Hi Jeanie,
You are still connected. LOL Things have been rather quiet lately in the
group. Maybe we are all too busy trying to keep cool. I guess the biggest
bug-a-boo in my life right now is the tall corn growing in the field in front
of my house (not our crop) and sealing us of from the rest of the world. We
cannot see anything. Feel all alone in the world. So I guess you could say
that things are going pretty well if that is my biggest problem.
My husband will go to see Dr Talpaz next month. Hoping for a good report.
Hope you are feeling better. Ever get a dx for that pain in your side?
I am concerned about Marty. Have not seen anything from him for awhile.
Prayers for you, Marty. Let us know how you are.
God bless and keep you.
Joyce in IL
> On Jul 12, 2016, at 11:04 AM, 'Jeanie' via CMLHope <cmlhope@googlegroups.com>
> wrote:
>
> Anyone there. Testing
>
> My Motto:
> Faith and Pills
> With Love
> 🐠18's
> Dx 1/2004 CML Leukemia
> Started Gleevec 2/2004
> Started Tasigna 9/2009
> Started Sprycel 11/2009
> Started Ponatinib 1/2015
> Doctor Balducci Moffitt Cancer Center
>
> On Jul 6, 2016, at 7:12 PM, Ricardo Gadelha <ricardodgade...@gmail.com
> <mailto:ricardodgade...@gmail.com>> wrote:
>
>> Thank you all for the feedback. I am trying acupunture and guaraná.
>>
>> Em 28 de jun de 2016 11:39, "'Jeanie' via CMLHope" <cmlhope@googlegroups.com
>> <mailto:cmlhope@googlegroups.com>> escreveu:
>> When I was first in Gleevec I wanted to go visit my daughter. She called
>> and I told her I was too tired to pack. She said don't pack get some rest.
>> So my advise to you is don't do anything you don't have to do. Rest as much
>> as you can. Your body is fighting a horrible disease and its tired. Listen
>> to your body. Try to exercise some it don't over due. Good luck.
>>
>> My Motto:
>> Faith and Pills
>> With Love
>> 🐠18's
>> Dx 1/2004 CML Leukemia
>> Started Gleevec 2/2004
>> Started Tasigna 9/2009
>> Started Sprycel 11/2009
>> Started Ponatinib 1/2015
>> Doctor Balducci Moffitt Cancer Center
>>
>> On Jun 27, 2016, at 8:39 PM, kathy walls <cand...@originalsbykate.com
>> <mailto:cand...@originalsbykate.com>> wrote:
>>
>>> I hear you!!! I had the fatigue the whole time I was on the drug. When I
>>> changed drugs because of the multitude of side effects I had the fatigue
>>> lessened dramatically. I'm on gleevec 200mg daily and while I'm not
>>> considered in remission I feel soooo much better I'll take the #'s I got
>>> and run
>>>
>>> Sent from my iPhone
>>>
>>> On Jun 27, 2016, at 7:54 PM, Ricardo Gadelha <ricardodgade...@gmail.com
>>> <mailto:ricardodgade...@gmail.com>> wrote:
>>>
>>>> Hi folks,
>>>> Does anyone know how to deal with fatigue that comes with nilotinib 400
>>>> mg bid?
>>>>
>>>>
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