Re: Re: [CMLHope] To Susan Zimmerman

Anthony Lanoue Fri, 25 Mar 2016 07:54:12 -0700

I also get mild right side pain
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Anthony Lanoue
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On Mar 24, 2016, 5:44 PM, Icandoallttc' via CMLHope wrote:

Hi Susan and thanks so much.

My side pain is still bad but tests show nothing. Just treating the pain. I read something about an MS hug. My side pain has a lot of similarities to that.

I think the tkis caused this as it got worse when I had to go on Tasigna.

My Creatine was up but it seems to go up and down along with potassium.

I've been on Ponatinib for 12 months now.

No test planned thank Heavens. Have to go back in 3 months. They take PCR every 3 months. I forgot to get my last results. Thanks again.

My Motto: Faith and Pills❤️

With 💗Jeanie 🐟🐟18,s Chi

Dx 1/2004. CML Leukemia

Started Gleevec 2/2004

Started Tasigna 9/2009

Started Sprycel 11/2009

Started Ponatinib January 2015

Dr Balducci Moffitt Cancer Center

On Mar 24, 2016, at 5:30 PM, 'Susan Zimmerman' via CMLHope <cmlhope@googlegroups.com> wrote:

Thank you so much, Jeanie!!! You are special to us all. How's the sideache and any more tests about it specifically?
18"s,

Susan F. Zimmerman
"All who humble themselves before the Lord shall be given every blessing, and shall have wonderful peace." Ps.37:11

On Thursday, March 24, 2016 'Icandoallttc' via CMLHope <cmlhope@googlegroups.com> wrote:

Hi Susan and Marcie
Prayers for both of you. Sorry for your hospital stay but we need them when we get sick. I hope you find the root of your problems.
I had my gallbladder out many years ago. That's some bad pain. Good luck.
Susan good luck off meds. Hang in there and fight. Blessings

My Motto: Faith and Pills❤️
With 💗Jeanie 🐟🐟18,s Chi
Dx 1/2004. CML Leukemia
Started Gleevec 2/2004
Started Tasigna 9/2009
Started Sprycel 11/2009
Started Ponatinib January 2015
Dr Balducci Moffitt Cancer Center

On Mar 24, 2016, at 5:07 PM, 'Marcie Goodman' via CMLHope <cmlhope@googlegroups.com> wrote:

Susan, as always, I have you and Roy in my prayers. Please let us know how your test turns out.

I just got out of hospital because my red cells bottomed out and I became very sick. So some transfusions and several days later, just came home. I will be undergoing more tests, might have gallbladder problem which arose after I was discharged, naturally! Ultrasound tomorrow. Never dull but always interesting!

Marcie

Sent from my iPhone

On Mar 24, 2016, at 5:01 PM, 'Susan Zimmerman' via CMLHope <cmlhope@googlegroups.com> wrote:

Thanks for the encouragement. I may write him but not confident he would have any different answers. Dr. Jessica Altman is completely on top of things for me. I"ve been to two other specialists at Nwestern to dig into causes....nothing unusual except cavernous malformations turns up. Have checked everything at least three times over the yrs. So again off meds hopefully for a long time unless #'s go high.

Tomorrow getting tested again w bcr/abl. Best answers are through prayer!!!

Hope all is well with you!

Susan F. Zimmerman
"All who humble themselves before the Lord shall be given every blessing, and shall have wonderful peace." Ps.37:11

On Thursday, March 17, 2016 'Susan Rosenthal' via CMLHope <cmlhope@googlegroups.com> wrote:

Susan:

Are you able to have an appointment with Dr. Druker in Portland, Oregon?

At least email him

Hugs,
Susan Rosenthal

Have a wonderful day

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Re: Re: [CMLHope] To Susan Zimmerman

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