Every two months
________________________________ From: 'Jeanie' via CMLHope <cmlhope@googlegroups.com> Sent: Sunday, September 3, 2017 8:07 AM To: cmlhope@googlegroups.com Subject: Re: [CMLHope] 3 months off Gleevec How often are u getting tested. Thanks. My Motto: Faith and Pills With Love 🐠18's Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/2015 Doctor Balducci Moffitt Cancer Center On Sep 2, 2017, at 3:58 PM, nycotb176 <djdannyvint...@gmail.com<mailto:djdannyvint...@gmail.com>> wrote: Going on 16 yrs on 400 gm of Gleevec, when I was diagnosed with sclerosis of the Liver. My Oncologist at Moffitt Cancer Center lowered my dosage to 200. After a year, I was still in remission.No Philadelphia Bug found in the last 15 yrs. Six months ago I was told I may be a candidate for a clinical trial for individuals like me. I had to go thru a list of questions and when I was done I was told the trial had closed. I decided to take my self of the Gleevec and spoke to my oncologist and he told me that he felt I may be CURED (Which I don't like that word) Well its been 3 months so far and no changes. Looking forward to the future. I was also told I would have to be off Gleevec for two years before they would be able to tell me the good news. Has anyone else tried to go off Gleevec???? -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com<mailto:CMLHope@googlegroups.com> To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com<mailto:cmlhope-unsubscr...@googlegroups.com> For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com<mailto:cmlhope+unsubscr...@googlegroups.com>. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com<mailto:cmlhope+unsubscr...@googlegroups.com>. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout.