My problem has always been hemoglobin and I had six months of 2 units of platelets every 3 weeks to try and keep the hemoglobin above 10. There are others that experienced platelet problems. I would ask what dosage of Gleevec you are taking. I started on 400 mg Gleevec in 2002 and that caused my anemia after 5 1/2 years. I finally received support to stop taking Gleevec until the counts forced me to return to Gleevec. I restarted 400 mg of Gleevec and 3 weeks later it had to be reduced to 300 mg. I relived every problem in 5 1/2 weeks instead of 5 1/2 years. I started taking a shot of Procrit to help rebuild my red blood cells. I had a setback when I was taken to the hospital the end of April. l found I had Vertigo that probably result of my near transfusion level. They re-examined my all of my medical problems and medications. The also found an artery leaking blood and sealed it. They also changed some of my medications. This past 3 weeks have been a joy. I am gaining strength daily, and while I am growing older and more forgetful I haven't experienced any Gleevec fog. The Gleevec did give me about a 15 log reduction (for those who count logs I was at 17 in December and in March it was under 2). I get the results of my next ABL-BCR on the 26th.
Richard H. On Friday, May 15, 2015 at 11:02:37 PM UTC-5, Angie wrote: > Does anyone have problems maintaining their platelet level? > Mine fall down to almost ZERO, which is a dangerous place to be. I am > covered with big purple bruises and petechiae and look like I have been in > a bar fight. Even a light scratch on my skin brings the blood to the > surface. It is called Thrombocytopenia. My red cells also plummet and I had > 6 blood transfusions last week. > My confidence waivers a little as it seems they don't really know what to > do about me. I have lots of complications. More specialists on the horizon, > but every step forward is followed by 3 steps back. I am on massive > prednisone for the moment. > Can anyone share info on this? > Angie in Canada.... > Gleevec pioneer since 2001 > -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout.
