Hi Marcie and thanks. I pray ponatinib will be the tki that will keep me in remission. I keep asking my onc what my pcr shows but he puts me off. Don't know why. They take one every time I go get blood work. I hope you are good too. All of you that are headed out for vacations have fun and be safe. As you know I usually head out on a cruise but not this year or at least not now. ❤️❤️
Prayers & Blessings Jeanie 🐟🐟18,s Dx 1/2004 Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib January 2015 > On May 21, 2015, at 8:09 PM, "'Marcie Goodman' via CMLHope" > <cmlhope@googlegroups.com> wrote: > > Happy, happy birthday dear Marty and Shelly! Thanks for all of the > encouragement you give to all of us. > > Jeanie, so glad you are doing well. Much love to everyone in our group. > > Marcie > > Sent from my iPhone > >> On May 21, 2015, at 5:54 PM, Marty Gartenberg <wa2...@gmail.com> wrote: >> >> Hi Susan Zimmerman.<360.gif> >> I guess that it must be spelled Pneumonia like liquid in your lungs. Thank >> you for the birthday wishes, and my wife's birthdate was just yesterday. >> Ok Susan, just a couple of things. I sure have heard of the spanking >> machine. Your talking about my wife Shelly, she hurts me so good, YEA! Maybe >> more tonight <347.gif> After we eat our carvel ice cream cake. By the way >> any time that you would like to see my AZZ just come on over, but you should >> know that 70 year old men opps I almost forgot I'm 71 today have no azzes. >> Maybe after all of this is done and over I can get reverse liposuction? What >> do you think? >> >> So your living your life to the fullest and that is exactly what you and >> every one else should do >> >> Susan, I wish you a wonderful vacation. You really deserve it. Kick Azz >> susan kick azz but please not mine there is no "meat" on it. >> >> And a very very good18's to you >> >> Marty >> >> Hey Marty, hi!!! >> I know everyone is delighted to hear from you. Did you have phenomena or >> pneumonia? most of the same letters....I figured it out! >> >> HAPPY BIRTHDAY SWEET MARTY from all of us! Have you heard of the spanking >> machine? I'd put you through it if I could see you, as your AZZ could be >> further stimulated in this way. That is acceptable on birthdays if you are >> under 12 years old. You qualify, don't you? After all those exercises, we >> are all very proud of you!!! Hope your wife was thrilled with her birthday >> and that today YOU are treated like a king. After all those doc appts. I >> hope you get to celebrate big! >> >> So great to hear from you, but I must get ready for vacation! Living life >> to the fullest and wishing that for all of you, too! >> >> 18's and blessings on your birthday, >> Susan F. Zimmerman >> >>> On Thu, May 21, 2015 at 12:54 PM, rszim0702 via CMLHope >>> <cmlhope@googlegroups.com> wrote: >>> >>> Hey Marty, hi!!! >>> I know everyone is delighted to hear from you. Did you have phenomena or >>> pneumonia? most of the same letters....I figured it out! >>> >>> HAPPY BIRTHDAY SWEET MARTY from all of us! Have you heard of the spanking >>> machine? I'd put you through it if I could see you, as your AZZ could be >>> further stimulated in this way. That is acceptable on birthdays if you are >>> under 12 years old. You qualify, don't you? After all those exercises, >>> we are all very proud of you!!! Hope your wife was thrilled with her >>> birthday and that today YOU are treated like a king. After all those doc >>> appts. I hope you get to celebrate big! >>> >>> So great to hear from you, but I must get ready for vacation! Living life >>> to the fullest and wishing that for all of you, too! >>> >>> 18's and blessings on your birthday, >>> Susan F. Zimmerman >>> >>> >>> -----Original Message----- >>> From: Marty Gartenberg <wa2...@gmail.com> >>> To: cmlhope <cmlhope@googlegroups.com> >>> Sent: Thu, May 21, 2015 6:59 am >>> Subject: Re: [CMLHope] Today's >>> >>> Hi Susan and everyone else. >>> >>> Well another hospital stay but I just got home yesterday. This time it was >>> phenomena so I was started on an iv antibiotic which I will have with me >>> for about two more weeks. Anyway it was my goal to celebrate my wife's >>> birthday which was on May 20th and mine is actually today and also my >>> second birthday of my bone marrow transplant back in May 21st 1989. >>> >>> So I just put my golden attitude hat on (Zavie Millers zero club number one >>> is what he personally assigned to me in my home a very long time ago. >>> >>> So what happened? I got my AZZ right out of bed with my IV pole and got out >>> of my room and started walking. I walked three times a day up and down the >>> hallways of my ward. Once I got back to my room I rested then grabbed onto >>> the sinks counter