Thanks Marcie. You too!! Jeanie🐟 Sent from my iPhone
> On Jan 8, 2015, at 1:23 PM, margood18 via CMLHope <cmlhope@googlegroups.com> > wrote: > > Jeanie: > > So sorry to hear about your issues. Thoughts, prayers and hugs being sent > your way. > > Marcie > > > -----Original Message----- > From: 'Icandoallttc' via CMLHope <cmlhope@googlegroups.com> > To: cmlhope <cmlhope@googlegroups.com> > Sent: Thu, Jan 8, 2015 1:21 pm > Subject: [CMLHope] Bad need > > Just got back from Moffitt. All counts were up and uremic acid was high. > Dr took me off sprycel and put me on Hydrea, and other drugs. Took another > blood test for mutant. Will know next week if mutant is problem. > Pray for me and all in need. > Jeanie > > Sent from my iPhone > > On Jan 8, 2015, at 11:07 AM, Marty Gartenberg <wa2...@gmail.com> wrote: > >> Hi again Sherri, >> >> Hopefully you will be able to be treated for this condition. It seems that >> as most of us get older we start suffering from some very unusual things, >> but that is the price we must pay to remain alive. We just have to do >> whatever we can to keep on going because we have no other choice. >> >> My kidneys failed four years ago and I must be on dialysis because it is >> keeping me alive until I can hopefully receive a kidney transplant. >> >> This happened because when I received a bone marrow transplant more then 25 >> years all of the radiation and chemotherapy started to destroy my kidneys, >> but i'm still alive today because of it. We all have our own battles in life >> and that is just the way it is. >> >> I wish you much health and happiness in this New Year. >> >> 18's, >> >> Marty >> >>> On Thu, Jan 8, 2015 at 5:19 AM, sherri swanson >>> <swanson.sherri...@gmail.com> wrote: >>> Hi Marty, >>> >>> Happy New Year. I hope you are well. Thanks for the research I enjoyed >>> article. I could only wish it was as simple as being as side effect of my >>> TKI. In my case, nothing is ever simple LOL. What I have is called >>> Autonomic Neuropathy. Basically, my Autonomic Nervous System has >>> malfunctioned. Here is a link for you to read if you would like to. >>> >>> http://en.wikipedia.org/wiki/Dysautonomia >>> >>> In a nutshell, Autonomic Neuropathy is a nerve disorder that affects >>> involuntary body functions, including heart rate, blood pressure, >>> perspiration and digestion. >>> It isn't a specific disease. Autonomic Neuropathy refers to damage to the >>> autonomic nerves. This damage disrupts signals between the brain and >>> portions of the autonomic nervous system, such as the heart, blood vessels >>> and sweat glands. This can cause decreased or abnormal performance of one >>> or more involuntary body functions. >>> Autonomic Neuropathy can be a complication of a number of diseases and >>> conditions. And some medications can cause autonomic neuropathy as a side >>> effect. Signs, symptoms and treatment of autonomic neuropathy vary >>> depending on the cause, and on which nerves are affected. >>> L'Chaim, >>> Sherri >>> >>> >>> >>>> On Wed, Jan 7, 2015 at 7:02 PM, Marty Gartenberg <wa2...@gmail.com> wrote: >>>> Hi Sherri, >>>> >>>> I did a little research on your no sweating problem, and it is probably a >>>> side effect of your TKI treatment. >>>> >>>> I also ran across an article which you can read here. It does mention >>>> something about the lack of sweating. It probably has nothing to do with >>>> your problem but maybe you should read it anyway. >>>> >>>> http://en.wikipedia.org/wiki/Fabry_disease >>>> >>>> 18's, >>>> >>>> Marty >>>> >>>>> On Wed, Jan 7, 2015 at 5:29 AM, sherri swanson >>>>> <swanson.sherri...@gmail.com> wrote: >>>>> Hello, >>>>> >>>>> I've had CML for 12 years and I've taken Gleevec for those 12 years. I've >>>>> also experienced night sweats for many years. At first I was told that >>>>> it was due to menopause because of my age at the time. Go figure. When >>>>> that was no longer an option, the only thing left was the Gleevec. Since >>>>> being dx'd with the CML in 2003, I've been dx'd with other chronic >>>>> illnesses that are just as serious. >>>>> >>>>> With these new illnesses came a new problem. I no longer sweat at all. So >>>>> now I have the complete opposite problem. No matter how hot it is, I >>>>> never sweat. I a way, it's nice because I'm