Hello to all our CML Friends in this group. Nick and I quietly celebrated 55 years together Friday. We're thankful for the LMH Oncology Department Dr. Stein and all the nursing staff who have kept Nick going and worked with him and us for these 12 years. We send each of you special greetings and prayers, too. Yes, Jeannie, it's faith and pills. And people praying for each other. Today after church there was a blood drive to help replace blood used by a 17year old who is fighting Non-Hodgkin's Lymphoma. I hope lots of people signed up and donated. Hope you have a lovely holiday, John and wife. Joyce, hope you find an Oncologist who listens and cares for you and your CML needs. Greenie, we haven't had no-see-ums, but boy! have we had chiggers this year!!! Next, I've got to go out and pull poison ivy from steps and trees. Probably tomorrow. As ever Elizabeth & Nick
On Sunday, August 30, 2015 5:17 AM, "cmlhope@googlegroups.com" <cmlhope@googlegroups.com> wrote: | cmlhope@googlegroups.com | Google Groups | | Topic digest View all topics - Thanks - 2 Updates - John - 3 Updates - Oct BCR-ABL - 1 Update - August 2015 - Advances in managing and treating lymphedema - 1 Update Thanks | Suzieq <sheila.a.wat...@gmail.com>: Aug 29 02:11PM -0700 Joyce: I go to Sitemen Cancer Center at the Barne's Jewish Hospital and Washington University School of Medicine. My doctor is Dr. Amanda Cashen. I know she treats many CML patients, not sure about being a CML specialist. I checked her out when the doctor I had previous to her left to go back into research and she did her clinicals under my original doctor that I started out with at Sitemen, Dr. Hannah Koury. Dr. Koury was the greatest.....but I only had him for about six months when he left to go to Emory University hospital in Atlanta to set up a Hematology/Oncology Dept. like Sitemen has. That was back in 2004..... After him, I saw Dr. Vig.......now he may be a specialist, because after about my 3rd or 4th visit with him, he handed me off to another (the one who went back into research) saying that I was not "sick enough", that he only saw those CML patients who were in trouble or having many problems. Once I got Dr. Cashen, I've been very happy with her. She is very compassionate and she'll sit there and talk to me. I also see her nurse practitioner, Holly, almost as much as her. I love them both and would recommend them to anyone. There is a Dr. Depersio within the group of Hematologist/Oncologists that has been listed in the top 100 doctors & I've heard that those who see him are happy with him. I hope this answers your questions. I am very happy going to the Cancer Center....they have an awesome set up if one needs a BMB done, will give you drugs if you need them for the BMB. I've never had a problem with the lab department, they are very good at what they do, you don't have long waits. Greenie: I certainly sympathize with you and the no-see-ems! LOL I hate them as much as the love bugs that get all over the front of the car when driving down. Awful! Jeanie: You keep fighting, girl! I also know what you mean about the dry skin. I have places on my arms of dry skin and my legs are rough as well. I rubbed my hands over my legs and thought to myself, this is almost like sand paper in places. I am going to try rubbing them with Coconut Oil. I've heard a lot of good stuff about that. Oh and Joyce, I don't plan on leaving CML Hope. I love it here. :) Suzieq | | myvet...@aol.com: Aug 29 05:30PM -0400 Yea, I walked out to the mail box this afternoon and one got me. Must be that Jewish, Irish, English blood that runs through my veins. greenie In a message dated 8/29/2015 5:11:51 P.M. Eastern Daylight Time, sheila.a.wat...@gmail.com writes: Joyce: I go to Sitemen Cancer Center at the Barne's Jewish Hospital and Washington University School of Medicine. My doctor is Dr. Amanda Cashen. I know she treats many CML patients, not sure about being a CML specialist. I checked her out when the doctor I had previous to her left to go back into research and she did her clinicals under my original doctor that I started out with at Sitemen, Dr. Hannah Koury. Dr. Koury was the greatest.....but I only had him for about six months when he left to go to Emory University hospital in Atlanta to set up a Hematology/Oncology Dept. like Sitemen has. That was back in 2004..... After him, I saw Dr. Vig.......now he may be a specialist, because after about my 3rd or 4th visit with him, he handed me off to another (the one who went back into research) saying that I was not "sick enough", that he only saw those CML patients who were in trouble or having many problems. Once I got Dr. Cashen, I've been very happy with her. She is very compassionate and she'll sit there and talk to me. I also see her nurse practitioner, Holly, almost as much as her. I love them both and would recommend them to anyone. There is a Dr. Depersio within the group of Hematologist/Oncologists that has been listed in the top 100 doctors & I've heard that those who see him are happy with him. I hope this answers your questions. I am very happy going to the Cancer Center....they have an awesome set up if one needs a BMB done, will give you drugs if you need them for the BMB. I've never had a problem with the lab department, they are very good at what they do, you don't have long waits. Greenie: I certainly sympathize with you and the no-see-ems! LOL I hate them as much as the love bugs that get all over the front of the car when driving down. Awful! Jeanie: You keep fighting, girl! I also know what you mean about the dry skin. I have places on my arms of dry skin and my legs are rough as well. I rubbed my hands over my legs and thought to myself, this is almost like sand paper in places. I am going to try rubbing them with Coconut Oil. I've heard a lot of good stuff about that. Oh and Joyce, I don't plan on leaving CML Hope. I love it here. :) Suzieq -- -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to _cmlhope+unsubscribe@googlegroups.com_ (mailto:cmlhope+unsubscr...@googlegroups.com) . For more options, visit https://groups.google.com/d/optout. | Back to top John | Icandoallttc <icandoall...@aol.com>: Aug 29 02:31PM -0400 How are you John? How many pills are you on? Just checking in. Blessings My Motto: Faith and Pills Jeanie 🐟🐟18,s Dx 1/2004. CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib January 2015 Dr Balducci Moffitt Cancer Center | | John Barrons <jl...@rogers.com>: Aug 29 04:56PM -0400 Hi Jeanie: right now it is 10.45pm and I am on the Danube River. Our next port of call tomorrow is Budapest. My last count was Aug 19 and after three weeks being off the pill my counts went up, so I had a pill on the 20th. I am off the drug until I get back home which will be Sept 6. My next count will be on Sept 9 and all things being equal, I would have my next pill on the 10th. My wife and I are having a great time, but it is very hot. High eighties to low nineties. Hope you are doing OK John B Sent from my iPad | | Icandoallttc <icandoall...@aol.com>: Aug 29 05:02PM -0400 Thanks John and wish you a great vacation. Have lots of fun and good food. Blessings My Motto: Faith and Pills Jeanie 🐟🐟18,s Dx 1/2004. CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib January 2015 Dr Balducci Moffitt Cancer Center | Back to top Oct BCR-ABL | Icandoallttc <icandoall...@aol.com>: Aug 29 02:29PM -0400 Yes Richard One day at a time. Blessings My Motto: Faith and Pills Jeanie 🐟🐟18,s Dx 1/2004. CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib January 2015 Dr Balducci Moffitt Cancer Center | Back to top August 2015 - Advances in managing and treating lymphedema | Icandoallttc <icandoall...@aol.com>: Aug 29 02:28PM -0400 Managing lymphodema My Motto: Faith and Pills Jeanie 🐟🐟18,s Dx 1/2004. CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib January 2015 Dr Balducci Moffitt Cancer Center Begin forwarded message: | Back to top | You received this digest because you're subscribed to updates for this group. You can change your settings on the group membership page. To unsubscribe from this group and stop receiving emails from it send an email to cmlhope+unsubscr...@googlegroups.com. | -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout.