Hey Greenie!

I come also on Dec. 5th to see Dr. Altman in Chicago.  Let's meet up again!  I 
am also scheduled to see Dr. Kumthekar, a
neurologist right around the same time that day.  Mine is around 1:00 Chicago 
time, so let's discuss privately.  Right now I am
going out of town for two weeks....be back after Thanksgiving.  I have seen so 
many docs lately with severe pain in lower back
and this essential tremor. Also just got put on insulin for diabetes. Very 
small dosage. None are really related to cml, but they keep me hopping.  I fell 
off the chiropractor's table on Monday and really bruised and scraped myself up 
good on my left side.  Keeps life interesting!


Sorry I am in a hurry this morning....will catch up with you all very soon!  
Thinking about you all....


18's and love,
Susan Z
-----Original Message-----
From: myvety2k via CMLHope <cmlhope@googlegroups.com>
To: cmlhope <cmlhope@googlegroups.com>
Sent: Thu, Nov 8, 2018 7:46 am
Subject: Re: [CMLHope] Please answer to see if I’m getting my mail



Jeanie, That's a yes on Sebring. Slower way of life, to much crime, to many hit 
and runs, to many people, can't drive anywhere without someone trying to run 
you off the road, cutting in front of you, etc. The list is long. I have 
nothing against snow birds but when they come down to Fort Myers and the beach 
is near they just take over everything.  A ride to Lowes in the summer time 
takes 5 min. winter its takes 15 to 20 min. because of so many cars.  It was 
time to move and NOW I can go Bass Fishing.


greenie



-----Original Message-----
From: 'Jeanie' via CMLHope <cmlhope@googlegroups.com>
To: cmlhope <cmlhope@googlegroups.com>
Sent: Wed, Nov 7, 2018 1:18 pm
Subject: Re: [CMLHope] Please answer to see if I’m getting my mail


Hi all
Good to hear from you. 
Has anyone heard from Marty?
Do you like Sebring Greenie?
This thyroid disease is getting me down.  I want to sleep all day and wake up 
around midnight.  It’s awful!!!
Pray that I will get it straightened out soon 
Have a safe trip Greenie and I hope you can get together with Beth. 
Love you so very much.  
Jeanie🌺🌺🌺🌺


My Motto:
Faith and Pills
With Love
Jeanie
🐠free
Christian 
Dx 1/2004 CML Leukemia
Started Gleevec 2/2004
Started Tasigna 9/2009
Started Sprycel 11/2009
Started Ponatinib 1/ 2015 15 mg
New Doctor--Dr Martine Extermann
Moffitt Cancer  center sept 2017
Dr Balducci retired 
Dr Gedia PCD
0 CBL. ABL
July 2018 dx with thyroid disease tsh 13
T4-normal t3-normal


On Nov 6, 2018, at 3:29 PM, bkbarney via CMLHope <cmlhope@googlegroups.com> 
wrote:



i Hi Greenie, Congrats on your new home! And the bass boat!!!! So good to hear 
from you. Are you flying in on 
Tuesday the 4th for your Wednesday the 5th appointment? Would you like to have 
dinner together Tuesday evening? I could meet you near Northwestern? I would 
love  to meet you and Grace if she is coming. Let me know...you can email at my 
email. bkbar...@aol.com


Thanks!  


18's Beth



-----Original Message-----
From: myvety2k via CMLHope <cmlhope@googlegroups.com>
To: cmlhope <cmlhope@googlegroups.com>
Sent: Tue, Nov 6, 2018 6:07 am
Subject: Re: [CMLHope] Please answer to see if I’m getting my mail



Hi Beth, doing O. K.. Moved from South Fort Myers 2 months ago to Sebring, FL. 
Purchased a home there, Grace purchased me a Tracker bass boat so that I can go 
fishing, of course I'm making the payments.(smile).  Will be flying into 
Chicago on Dec 5th, Northwestern Hosp. to see my Doctor and my most loving 
thing (Blood Work). another smile.  Will let you all know how things turn out. 
Stay warm if you live North and Cool if you live South. Take care everyone.


