Nick is at 14 years on Gleevec. He's doing well. We celebrated our 57th Anniversary this year. Just thank God for each day together. We appreciate all the updates and news from others with CML.Elizabeth
On Sunday, September 3, 2017 5:10 AM, "cmlhope@googlegroups.com" <cmlhope@googlegroups.com> wrote: | cmlhope@googlegroups.com | Google Groups | | Topic digest View all topics - 3 months off Gleevec - 4 Updates - Words OF WISDOM. - 2 Updates - [No Subject] - 1 Update 3 months off Gleevec | nycotb176 <djdannyvint...@gmail.com>: Sep 02 12:58PM -0700 Going on 16 yrs on 400 gm of Gleevec, when I was diagnosed with sclerosis of the Liver. My Oncologist at Moffitt Cancer Center lowered my dosage to 200. After a year, I was still in remission.No Philadelphia Bug found in the last 15 yrs. Six months ago I was told I may be a candidate for a clinical trial for individuals like me. I had to go thru a list of questions and when I was done I was told the trial had closed. I decided to take my self of the Gleevec and spoke to my oncologist and he told me that he felt I may be CURED (Which I don't like that word) Well its been 3 months so far and no changes. Looking forward to the future. I was also told I would have to be off Gleevec for two years before they would be able to tell me the good news. Has anyone else tried to go off Gleevec???? | | Marty Gartenberg <wa2...@gmail.com>: Sep 02 08:30PM -0400 Do you see just what the meaning of 18's is... Well all that counts is that your finally off of Gleevec. GOOD FOR YOU[image: Inline image 1] 18's, Marty | | Tony Lanoue <tonylan...@hotmail.com>: Sep 03 03:45AM I just read last week on one of the Facebook groups that somebody has been off Gleevec for two years now and their counter remain stable. I am your other hand tried going off last year and my counts started coming back up. So this year I switched to Sprycel, going to stay on the Sprycel for one year then try to discontinue use. The studies show that people are having more success staying in remission after being on Sprycel. But like I said before some people are having success after being treated with Gleevec also! Sent from my iPhone On Sep 2, 2017, at 8:30 PM, Marty Gartenberg <wa2...@gmail.com<mailto:wa2...@gmail.com>> wrote: Do you see just what the meaning of 18's is... Well all that counts is that your finally off of Gleevec. GOOD FOR YOU<image.png> 18's, Marty On Sat, Sep 2, 2017 at 3:58 PM, nycotb176 <djdannyvint...@gmail.com<mailto:djdannyvint...@gmail.com>> wrote: Going on 16 yrs on 400 gm of Gleevec, when I was diagnosed with sclerosis of the Liver. My Oncologist at Moffitt Cancer Center lowered my dosage to 200. After a year, I was still in remission.No Philadelphia Bug found in the last 15 yrs. Six months ago I was told I may be a candidate for a clinical trial for individuals like me. I had to go thru a list of questions and when I was done I was told the trial had closed. I decided to take my self of the Gleevec and spoke to my oncologist and he told me that he felt I may be CURED (Which I don't like that word) Well its been 3 months so far and no changes. Looking forward to the future. I was also told I would have to be off Gleevec for two years before they would be able to tell me the good news. Has anyone else tried to go off Gleevec???? -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com<mailto:CMLHope@googlegroups.com> To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com<mailto:cmlhope-unsubscr...@googlegroups.com> For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com<mailto:cmlhope+unsubscr...@googlegroups.com>. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com<mailto:CMLHope@googlegroups.com> To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com<mailto:cmlhope-unsubscr...@googlegroups.com> For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com<mailto:cmlhope+unsubscr...@googlegroups.com>. For more options, visit https://groups.google.com/d/optout. | | Richard H <rbhuffm...@gmail.com>: Sep 02 08:50PM -0700 Yes, but not successfulf. I am currently with no BCR-ABL found. But usually I am just about .ooo4%. Good luck,I have been going for 17 1/2 years. Richard H. On Saturday, September 2, 2017 at 4:07:22 PM UTC-5, nycotb176 wrote: | Back to top Words OF WISDOM. | Marty Gartenberg <wa2...@gmail.com>: Sep 02 08:34PM -0400 Every once in a while i run into something like this. Believe me this is beautiful enjoy it... FABULOUS VIDEO OF THE YEAR ! IT'S JUST WONDERFUL ! SHORT AND TO THE POINT! Outstanding Photography . . . Incredible Scenes and Wonderful Words OF WISDOM. Click below: INTERVIEW WITH GOD <https://urldefense.proofpoint.com/v2/url?u=https-3A__www.youtube.com_embed_moBvLFbFdJ4-3Frel-3D0-26autoplay-3D1&d=CwMFAg&c=dqndFQAGz2cg7ln6ll1EqkpBLZllP_GH8-2iqGbTww0&r=Qe_XpeKmavPLztg2brYC5SwEbqTAPjPxg8FzvqzBDQ8&m=5wWnLlxjTomhWYGmE2v0xhF9aP7yqBlzOyK6GGGYv-g&s=UuLl5ocAnX0iotscQ-o89j30NWmtNOPy_BFQllakTu8&e=> 18's, Marty | | Richard H <rbhuffm...@gmail.com>: Sep 02 08:43PM -0700 Thank you for sharing. Richard H. On Saturday, September 2, 2017 at 7:34:30 PM UTC-5, wa2yyx wrote: | Back to top [No Subject] | Marty Gartenberg <wa2...@gmail.com>: Sep 02 03:15PM -0400 Good Richard.Your in the graces of GOD, and that is what 18 stands for. 18, Marty | Back to top | You received this digest because you're subscribed to updates for this group. You can change your settings on the group membership page. To unsubscribe from this group and stop receiving emails from it send an email to cmlhope+unsubscr...@googlegroups.com. | -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout.