I do take the levothyroxine. It puts my numbers in order, at least on paper. I hope you are seeing an endocrinologist. Yes? A thyroid specialist? I do not know why it would make your numbers worse? it should not make it worse. It might not work well...at first, until meds are adjusted if it's the right medication at the right dose for you. If your numbers are worse and you are not feeling well...definitely get to a specialist. They can physically check your neck, perhaps do an ultrasound..other more advanced diagnostic thyroid blood tests etc...maybe they need to rule out other issues.. Hope this is the year that you find some more answers and feel better!!! Thinking of you... 18/s Beth
-----Original Message----- From: 'Jeanie' via CMLHope <cmlhope@googlegroups.com> To: cmlhope <cmlhope@googlegroups.com> Sent: Fri, Dec 28, 2018 9:45 am Subject: [CMLHope] Thyroid issues Hi BethI didn’t know you had thyroid issues. Maybe you can help me. My tsh was high and the dr gave me Levo meds but they made it worse. How is yours being treated? Thanks Jeanie My Motto:Faith and PillsWith LoveJeanie🐠freeChristian Dx 1/2004 CML LeukemiaStarted Gleevec 2/2004Started Tasigna 9/2009Started Sprycel 11/2009Started Ponatinib 1/ 2015 15 mgNew Doctor--Dr Martine ExtermannMoffitt Cancer center sept 2017Dr Balducci retired Dr Gedia PCD0 CBL. ABLJuly 2018 dx with thyroid disease tsh 13T4-normal t3-normal On Dec 27, 2018, at 1:06 PM, rszim0702 via CMLHope <cmlhope@googlegroups.com> wrote: Thanks Beth for your note to us. As we all are above ground today, it's a great day as Marty used to say. I hope everyone's holiday time was precious with family. The noise at our get-together was deafening! With 33 in attendance it was lots of fun. Our Secret Santa time was fantastic, too. I got an ab-worker which could help me exercise...if I pick it up. All is well if we don't talk about our ills! Be blessed and enjoy the New Year coming in...with new futures, new prosperity, and new fulfillment because we are looking to be kind instead of right, and joyous and light-hearted as we give of ourselves to others. And when we need to share about our recent physical problems, that's what we are here for, too! Beth, hang in there and Jeannie, and Greenie, too. Gotta go! 18's and love and hugs,Susan Z. On Dec 26, 2018 2:09 PM, bkbarney via CMLHope <cmlhope@googlegroups.com> wrote: Hanging in there. Cancer showing ongoing but at low rates. Cannot take enough meds to get to PCRU but that's O.K.,Side effects still here, muscle and heart and my usual thyroid issues, but I stay positive and carry on. On vacation, made it this year, so enjoying shelling and the beach...windy but great shelling!! Love to all, and please, lets all stay together here this coming year. Zavie and Marty taught us well, along with Millie and many others....community and shared experiences mean so much.... Love, and 18's to all Beth -----Original Message----- From: 'Jeanie' via CMLHope <cmlhope@googlegroups.com> To: cmlhope <cmlhope@googlegroups.com> Sent: Wed, Dec 26, 2018 2:02 pm Subject: Re: [CMLHope] Merry Christmas and happy Holidays to all Thank you so much how are you? My Motto:Faith and PillsWith LoveJeanie🐠freeChristian Dx 1/2004 CML LeukemiaStarted Gleevec 2/2004Started Tasigna 9/2009Started Sprycel 11/2009Started Ponatinib 1/ 2015 15 mgNew Doctor--Dr Martine ExtermannMoffitt Cancer center sept 2017Dr Balducci retired Dr Gedia PCD0 CBL. ABLJuly 2018 dx with thyroid disease tsh 13T4-normal t3-normal On Dec 25, 2018, at 11:29 PM, bkbarney via CMLHope <cmlhope@googlegroups.com> wrote: hi Jeanie and Susan Z, Wishing you both a happy and peaceful New Year filled with moments of joy and sweetness amidst all the healthy struggles. You are both such strong woman and I admire the courage you both show in navigating multiple health issues at once. I feel for both you.. Stay positive and now that lots of us out here are thinking of you. Happy holidays!! 18's Beth -----Original Message----- From: rszim0702 via CMLHope <cmlhope@googlegroups.com> To: cmlhope <cmlhope@googlegroups.com> Sent: Sat, Dec 15, 2018 10:00 am Subject: Re: [CMLHope] Merry Christmas and happy Holidays to all Sorry for the new diagnosis, Jeannie! I got news I now have fibromyalgia myself. Along with IBS, I have to make myself go out of the house. All of you keep warm and have a wonderful Merry Christmas!!! It is what you make it. 18's and hugs,Susan Z On Dec 15, 2018 9:10 AM, esd...@rogers.com wrote: Wishing the best to you in the New Year. Sent from my LG Mobile ------ Original message------From: 'Icandoallttc' via CMLHope Date: Sat, Dec 15, 2018 3:15 AMTo: cmlhope@googlegroups.com;Cc: Subject:[CMLHope] Merry Christmas and happy Holidays to all Hi allMerry Christmas and Happy Holidays to all. I am ending the year fighting another disease: thyroid. At least that’s what they think it is. Lost about 30 pounds: losing hair-sweating for no reason and more. I can’t take the meds as they make it worse. 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