Hi Kathy This is my 12 th year fighting cml and yes it was worth it. I know what you are going through as I remember my first year in Gleevec. We have many more choices now so if it gets too bad talk to your dr about changing tkis. Make sure you are going to a specialty cml onc as I made the mistake in the beginning of going to an onc that didn't know what he was doing. Stay strong and stay connected. โค๏ธ๐๐๐ My Motto: Faith and Pillsโค๏ธ With ๐Jeanie ๐๐18,s Dx 1/2004. CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib January 2015 Dr Balducci Moffitt Cancer Center
> On Jan 16, 2016, at 1:27 PM, kathy walls <cand...@originalsbykate.com> wrote: > > Today is my 1 yr anniversary of being diagnosed with CML, I'm here but not > happily. So many side effects. Makes you wonder if it's worth it > > Sent from my iPhone > >> On Jan 16, 2016, at 12:23 AM, Pete Pabon <nyc...@hotmail.com> wrote: >> >> Diagnosed 1999 >> Gleevec 2000 >> 15 years still no phillies found >> >> >> Date: Fri, 15 Jan 2016 10:18:43 -0500 >> Subject: Re: [CMLHope] Am I strong? Are we all strong? Read on... >> From: wa2...@gmail.com >> To: cmlhope@googlegroups.com >> >> Well now I got a much refreshing title. Being that everyone is a leader of >> this group so does it go to help all of us together. >> >> You know that it's been so long that I forgot about Rob. I do hope to hear >> from him. I also had no idea about his mother having leukemia and I hope >> that she is doing well. >> >> So many new things have happened since we were members and as I remember >> this group was in fact a yahoo group but I just can't put my finger if it >> was for sure. Some time has passed and my memory has not been my greatest >> asset so I would really like to hear from Rob. >> >> Just think look at some of the people that were still around then (like >> yourself) that are still around now. Hey what ever happened to CML will be >> only be around for 5 years until the "Lukie Dragon" will come and get you. >> >> >> Do you remember that saying a very long time ago? Well that for sure has has >> changed with all of these advancements using these TKI's and what is coming >> down the pipe next. >> >> I'm telling you it will be that, no matter what you are and what you believe >> in there will come a time near to now that this "Dragon" will meet it's >> demise. >> >> You mark my words. >> >> 18's, >> >> Marty >> >> On Fri, Jan 15, 2016 at 7:02 AM, 'Icandoallttc' via CMLHope >> <cmlhope@googlegroups.com> wrote: >> Hi Marty and good to hear from you. We were wondering what happened. >> I believe the founder and narrator of this group is Rob. His mother had >> leukemia. Are you there Rob??? >> Most of us have been here a long time. I believe the group was once a yahoo >> group. >> We are all warriors and help each other when we can. >> This makes my 12 th year and I joined the group early on. >> And yes we are all leaders in our own way and pioneers with the tkis so >> that've can give our knowledge to the new warriors. >> I fight with faith and pills and I am a Christian. >> Much love. >> ๏ธ >> >> My Motto: Faith and Pills >> Jeanie 18,s >> Dx 1/2004. CML Leukemia >> Started Gleevec 2/2004 >> Started Tasigna 9/2009 >> Started Sprycel 11/2009 >> Started Ponatinib January 2015 >> Dr Balducci Moffitt Cancer Center >> >> On Jan 13, 2016, at 12:38 AM, Marty Gartenberg <wa2...@gmail.com> wrote: >> >> For some reason my message did not come out so I am trying it once more, I >> do hope it does come through >> >> This is directed to Sandi and everyone else. >> >> Dearest Sandi, and I really mean that, but for a very special reason. It is >> not the words that I wright but it is my meaning. You and everyone else here >> are only here because all of us are meant to be here. Am I strong well maybe >> I am or I probably wouldn't be here right now. >> >> >> My question to you and everyone else that may be reading this are you also >> strong. You know what? You have to be because you are battling an awful >> disease, but my friends just like me am I still here, and are you. You bet >> we are. >> >> >> >> So no matter how strong I may be and no matter how strong any of you may be, >> guess what? We are still here together and until "uncle GOD" determinants >> otherwise this is where we stay. >> >> >> How many times have I been at deaths door? Now look at what you have. You >> have life, just as I do and do you know why it's really very simple because >> about a bit more then a decade ago some mortal man discovered a pill that >> changed the course of your lives. You, all of you are living proof. >> >> >> >> So I am not what anyone thinks about me because your living proof just as I >> am we are all strong in spite of what you think. >> >> >> Am I a leader of this group perhaps I am, however what about each and >> everyone else. Please try to understand people that are in a group are the >> power of that group. >> >> >> OK so lately I have a little more activity in my life health wise then >> normal (whatever that may be) >> >> >> >> So please lets everyone stop calling me the leader of this group because we >> all are some a little more some a little bit less but when we all come >> together we are a force to recon with. >> >> >> Remember 18's Have you ever noticed that I have never left it out before? >> Who knows maybe there is a reason. 18's is life, at least in my book. >> >> >> Marty >> >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to CMLHope@googlegroups.com >> To unsubscribe from this group, send email to >> cmlhope-unsubscr...@googlegroups.com >> For more options, visit this group at http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to cmlhope+unsubscr...@googlegroups.com. >> For more options, visit https://groups.google.com/d/optout. >> >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to CMLHope@googlegroups.com >> To unsubscribe from this group, send email to >> cmlhope-unsubscr...@googlegroups.com >> For more options, visit this group at http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to cmlhope+unsubscr...@googlegroups.com. >> For more options, visit https://groups.google.com/d/optout. >> >> >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to CMLHope@googlegroups.com >> To unsubscribe from this group, send email to >> cmlhope-unsubscr...@googlegroups.com >> For more options, visit this group at http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to cmlhope+unsubscr...@googlegroups.com. >> For more options, visit https://groups.google.com/d/optout. >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to CMLHope@googlegroups.com >> To unsubscribe from this group, send email to >> cmlhope-unsubscr...@googlegroups.com >> For more options, visit this group at http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to cmlhope+unsubscr...@googlegroups.com. >> For more options, visit https://groups.google.com/d/optout. > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout.
