Hi all, I got my number many years ago but can't remember it. Did he have a list and does anyone have access to it? Thanks
My Motto: Faith and Pills❤️ With 💗Jeanie 🐟🐟18,s Chi Dx 1/2004. CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib January 2015 Dr Balducci Moffitt Cancer Center > On Mar 31, 2016, at 12:14 PM, Myvety2k via CMLHope <cmlhope@googlegroups.com> > wrote: > > Marty, I forgot to add that many people would ask me what the number 48 on > the side of the hat stood for, then I would tell them the story about Zavie, > etc. > > greenie > > In a message dated 3/31/2016 12:12:27 P.M. Eastern Daylight Time, > cmlhope@googlegroups.com writes: > Hi Marty, I do remember the good old day's and Zavie's club which I am #48. > Well, anyway I had some hats made up, I was stationed at the "Glenview Navy > Air Station" for 6 Years from 1956 to 1962, and on the side of each hat I had > the number 48 embroidery on the side of all the hats. I still where them > every day. > > Greenie, > South Fort Myers, FL. > > In a message dated 3/31/2016 11:27:36 A.M. Eastern Daylight Time, > wa2...@gmail.com writes: > Hi Sue, > > I don't like to get involved with any social media because, first I just > don't have the time and I am to busy as well as for some personal reasons. > > If it helps, many years I actually personally knew Zavie and his wife Ida, > and since my bone marrow transplant came way before became Zavie became > because of how active I was even able to help him. I remember when he first > met Dr. Drunker and started on a drug at the time that was called STI-571 > which then became Gleevec. And this became something what was able to save so > many lives of the people with CML, and still does, more and more drugs (TKI) > started to spring up, and this is why I always keep saying that there WILL be > a cure soon. > > Probably most of the newcomers to CML, as we referred to it as "the club that > no one wants to be in" probably never even heard about Zavie or even have > never seen him. So without further a-due let me present you with a > picture of him an the cover of a magazine that I have kept for a very long > time. > > I am also number 1 in Zavie's zero club, and Zavie and Ida personally > presented it to me when they were down in Florida. The last thing I would > like to say about Zavie is that he was a real Mensch, meaning a real good man. > > Also please let me know if you were able to receive this along with the > picture I have enclosed in the attachment. > > 18's > > Marty > >> On Thu, Mar 31, 2016 at 10:00 AM, Sue <hol...@iinet.net.au> wrote: >> Hi Everyone >> >> >> >> Are you on face book – If so we have a new face book page seeking to >> reconnect with those who received a ZAVIE ZERO CLUB NUMBER >> >> >> >> Facebook Page for those who were diagnosed prior to 2010 >> >> >> >> Searching for those who were on the Yahoo Site prior to June 2010 >> >> ... >> >> and presented with a Zero Club Number when they got to CCR >> >> >> >> Do you have a Zavie Miller ZERO CLUB Number ? >> >> >> If so please join this group - add Name, Number, where located, how long you >> have been diagnosed with CML, medication and dose and how you are currently. >> >> Zavie always left a sign off with a Yippee !! Yahoo !! >> >> >> >> >> >> https://www.facebook.com/groups/1673390782910601/ >> >> ZAVIE - CML ZERO CLUB MEMBERS - WHERE ARE YOU ? >> >> Reunite with friends from the start of your diagnosis of CML (Yahoo) Group >> >> The Zavie Zero Club Number only went up to 1340 as this was the last number >> presented >> >> >> >> >> >> Thank you in advance >> >> Sue Hurt >> >> (Australia #1197) >> >> >> >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to CMLHope@googlegroups.com >> To unsubscribe from this group, send email to >> cmlhope-unsubscr...@googlegroups.com >> For more options, visit this group at http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to cmlhope+unsubscr...@googlegroups.com. >> For more options, visit https://groups.google.com/d/optout. > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/d/optout. > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/d/optout. > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout.
