Dear Robert, at first I was perplexed by your question " *Is the high cost of CML care "worth it"?" Then I read your post to the bottom.* *I'm sure you know no matter how much money is spent on keeping us alive is a good investment. Twenty six years I was "an experiment" having a bone marrow transplant which was very costly, but I survived.* *Now I recently had a kidney transplant three months ago) because way back when I had the BMT all of the radiation and chemo started to destroy my kidneys, which took many years to put me into complete kidney failure.* *Now I must take dozens of pills each and every day for the rest of my life. One of these pills cost me more then $900 every two weeks. Since I am now in the drug "donut hole" I must bare the cost out of pocket. However in another 5 or 6 months I will no longer require them (hopefully) This drug is for not letting me get the CMV virus, and I am at high risk for acquiring CMV because although I was CMV free and my donor was CMV (* *Cytomegalovirus)** positive. * *So between my both transplants I have gone through a lot of out of pocket money, but I am still alive and simply living my life. Was it all worth it? You bet it was!* *When ever I end a post I will put in two numbers at the end 1 and 8 which symbolizes life*
*18's* *Marty* On Sat, Jun 6, 2015 at 3:01 AM, 'RobertGlover from Hornsby' via CMLHope < cmlhope@googlegroups.com> wrote: > Thank you for posting this link > http://www.cmleukemia.com/asco-2015---chicago.html> to the cmlhope site. > > I zoomed in on the link to the article: > > > *Is the high cost of CML care "worth it"? Which finished with the > conclusion: * > > > > * Our findings showed that, despite high costs, CML care provided good > value for money. * * > > Since 1991 when I was first diagnosed with CML a huge amount of money has > been spent keeping me alive, currently it is $148 Aust per day. ($1 Aust = > $0.76 US). > Fortunately, we Australians, have a Universal Health Levy, which pays the > major portion of this, for which myself, wife, three children and one > Grandson are immensely grateful. > > I would also like to acknowledge Roche Pharmaceuticals who provided me > with Interferon in a clinical trial. As well as Novartis who provided me > with both Glivec and Nilotinib in clinic trials. > > While CML stopped me from participating in any energetic activities > including sports such as tennis, I soon adjusted and found other activities > which give me a pleasant life style. Most importantly, I was able to > continue working until 61 years old paying Income Tax and the Medicare > Health Levy which now helps to fund my medical expenses. > > It is reassuring to read that people doing scientific research, also agree > that money spent keeping us CMLers living longer lives, is good value for > the whole community. > > > Regards > Robert > > > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at > http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/d/optout. > -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout.