always cold and I long for >>>>> very hot days so I can go out side in the heat. But my oncologist has >>>>> warned me to not do it for very long as I have no way to control my body >>>>> temperature. Unfortunately, it works the same way with the cold. My body >>>>> temperature is a constant 95 degrees. >>>>> >>>>> So, in answer to your question, yes, the Gleevec does cause night sweats. >>>>> It is one of its side effects. Unfortunately, I was not able to find a >>>>> remedy for my night sweats other than going to the extreme which I do not >>>>> recommend. <332.png> >>>>> >>>>> I hope everyone has a good New Year and is healthy. Keep my posted as to >>>>> what you find out. Even thought I no long have this issue, I would still >>>>> like to be kept in the loop. >>>>> >>>>> L'chaim >>>>> >>>>> Sherri >>>>> >>>>>> On Tue, Jan 6, 2015 at 4:19 PM, 'Marcie Goodman' via CMLHope >>>>>> <cmlhope@googlegroups.com> wrote: >>>>>> Hello, Susan. Gosh, we are just sweating through this it seems. I will >>>>>> see what may be available naturally, as I don't want hormones either. >>>>>> Sorry you are experiencing this same problem which I hope to solve. >>>>>> >>>>>> Best wishes to you, Roy and your beautiful family for a blessed New >>>>>> Year. >>>>>> >>>>>> Marcie >>>>>> >>>>>> Sent from my iPad >>>>>> >>>>>> On Jan 5, 2015, at 10:17 PM, "'Susan Zimmerman' via CMLHope" >>>>>> <cmlhope@googlegroups.com> wrote: >>>>>> >>>>>>> Dear Marcie, >>>>>>> >>>>>>> I have had night sweats for years, intensifying after my dx in 2005. I >>>>>>> have day sweats, too. When I stand up for more than five minutes to do >>>>>>> anything at all I start profusely sweating from weakness. I think part >>>>>>> of this is from the bosulif, but most is from the stroke weakness and >>>>>>> need for hormones. I will not take artificial hormones and have not >>>>>>> gotten the good kind that are specially made for each person. I >>>>>>> totally sympathize with you Marcie. You might want to go to a >>>>>>> naturalist doctor about getting a test for hormones and then they will >>>>>>> make a compound for you of cream that usually works. Regular md's only >>>>>>> know to prescribe the synthetic or horse hormones which do cause >>>>>>> cancer. That's my take on it, hope you find some relief!!! >>>>>>> >>>>>>> Thanks for your always uplifting posts! Happy New Year to you, too! >>>>>>> Susan F. Zimmerman >>>>>>> >>>>>>> >>>>>>> -----Original Message----- >>>>>>> From: 'Marcie Goodman' via CMLHope <cmlhope@googlegroups.com> >>>>>>> To: cmlhope <cmlhope@googlegroups.com> >>>>>>> Sent: Mon, Jan 5, 2015 8:41 am >>>>>>> Subject: [CMLHope] Night Sweats >>>>>>> >>>>>>> Happy New Year, dear friends. I'm wondering if any of you suffer with >>>>>>> night >>>>>>> sweats as a side effect of your TKI. I do, and have, over the years of >>>>>>> my >>>>>>> treatment. I don't know that it is happening more frequently but the >>>>>>> sweats seem >>>>>>> to be more intense. Is there anything that you know of that will help? >>>>>>> >>>>>>> Many thanks for always being there to offer encouragement and >>>>>>> assistance. >>>>>>> >>>>>>> Marcie >>>>>>> >>>>>>> Sent from my iPad >>>>>>> >>>>>>> -- >>>>>>> -- >>>>>>> [CMLHope] >>>>>>> A support group of http://cmlhope.com >>>>>>> ------------------------------------------------- >>>>>>> >>>>>>> You received this message because you are subscribed to the Google >>>>>>> Groups >>>>>>> "CMLHope" group. >>>>>>> To post to this group, send email to CMLHope@googlegroups.com >>>>>>> To unsubscribe from this group, send email to >>>>>>> cmlhope-unsubscr...@googlegroups.com >>>>>>> For more options, visit this group at >>>>>>> http://groups.google.com/group/CMLHope >>>>>>> --- >>>>>>> You received this message because you are subscribed to the Google >>>>>>> Groups >>>>>>> "CMLHope" group. >>>>>>> To unsubscribe from this group and stop receiving emails from it, send >>>>>>> an email >>>>>>> to cmlhope+unsubscr...@googlegroups.com. >>>>>>> For more options, visit https://groups.google.com/d/optout. >>>>>>> -- >>>>>>> -- >>>>>>> [CMLHope] >>>>>>> A support group of http://cmlhope.com >>>>>>> ------------------------------------------------- >>>>>>> >>>>>>> You received this message because you are subscribed to the Google >>>>>>> Groups "CMLHope" group. >>>>>>> To post to this group, send email to CMLHope@googlegroups.com >>>>>>> To unsubscribe from this group, send email to >>>>>>> cmlhope-unsubscr...