Every two months

________________________________
From: 'Jeanie' via CMLHope <cmlhope@googlegroups.com>
Sent: Sunday, September 3, 2017 8:07 AM
To: cmlhope@googlegroups.com
Subject: Re: [CMLHope] 3 months off Gleevec

How often are u getting tested.  Thanks.

My Motto:
Faith and Pills
With Love
🐠18's
Dx 1/2004 CML Leukemia
Started Gleevec 2/2004
Started Tasigna 9/2009
Started Sprycel 11/2009
Started Ponatinib 1/2015
Doctor Balducci Moffitt Cancer Center

On Sep 2, 2017, at 3:58 PM, nycotb176 
<djdannyvint...@gmail.com<mailto:djdannyvint...@gmail.com>> wrote:

Going on 16 yrs on 400 gm of  Gleevec, when I was diagnosed with sclerosis of 
the Liver. My Oncologist at Moffitt Cancer Center lowered my dosage to 200. 
After a year, I was still in remission.No Philadelphia Bug found in the last 15 
yrs. Six months ago I was told I may be a candidate for a clinical trial for 
individuals like me. I had to go thru a list of questions and when I was done I 
was told the trial had closed. I decided to take my self of the Gleevec and 
spoke to my oncologist and he told me that he felt I may be CURED (Which I 
don't like that word) Well its been 3 months so far and no changes. Looking 
forward to the future. I was also told I would have to be off Gleevec for two 
years before they would be able to tell me the good news. Has anyone else tried 
to go off Gleevec????

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