Yes I have had the red flushing with all the tkis. Just have to get ice and cool down. I feel so hot like I will explode!!! Try not to eat hot foods or spicy. I didn't do good on tasigna. It lowered my blood counts to low and had to have platelets. Had to go on Sprycel. See chart below. Good luck.
My Motto: Faith and Pills Jeanie 🐟🐟18,s Dx 1/2004. CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib January 2015 Dr Balducci Moffitt Cancer Center > On Dec 28, 2015, at 4:44 PM, hotmail <jocelynnew...@hotmail.com> wrote: > > Question for the group? Has anyone experienced intense deep red facial > flushing with Tasigna? If so, does it get any better? Thanks! > > Jocelyn > > Sent from my iPhone > >> On Dec 28, 2015, at 4:02 PM, bkbarney via CMLHope <cmlhope@googlegroups.com> >> wrote: >> >> HI All. And a very happy New Year to everyone. I miss you all. Richard, I am >> so happy you can bring your wife home! And Susan, I will keep you and >> Jeannie and Marty and Richard and Greenie and everyone else whose names I >> cannot think of this moment ( chemo brain:) ), in my prayers... >> >> I had a rough ride...did not make it to Florida, stuck with a kidney >> infection and kidney stone in Chicago, then, after ultra sounds and two >> MRI"s, three trips to the hospital..of course I caught something there..had >> the flu for the last week plus...so, finally starting to feel better...sat >> down and I have another 1100 emails to sift through since the last time I >> was online..... >> >> so sad to have missed you and your wife Greenie, but hope to get down there >> this winter some time...in the mean time..I hope you and your sweetie are >> taking good care and enjoying nice weather...Chicago has been so mild up >> until now...now ice storm, and then 4-7 inches of snow tomorrow on top of >> it....I am still off any work until next Monday so I hope to regroup...and >> get better this week... >> >> I think of all of you so often and hope this is a good health year for all >> of us. I have been of sprycel for 6 weeks now, but Bcr Abl showed it's >> return at 5 weeks off...so on Friday I restart. It has definitely been good >> for my body and soul, the break, working on getting the cpk down with >> steroids in the hope that I can build back muscle if we can just get it down >> and keep it down....still have a lot of pain in my body..but other than >> that..no complaints....happy to be here.. >> >> >> my best wishes, 18's and big hugs all around. You all are the best, my CML >> family. >> >> love, Beth >> >> >> -----Original Message----- >> From: 'Susan Zimmerman' via CMLHope <cmlhope@googlegroups.com> >> To: cmlhope <cmlhope@googlegroups.com> >> Sent: Mon, Dec 28, 2015 1:37 pm >> Subject: Re: [CMLHope] Re: Merry Christmas and happy Hilidays >> >> Merry Christmas and Happy New Year to all of you, ALL!!! This was the best >> Christmas I can remember, as both my adult children and their families were >> in attendance. It made the celebration wonderful with a 7 and a 4 yr old >> (grandkids). I will be recuperating for a few days since they left >> yesterday. Both my husband and I hit the sheets for a nap the minute they >> left! Wouldn't trade it for the world. Was not sure if I had stroke >> symptoms or a sugar overload on Saturday after a big party. Double vision >> and near-vomiting for over three hours. Took off my mono contacts after the >> LOOONNG ride home and in half an hour was fine. Ten days before that I had >> doubled my dose of bosulif. Now not sure whether to keep on two a day or >> cut back to one a day again. Stroke is not worth the medicine. I'll test >> it again and see.....prayers appreciated. >> >> 18's and Enjoy every day, >> Susan F. Zimmerman >> >> -----Original Message----- >> From: Richard H <rbhuffm...@gmail.com> >> To: CMLHope <cmlhope@googlegroups.com> >> Cc: icandoallttc <icandoall...@aol.com> >> Sent: Sat, Dec 26, 2015 12:17 am >> Subject: [CMLHope] Re: Merry Christmas and happy Hilidays >> >> Merry Christmas and happy holidays back your way and to all. >> >> Santa was the BEST EVER. I was able to bring my wife HOME. Lots of in home >> care and therapy wi;l start next week. >> >>> On Friday, December 25, 2015 at 2:44:03 PM UTC-6, Icandoallttc wrote: >>> Merry Christmas and happy Holidays to all. >>> I hope everyone is good and that Santa was good to you. >>> >>> My Motto: Faith and Pills >>> Jeanie 🐟🐟18,s >>> Dx 1/2004. CML Leukemia >>> Started Gleevec 2/2004 >>> Started Tasigna 9/2009 >>> Started Sprycel 11/2009 >>> Started Ponatinib January 2015 >>> Dr Balducci Moffitt Cancer Center >> >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to CMLHope@googlegroups.com >> To unsubscribe from this group, send email to >> cmlhope-unsubscr...@googlegroups.com >> For more options, visit this group at http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to cmlhope+unsubscr...@googlegroups.com. >> For more options, visit https://groups.google.com/d/optout. >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to CMLHope@googlegroups.com >> To unsubscribe from this group, send email to >> cmlhope-unsubscr...@googlegroups.com >> For more options, visit this group at http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to cmlhope+unsubscr...@googlegroups.com. >> For more options, visit https://groups.google.com/d/optout. >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to CMLHope@googlegroups.com >> To unsubscribe from this group, send email to >> cmlhope-unsubscr...@googlegroups.com >> For more options, visit this group at http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to cmlhope+unsubscr...@googlegroups.com. >> For more options, visit https://groups.google.com/d/optout. > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout.