@googlegroups.com >>>>>>> For more options, visit this group at >>>>>>> http://groups.google.com/group/CMLHope >>>>>>> --- >>>>>>> You received this message because you are subscribed to the Google >>>>>>> Groups "CMLHope" group. >>>>>>> To unsubscribe from this group and stop receiving emails from it, send >>>>>>> an email to cmlhope+unsubscr...@googlegroups.com. >>>>>>> For more options, visit https://groups.google.com/d/optout. >>>>>> >>>>>> -- >>>>>> -- >>>>>> [CMLHope] >>>>>> A support group of http://cmlhope.com >>>>>> ------------------------------------------------- >>>>>> >>>>>> You received this message because you are subscribed to the Google >>>>>> Groups "CMLHope" group. >>>>>> To post to this group, send email to CMLHope@googlegroups.com >>>>>> To unsubscribe from this group, send email to >>>>>> cmlhope-unsubscr...@googlegroups.com >>>>>> For more options, visit this group at >>>>>> http://groups.google.com/group/CMLHope >>>>>> --- >>>>>> You received this message because you are subscribed to the Google >>>>>> Groups "CMLHope" group. >>>>>> To unsubscribe from this group and stop receiving emails from it, send >>>>>> an email to cmlhope+unsubscr...@googlegroups.com. >>>>>> For more options, visit https://groups.google.com/d/optout. >>>>> >>>>> -- >>>>> -- >>>>> [CMLHope] >>>>> A support group of http://cmlhope.com >>>>> ------------------------------------------------- >>>>> >>>>> You received this message because you are subscribed to the Google Groups >>>>> "CMLHope" group. >>>>> To post to this group, send email to CMLHope@googlegroups.com >>>>> To unsubscribe from this group, send email to >>>>> cmlhope-unsubscr...@googlegroups.com >>>>> For more options, visit this group at >>>>> http://groups.google.com/group/CMLHope >>>>> --- >>>>> You received this message because you are subscribed to the Google Groups >>>>> "CMLHope" group. >>>>> To unsubscribe from this group and stop receiving emails from it, send an >>>>> email to cmlhope+unsubscr...@googlegroups.com. >>>>> For more options, visit https://groups.google.com/d/optout. >>>> >>>> -- >>>> -- >>>> [CMLHope] >>>> A support group of http://cmlhope.com >>>> ------------------------------------------------- >>>> >>>> You received this message because you are subscribed to the Google Groups >>>> "CMLHope" group. >>>> To post to this group, send email to CMLHope@googlegroups.com >>>> To unsubscribe from this group, send email to >>>> cmlhope-unsubscr...@googlegroups.com >>>> For more options, visit this group at >>>> http://groups.google.com/group/CMLHope >>>> --- >>>> You received this message because you are subscribed to the Google Groups >>>> "CMLHope" group. >>>> To unsubscribe from this group and stop receiving emails from it, send an >>>> email to cmlhope+unsubscr...@googlegroups.com. >>>> For more options, visit https://groups.google.com/d/optout. >>> >>> -- >>> -- >>> [CMLHope] >>> A support group of http://cmlhope.com >>> ------------------------------------------------- >>> >>> You received this message because you are subscribed to the Google Groups >>> "CMLHope" group. >>> To post to this group, send email to CMLHope@googlegroups.com >>> To unsubscribe from this group, send email to >>> cmlhope-unsubscr...@googlegroups.com >>> For more options, visit this group at http://groups.google.com/group/CMLHope >>> --- >>> You received this message because you are subscribed to the Google Groups >>> "CMLHope" group. >>> To unsubscribe from this group and stop receiving emails from it, send an >>> email to cmlhope+unsubscr...@googlegroups.com. >>> For more options, visit https://groups.google.com/d/optout. >> >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to CMLHope@googlegroups.com >> To unsubscribe from this group, send email to >> cmlhope-unsubscr...@googlegroups.com >> For more options, visit this group at http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to cmlhope+unsubscr...@googlegroups.com. >> For more options, visit https://groups.google.com/d/optout. > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/d/optout. > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout.