Greenie



-----Original Message-----
From: bkbarney via CMLHope <cmlhope@googlegroups.com>
To: cmlhope <cmlhope@googlegroups.com>
Sent: Mon, Nov 5, 2018 12:06 pm
Subject: Re: [CMLHope] Please answer to see if I’m getting my mail


Dear Jeanie,


Just wanted to say I am here, thinking of you and everyone else... The year is 
slipping by...and next week snow flurries in Chicago. Soon it will be 
Thanksgiving, Christmas and the New Year!!! Sorry about all the thyroid 
troubles.. Hopefully they can help you get with the right meds...Ggod 
endocrinologist will guide you!!! You have had more than your share of health 
problems.. You are a real trouper!! Love your positive attitude. Remember to 
advocate for yourself. If you are not satisfied...or feel worse...keep asking 
for help!!!!! Each of us needs to do this...

I am doing O.K. Blood work for CML showing, but stable.... working on 
decreasing the inflammation in my body in the hopes that it might help my side 
effects and symptoms...still plugging along.... the stay positive attitude...is 
still finding me....even in the dark sometimes :), seeing the shadows so know 
the light is somewhere near by.


Love to all.. and Marty, hope you are healing well....and Richard, and Susan 
and Suzie Q and Greenie and everyone reading.. Hope each of you has a lovely 
and healthier holiday season!!

18's Beth



-----Original Message-----
From: 'Jeanie' via CMLHope <cmlhope@googlegroups.com>
To: cmlhope <cmlhope@googlegroups.com>
Sent: Sun, Nov 4, 2018 11:14 am
Subject: [CMLHope] Please answer to see if I’m getting my mail





My Motto:
Faith and Pills
With Love
Jeanie
🐠free
18’s to Marty
Dx 1/2004 CML Leukemia
Started Gleevec 2/2004
Started Tasigna 9/2009
Started Sprycel 11/2009
Started Ponatinib 1/ 2015 15 mg
New Doctor--Dr Martine Extermann
Moffitt Cancer  center sept 2017
Dr Balducci retired 
Dr Gedia PCD
0 CBL. ABL
Taking 0.05mg 50 mcg levothyroxine
July 2018 dx with thyroid disease tsh 13
T4-normal t3-normal


On Nov 3, 2018, at 11:09 AM, 'Jeanie' via CMLHope <cmlhope@googlegroups.com> 
wrote:



Hi Marty my friend
What do you mean?
Thanks
🌺🌺🌺


My Motto:
Faith and Pills
With Love
Jeanie
🐠free
18’s to Marty
Dx 1/2004 CML Leukemia
Started Gleevec 2/2004
Started Tasigna 9/2009
Started Sprycel 11/2009
Started Ponatinib 1/ 2015 15 mg
New Doctor--Dr Martine Extermann
Moffitt Cancer  center sept 2017
Dr Balducci retired 
Dr Gedia PCD
0 CBL. ABL
Taking 0.05mg 50 mcg levothyroxine
July 2018 dx with thyroid disease tsh 13
T4-normal t3-normal


On Oct 1, 2018, at 6:20 AM, Marty Gartenberg <wa2...@gmail.com> wrote:



Jeanie iam in rehab right now and need to have talk with you about YOU why in 
haven don't you where a led lined neck brace the next time you get in touch 
with me i will tell you. 18s Marty 


On Mon, Oct 1, 2018, 3:17 AM 'Jeanie' via CMLHope <cmlhope@googlegroups.com> 
wrote:


Hi all I got my thyroid test back. The counts err very high so went back to 
taking meds.  Check it again in 6 weeks. 
I am sure it’s all these meds.  Did you know even the X-rays from dentist can 
hurt thyroid. They say to asked for a protection mask.  I have never heard 
about this in all my years at the dentist. You?
They order mri like it’s a trip to the candy store I had 3 last year with no 
answers. 
If those tests are killing our thyroids then we need to be told.  Right?
Have s wonderful day. 
Love you so very much 


My Motto:
Faith and Pills
With Love
Jeanie
🐠free
18’s to Marty
Dx 1/2004 CML Leukemia
Started Gleevec 2/2004
Started Tasigna 9/2009
Started Sprycel 11/2009
Started Ponatinib 1/ 2015 15 mg
New Doctor--Dr Martine Extermann
Moffitt Cancer  center sept 2017
Dr Balducci retired 
Dr Gedia PCD
0 CBL. ABL
Taking 0.05mg 50 mcg levothyroxine
July 2018 dx with thyroid disease tsh 13
T4-normal t3-normal


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