I take ponatinib. It put me in remission in just a few months. Started on 3 15 meg pills. Went quickly down to 1 pill daily. Not many side effects for me. ❤️❤️❤️❤️❤️
My Motto: Faith and Pills Jeanie 🐟🐟18,s Dx 1/2004. CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib January 2015 Dr Balducci Moffitt Cancer Center > On Dec 30, 2015, at 7:42 PM, bkbarney via CMLHope <cmlhope@googlegroups.com> > wrote: > > yeah Greenie!!!! I am back on sprycel for now starting tomorrow. My doc is > thinking ponatinib, try at 15 mgs in a couple of months. Will see what Dr. > Druker says in February...then decide...so...for now, keeping my faith and > chin up...at least trying to ring in the new year hopeful and grateful. I am > here!!! and so are all of you....best to all of you. B > > > -----Original Message----- > From: Myvety2k via CMLHope <cmlhope@googlegroups.com> > To: cmlhope <cmlhope@googlegroups.com> > Sent: Wed, Dec 30, 2015 2:34 pm > Subject: Re: [CMLHope] Re: Merry Christmas and happy Hilidays > > Darn, I think I'm siting on my brains I forgot to say my test results came > back last week and I cancer free. Their was one time about 7 years ago that > I stopped for 26 days without taking my Gleevec and cancer cells showed back > up in my blood so it's pills for life unless they come up with a cure. But > theirs so much money to be made I'm not going to hold my breath waiting. > > greenie > > In a message dated 12/30/2015 3:21:39 P.M. Eastern Standard Time, > cmlhope@googlegroups.com writes: > Beth, forgot to add that my son lives in Chicago and I was born on the South > side. South Shore Hosp. back in 1939. > > greenie > > > > In a message dated 12/28/2015 4:02:08 P.M. Eastern Standard Time, > cmlhope@googlegroups.com writes: > HI All. And a very happy New Year to everyone. I miss you all. Richard, I am > so happy you can bring your wife home! And Susan, I will keep you and > Jeannie and Marty and Richard and Greenie and everyone else whose names I > cannot think of this moment ( chemo brain:) ), in my prayers... > > I had a rough ride...did not make it to Florida, stuck with a kidney > infection and kidney stone in Chicago, then, after ultra sounds and two > MRI"s, three trips to the hospital..of course I caught something there..had > the flu for the last week plus...so, finally starting to feel better...sat > down and I have another 1100 emails to sift through since the last time I was > online..... > > so sad to have missed you and your wife Greenie, but hope to get down there > this winter some time...in the mean time..I hope you and your sweetie are > taking good care and enjoying nice weather...Chicago has been so mild up > until now...now ice storm, and then 4-7 inches of snow tomorrow on top of > it....I am still off any work until next Monday so I hope to regroup...and > get better this week... > > I think of all of you so often and hope this is a good health year for all of > us. I have been of sprycel for 6 weeks now, but Bcr Abl showed it's return at > 5 weeks off...so on Friday I restart. It has definitely been good for my body > and soul, the break, working on getting the cpk down with steroids in the > hope that I can build back muscle if we can just get it down and keep it > down....still have a lot of pain in my body..but other than that..no > complaints....happy to be here.. > > > my best wishes, 18's and big hugs all around. You all are the best, my CML > family. > > love, Beth > > > -----Original Message----- > From: 'Susan Zimmerman' via CMLHope <cmlhope@googlegroups.com> > To: cmlhope <cmlhope@googlegroups.com> > Sent: Mon, Dec 28, 2015 1:37 pm > Subject: Re: [CMLHope] Re: Merry Christmas and happy Hilidays > > Merry Christmas and Happy New Year to all of you, ALL!!! This was the best > Christmas I can remember, as both my adult children and their families were > in attendance. It made the celebration wonderful with a 7 and a 4 yr old > (grandkids). I will be recuperating for a few days since they left > yesterday. Both my husband and I hit the sheets for a nap the minute they > left! Wouldn't trade it for the world. Was not sure if I had stroke > symptoms or a sugar overload on Saturday after a big party. Double vision > and near-vomiting for over three hours. Took off my mono contacts after the > LOOONNG ride home and in half an hour was fine. Ten days before that I had > doubled my dose of bosulif. Now not sure whether to keep on two a day or cut > back to one a day again. Stroke is not worth the medicine. I'll test it > again and see.....prayers appreciated. > > 18's and Enjoy every day, > Susan F. Zimmerman > > -----Original Message----- > From: Richard H <rbhuffm...@gmail.com> > To: CMLHope <cmlhope@googlegroups.com> > Cc: icandoallttc <icandoall...@aol.com> > Sent: Sat, Dec 26, 2015 12:17 am > Subject: [CMLHope] Re: Merry Christmas and happy Hilidays > > Merry Christmas and happy holidays back your way and to all. > > Santa was the BEST EVER. I was able to bring my wife HOME. Lots of in home > care and therapy wi;l start next week. > >> On Friday, December 25, 2015 at 2:44:03 PM UTC-6, Icandoallttc wrote: >> Merry Christmas and happy Holidays to all. >> I hope everyone is good and that Santa was good to you. >> >> My Motto: Faith and Pills >> Jeanie 🐟🐟18,s >> Dx 1/2004. CML Leukemia >> Started Gleevec 2/2004 >> Started Tasigna 9/2009 >> Started Sprycel 11/2009 >> Started Ponatinib January 2015 >> Dr Balducci Moffitt Cancer Center > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/d/optout. > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/d/optout. > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/d/optout. > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/d/optout. > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/d/optout. > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. 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