens to my prayers. Things will
get better for you, don't you worry about that.
When I say 18's you know it means life and that is what your going to
have. A good life!
So, I double my 18's for you to 36. Two times Chai.
Marty
On Fri, Aug 22, 2014 at 10:37 PM, 'Susan Zimmerman' via CMLHope
"Nadia Noles" <nadi...@earthlink.net>: Aug 23 07:20PM -0400
Thank you Marty, I do good, if after 7 yahre on Gleevec. I love to read
from cmlhope, but don't post. Today you deserve a big Merci. Nadia
-----Original Message-----
From: cml...@googlegroups.com [mailto:cml...@googlegroups. com] On Behalf
Of Marty Gartenberg
Sent: Friday, August 22, 2014 7:27 PM
To: cml...@googlegroups.com
Subject: [CMLHope]
What happened to everyone? I hope that everyone is doing well..
18's,
Marty
--
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Marty Gartenberg <wa2...@gmail.com>: Aug 23 10:26PM -0400
Thank you Nadia,
It was nice hearing from you. Why don't you post more often? You are
always welcome here.
Please stay in touch.
18's,
Marty
Susan Zimmerman <rszi...@aol.com>: Aug 24 12:10AM -0400
Marty,
You are precious and I feel your prayers! I think He's about to give me
another rest from medicine, (already!) because of the elevated liver
enzymes.
I have decided that is a good thing! I'm sure my numbers are even lower
than 1.70 (last month), so it's all good. I'm looking forward to getting
more energy back.
How are things going for you nowadays? No posting about your own issues,
come on and share. I know you need a transplant and I and many others are
praying hard for that to happen soon!
So sweet to give me a 36, I give you a 54!!!!
Susan F. Zimmerman
-----Original Message-----
From: Marty Gartenberg <wa2...@gmail.com>
To: cmlhope <cml...@googlegroups.com>
Sent: Sat, Aug 23, 2014 8:41 am
Subject: Re: [CMLHope] Greenie and Susan
Hi Susan,
Praying for you. I know that GOD listens to my prayers. Things will
get better for you, don't you worry about that.
When I say 18's you know it means life and that is what your going to
have. A good life!
So, I double my 18's for you to 36. Two times Chai.
Marty
On Fri, Aug 22, 2014 at 10:37 PM, 'Susan Zimmerman' via CMLHope
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