top and did some modified push up's. I kept on using that >>> plastic breathing machine to suck air into my lungs so that I was able to >>> cough up whatever was in my lungs I was finally able to make the float >>> reach 3,500 and do it for ten consecutive times in a row. >>> >>> One of my doctors was standing right there and he said that he couldn't >>> even do that himself. >>> Well I did all of this for a week and I was finally discharged but with a >>> picc line and a portable antibiotic pump that I am able to carry around >>> with me. I have a home care nurse that changes the IV bag every other day >>> or so. >>> >>> Today is some of my doctor appointments as well as my blood work. Man am I >>> happy about that picc line no more needle holes all over my black and blue >>> arms >>> >>> Listen folks please don't consider me to be a super hero but someone that >>> has a kick AZZ healing attitude, and as long as I am alive it will always >>> be with me. >>> >>> I told all of you this story so that you will realize that you can help >>> yourself by having this kind of attitude. This is what I did when I used to >>> live in that small plastic bubble (luminous Air Flow Chamber, and I will >>> never forgot how it helped me. Not the chamber but my attitude. >>> >>> I beg each one of you to try and do what I did because it works for me and >>> with a little effort it can for you. Just start very slowly and let your >>> mind control your body. Remember what I once told you, Leukemia is a >>> disease of not only the body but the mind as we.. >>> >>> 8's, >>> >>> Marty >>> >>>> On Wed, May 20, 2015 at 4:28 PM, rszim0702 via CMLHope >>>> <cmlhope@googlegroups.com> wrote: >>>> Guess you and I are kind of on the same track.....both were off everything >>>> for quite some time, now my number is .01%, near 0....and you are, too! >>>> Every day is a gift. We will be on vacay next week in Virginia, but I >>>> will catch up to your results sometime after Tuesday! >>>> Going to the Shenandoah Mountains for some R & R for my stressed-out >>>> husband. Best wishes! >>>> 18's, >>>> Susan F. Zimmerman >>>> >>>> >>>> -----Original Message----- >>>> From: Richard H < rbhuffm...@gmail.com> >>>> To: cmlhope < cmlhope@googlegroups.com> >>>> Sent: Tue, May 19, 2015 11:59 pm >>>> Subject: Re: [CMLHope] Today's CBC >>>> >>>> Thanks! But after a 15-17 log reduction three months ago I only had a >>>> 1.795% left to go to zero.. I am expecting the best. I had a phone call >>>> from ONC's nurse after my ONC finished reviewing some o my tests. She >>>> said I was to told to call you and tell you all He can say is "They are >>>> AWESOME!'. I will post the actual next week after Tuesday. >>>> >>>> Richard H. >>>> >>>>> On Sunday, May 17, 2015 at 8:17:13 PM UTC-5, rszi...@aol.com wrote: >>>>> Yay, Richard!!! I'm also expecting your BCR/ABL to show you are much >>>>> lower than the last time! Let us know! >>>>> >>>>> 18's, >>>>> Susan >>>>> >>>>> -----Original Message----- >>>>> From: Richard H < rbhuf...@gmail.com> >>>>> To: cmlhope < cml...@googlegroups.com> >>>>> Sent: Fri, May 15, 2015 6:46 pm >>>>> Subject: [CMLHope] Today's CBC >>>>> >>>>> today's HEM was 10.4 up from 8.7 last week. Yeah!!! It was in the >>>>> acceptable range. Drs. disagree when to take my last shot, one prefers >>>>> not to have a shot when the HBM is above 10. However both agree that if >>>>> the HEM is above 11 a shot can do more harm than good. I took the shot >>>>> today, but if all continues as the last 2 weeks, this will be my last one >>>>> for sometime. Yeah!! It is entirely possible that I will achieve the >>>>> normal range for the first time since 2002 for sure. >>>>> I had my blood drawn for my ABL-BCR test. I will get the results on >>>>> Monday the 26th. >>>>> >>>>> Richard H. >>>>> >>>>> >>>>> >>>>> -- >>>>> -- >>>>> [CMLHope] >>>>> A support group of http://cmlhope.com >>>>> ------------------------------ ------------------- >>>>> >>>>> You received this message because you are subscribed to the Google Groups >>>>> "CMLHope" group. >>>>> To post to this group, send email to cml...@googlegroups.com >>>>> To unsubscribe from this group, send email to >>>>> cmlhope-u...@googlegroups.com >>>>> For more options, visit this group at >>>>> http://groups.google.com/group/CMLHope >>>>> --- >>>>> You received this message because you are subscribed to the Google Groups >>>>> "CMLHope" group. >>>>> To unsubscribe from this group and stop receiving emails from it, send an >>>>> email to cmlhope+u...@googlegroups.com. >>>>> For more options, visit https://groups.google.com/d/optout. >>>> >>>> -- >>>> -- >>>> [CMLHope] >>>> A support group of http://cmlhope.com >>>> 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