Thanks Susan, I'm hanging in there. Maybe it will kill all those bad cells. I sure hope so!! I've been fighting since 2004. I thought sprycel was going to keep it under control but leukemia has a mind of its on. It's just not predictable. I always say pills and faith. It takes both. Stay well.
Prayers & Blessings Jeanie 🐠🐠🐠🐠🐠🐠🐠🐠🐠🐠🐠🐠. 18,s > On Mar 13, 2015, at 3:48 PM, "'Susan Zimmerman' via CMLHope" > <cmlhope@googlegroups.com> wrote: > > HI Jeanie, > > So sorry you are going thru all these side effects. Like Beth I hope you can > quickly reach zero so you can lower the dose. But again, happy that it is > working on the leukemic cells! Cinderella opens around here today, maybe you > would get your mind off it by watching that at the big screen theater? Best > to you, > > And Beth, of course it is the same date! We will make it another time, I'm > sure. Best to you as well as you continue to fight the battle. > Your e-mails are always very uplifting. God bless! > > Susan > > -----Original Message----- > From: bkbarney via CMLHope <cmlhope@googlegroups.com> > To: cmlhope <cmlhope@googlegroups.com> > Sent: Thu, Mar 12, 2015 4:25 pm > Subject: Re: [CMLHope] Moffit visit > > Jeanie,. I know this is what you need. And I am deeply glad that there is > such a drug that can help you and others who become resistant to some of the > other TKI's. Myprayer for you is if the Ponatinib can kick your cancer to > the curb, you may be able to take a lower dose and maintain. Those on lower > doses of POnatinib seem to fair better regarding side effect profile. I hope > that can be in your future. For now, breath in and out and try, if you can > and feel up to it, to do some things that relax you, tickle your funny bone, > just trying to find moments that uplift you...to help you through this rough > patch. I am praying for you...big hug. Beth > > > -----Original Message----- > From: 'Icandoallttc' via CMLHope <cmlhope@googlegroups.com> > To: cmlhope <cmlhope@googlegroups.com> > Sent: Thu, Mar 12, 2015 2:47 pm > Subject: Re: [CMLHope] Moffit visit > > Hi Beth and thanks. Doctor says ponatinib is very toxic but I had no choice. > My skin is peeling and my hair is falling out just like it did on gleevec. > > Thanks for the prayers and uplifts. > I hope you have a good doctors visit. > > Prayers & Blessings Jeanie > \uD83D\uDC20\uD83D\uDC20\uD83D\uDC20\uD83D\uDC20\uD83D\uDC20\uD83D\uDC20\uD83D\uDC20\uD83D\uDC20\uD83D\uDC20\uD83D\uDC20\uD83D\uDC20\uD83D\uDC20. > 18,s > > On Mar 12, 2015, at 2:30 PM, bkbarney via CMLHope < cmlhope@googlegroups.com> > wrote: > > Jeanie, so glad blood is looking good. Hope platelets stay around 150 for > you..and that you start to feel better on the drug. I go to do my BCR abl on > Monday. B > > Susan, oh no...I will being seeing Dr. Druker on the 23rd. Darn, of course, > I will be in Oregon while you are in Chicago...murphies law....next time > then! if my schedule for Dr. Druker changes, I will let you know. > > Warm regards, > 18'sBeth > -----Original Message----- > From: 'Icandoallttc' via CMLHope < cmlhope@googlegroups.com> > To: cmlhope < cmlhope@googlegroups.com> > Sent: Thu, Mar 12, 2015 9:37 am > Subject: [CMLHope] Moffit visit > > > Blood is good. Platelets dropping to 133. Rather them be low than high. > Hope everyone is good today. > > Prayers & Blessings Jeanie > \uD83D\uDC20\uD83D\uDC20\uD83D\uDC20\uD83D\uDC20\uD83D\uDC20\uD83D\uDC20\uD83D\uDC20\uD83D\uDC20\uD83D\uDC20\uD83D\uDC20\uD83D\uDC20\uD83D\uDC20. > 18,s > > On Mar 11, 2015, at 6:26 PM, "'Susan Zimmerman' via CMLHope" < > cmlhope@googlegroups.com> wrote: > > Dear Beth, > > I come on April 23rd again at 10:30am my time, 11:30 Chicago time for an hour > and half or so....can you meet after that? My husband usually brings me, so > you can meet him, too! Where would you like to meet? I will be at > Northwestern which is downtown, so you name it! Dr. Druker....you go out > there when in April? I'm happy you get to go....my friend Sharon Kraby also > flies from Florida to him regularly..... > > Marcie, thanks for the shout-out! Sure hope your bone pain is gone and you > are in the pink again.....is it? Do I remember you lowered your mg of > gleevec? That should help, did it? > > > 18's, > Susan F. Zimmerman > > > -----Original Message----- > From: bkbarney via CMLHope < cmlhope@googlegroups.com> > To: cmlhope < cmlhope@googlegroups.com> > Sent: Wed, Mar 11, 2015 1:34 pm > Subject: Re: [CMLHope] CML visit > > Susan, I would love to meet with you for a tea or coffee while you are in > Chicago if you are up for it. Let me know. I am going to Dr. Druker in April, > hopefully our trip times won't overlap. Thanks for your prayers..always so > helpful...and Marcie, you have a great day too! > 18"s Beth > > > -----Original Message----- > From: 'Marcie Goodman' via CMLHope < cmlhope@googlegroups.com> > To: cmlhope < cmlhope@googlegroups.com> > Sent: Tue, Mar 10, 2015 9:28 pm > Subject: Re: [CMLHope] CML visit > > Susan, > > So good to hear from you and I know how good it is to see the snow melt away. > Take good care and