I want to track my health. Having recently buried my mother I've come to experience how broken our medical records system is.
I reviewed a list of open source healthcare software at wikipedia<http://en.wikipedia.org/wiki/List_of_open-source_healthcare_software#Electronic_health_or_medical_record> and Andy Oram's June 2011 article on Open source personal health record<http://strata.oreilly.com/2011/06/open-source-personal-health-re.html> systems trying to find a PHR that I can run on my desktop. Unfortunately there doesn't seem to be such an option. The systems such as GNU Health are "intended to run in Health Centers, to take care of the daily clinical practice as well as to manage the health center resources." There are some online systems. Microsoft's Health Vault, Google's (defunct) Google Health, and *Dossia*<http://en.wikipedia.org/wiki/Dossia> which is a consortium of large employers. Of note, Dossia is based on Open source software<http://docs.dossia.org/images/5/5a/Dossia_Technical_Overview.pdf> and they released their API <http://docs.dossia.org/index.php/Main_Page> in 2009, so it's not a traditional tethered PHR service. Unfortunately, the system is only accessible to individuals who work for an employer who participates in the program. Their FAQ addresses the need for such a system<http://www.dossia.org/for-employers/employer-q-and-a#q3> . Andy points to *Indivo <http://indivohealth.org/>* as a possibility. It's run by the (Boston) Children's Hospital Informatics Program. There are heavy-duty requirements (for an average user) to installing<http://wiki.chip.org/indivo/index.php/HOWTO:_install_Indivo_X> and running an instance of the server and client programs. I have not gotten around to that yet. They have been sponsoring "app" development, so it needs to be seen how much functionality you might be able to get if you were to maintain a server, plus a client, plus any freely-licensed apps. Others I quickly surveyed include Tolven <http://home.tolvenhealth.com/> and OpenMRS <http://openmrs.org/> But I haven't found (I guess they don't exist yet) any personal health log software. I've come to find out that even the "coding" of medical procedures is not standardarized (The AMA code set is the most used in the US - but that's the _American_ Medical Association) and not free - meaning that they're proprietary<http://en.wikipedia.org/wiki/Current_Procedural_Terminology>and dependent on the system used. Any suggestions on solutions? What do you do? I simply want to log and record everything about my health in a way that I have access to it; I might be able to share it; and I might be able to import data from other systems. Greg Rundlett _______________________________________________ Discuss mailing list Discuss@blu.org http://lists.blu.org/mailman/listinfo/discuss