thanks for always lifting us up in prayer. > > Marcie > > Sent from my iPhone > > On Mar 10, 2015, at 10:10 PM, 'Susan Zimmerman' via CMLHope < > cmlhope@googlegroups.com> wrote: > > Dear Greenie, > > Thinking of you and hoping for a good report. This is just another small > bump in the road. I am praying extra for you. God bless and keep us posted. > > > I am thinking about all of you and pray for good news. The great news is we > get up every day and I really think we might see Spring soon! All our snow > is melting FAST here in northern Indiana....50 for most of the week. My dog > is elated she can roam the dead grass instead of the snow again! > > Beth will await your reports' findings as well. I don't go to Chicago until > mid-April for more tests. So it will be six months in between tests, which > is not recommended. But they screwed up the last test, so I'm just patiently > waiting.... > > 18's and good sleep to all of you, > > Susan > > -----Original Message----- > From: bkbarney via CMLHope < cmlhope@googlegroups.com> > To: cmlhope < cmlhope@googlegroups.com> > Sent: Tue, Mar 10, 2015 5:29 pm > Subject: Re: [CMLHope] CML visit > > Dear Greenie, I hope your test results come out O.K., and they can find a > simple explanation for your weight loss. So sorry you are going through the > stress of all this...thinking of you.... > > And Richard, as Sherri said, great news about your hemoglobin and the > collaboration of your docs on your behalf. Colonoscopy sounds > reasonable...just to rule out and give you peace of mind. Are you more tired > than usual??? > > Stay positive and stay strong. Keep us posted... > And Sherri, so sorry you had to have a transfusion, but I hope it made you > feel better and stabilized your counts.. > > Still praying for Marty. > Jeannie, I know it's been a rough two months on ponatinib and you have felt > miserable...I hope it gets better with time, and maybe, you can take less of > a dose in months, years to come, if your doc recommends it to help you with > the toxicity. thinking of you... > > Not a lot new to report here....still working on understanding and treating > muscle/ weakness/ elevated CPK etc...issues..will do more blood work to rule > out any other possible cancers lurking, but I don't think that is it..at > least I, like Greenie, sure hope not. > > 18's to all > > Beth > > -----Original Message----- > From: Myvety2k via CMLHope < cmlhope@googlegroups.com> > To: cmlhope < cmlhope@googlegroups.com> > Sent: Tue, Mar 10, 2015 5:31 am > Subject: Re: [CMLHope] CML visit > > Hi Group, As of last Tuesday I have lost 5 pounds and I don't know why. > Been eating O. K. so I went to my Reg. Doctor yesterday and I'm going over to > get some blood work at 7 a.m. Comprehensive metabolic panel, cbc (no diff), > vitamin B12 level and TSH, Ultrasensitive. Also he want's me to have a > colonoscopy to screen for colon cancer Friday. I really don't need 2 > different kinds of cancer so I'm worried. Will let you all know what happens. > > greenie > > In a message dated 3/10/2015 4:00:08 A.M. Eastern Daylight Time, > swanson.sherri...@gmail.com writes: > Richard, That is great news about the your haemoglobin. I also think it's > great that your drs are talking to one another. That is so important. > Last week, I had to get a transfusion as my counts were so low. I went to my > onc and he did the usual blood draw and my WBC was 2.4. That was enough to > send me over to the hospital for type and cross match and a transfusion. > > I too am eager to hear about Marty and pray for him everyday. > > Sherri > >> On Mon, Mar 9, 2015 at 11:19 PM, 'Marcie Goodman' via CMLHope >> <cmlhope@googlegroups.com> wrote: >> Richard, excellent news and I'm happy to hear that your hemoglobin has >> stabilized. Glad that your doctors are in sync, too, because that will >> certainly make your life easier. Yay! >> >> Marcie >> >> Sent from my iPhone >> >> On Mar 10, 2015, at 12:15 AM, Richard H < rbhuffm...@gmail.com> wrote: >> >> I visited my VA ONC today and both ONCs are bck on the same page. The >> better news is it appears that my hemoglobin has stabilized at 10.5. we are >> going to move forward with the testing program until the end of May. >> Another piece of news that makes me very happy is that both ONC's works at >> Kansas University Cancer Center. The VA contracts it's Doctors and Fellows >> (Doctors in training). They can access all my records at both offices with >> the new Cerner Medical Systems that are being installed world wide. >> >> I am anxiously waiting for more news from Marty, and him keeping him my >> prayers. >> >> Richard H. >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to CMLHope@googlegroups.com >> To unsubscribe from this group, send email to >> cmlhope-unsubscr...@googlegroups.com >> For more options, visit this group at http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to cmlhope+unsubscr...@googlegroups.com. >> For more options, visit https://groups.google.com/d/optout. >> -- >> -- >> 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