small side note in terms of dartmouth specifically: i'll just leave this here: http://dndlookup.dartmouth.edu/ <http://dndlookup.dartmouth.edu/>(search my name, for example)
On Wed, Sep 29, 2010 at 7:51 PM, Adi Kamdar <[email protected]> wrote: > We had a discussion at the law school last year about DNA databases for > criminals. It was almost a 12 Angry Men moment... all of us were vehemently > against the idea of it at the very beginning... then we slowly switched over > and agreed it would be a helpful, good idea. Most of the arguments against > it were just "it's too Orwellian" or "it doesn't feel right," and that > wasn't quite good enough for us. When it comes to research though, that's a > whole different ball game. Anonymity is hard. > > -Adi > > > > On Tue, Sep 28, 2010 at 2:37 PM, Alex Kozak <[email protected]>wrote: > >> Data anonymization is interesting and might be possible in some >> applications, but what do you do when you're working with e.g. DNA? >> Sometimes the data you want to work with is inherently un-anonymizable, and >> research has shown that data is sometimes easily de-anonymizable. >> >> For example, a worldwide database of DNA correlated with patient's entire >> health records would be extremely valuable for science, but obviously raises >> some concerns. Is the answer strong anti-discrimination laws or strong >> privacy laws? Maybe we should never create such a database? >> >> AK >> >> On Tue, Sep 28, 2010 at 11:27 AM, Parker <[email protected]> wrote: >> >>> Agreed re: most interesting issues in Free Culture! >>> >>> I keep saying that decentralized and federated is all cool and stuff (see >>> also Diaspora*) until you want to have useful things like recommendation >>> engines which require large centralized datasets. >>> >>> And this why I'm stupid for not focusing my computer science studies on >>> data anonymization. Because I think that's going to be important to >>> relieving this tension. >>> >>> >>> On Tue, Sep 28, 2010 at 2:19 PM, Alex Kozak >>> <[email protected]>wrote: >>> >>>> I know little about the letter of FERPA, but I do know it's been flagged >>>> as an issue by the Dept. of Education and others as a barrier to data >>>> sharing and research to improve education. The best link I have is page 36 >>>> of this PDF: >>>> http://www2.ed.gov/about/offices/list/os/technology/netp.pdf >>>> >>>> It's very similar to how hard it is to share medical research data in >>>> the life sciences because of patient data protections in HIPPA. >>>> >>>> To me these are the most interesting issues in free culture because >>>> there is a clear tension between protecting privacy and promoting sharing >>>> for general human welfare and advancement. They might not be mutually >>>> exclusive, but it definitely increases barriers to try and achieve both. >>>> >>>> AK >>>> >>>> On Tue, Sep 28, 2010 at 10:29 AM, Parker <[email protected]> wrote: >>>> >>>>> In my probability class, the prof had us sign FERPA waivers so that she >>>>> could back the homework in class! >>>>> >>>>> I thought this was interesting. And maybe excessive. Do any FERPA nerds >>>>> know if there are exemptions for this kind of thing? Are other people >>>>> finding their profs t be equally scared of violating FERPA? (fwiw, at >>>>> least >>>>> one professor here is very hesitant about implementing OpenCourseWare at >>>>> Dartmouth because of FERPA. but that's another discussion entirely!) >>>>> >>>>> -- >>>>> http://www.madebyparker.com >>>>> >>>>> _______________________________________________ >>>>> Discuss mailing list >>>>> [email protected] >>>>> http://freeculture.org/cgi-bin/mailman/listinfo/discuss >>>>> FAQ: http://wiki.freeculture.org/Fc-discuss >>>>> >>>>> >>>> >>>> >>>> -- >>>> Alex Kozak >>>> Program Assistant >>>> Creative Commons >>>> >>>> _______________________________________________ >>>> Discuss mailing list >>>> [email protected] >>>> http://freeculture.org/cgi-bin/mailman/listinfo/discuss >>>> FAQ: http://wiki.freeculture.org/Fc-discuss >>>> >>>> >>> >>> >>> -- >>> http://www.madebyparker.com >>> >>> _______________________________________________ >>> Discuss mailing list >>> [email protected] >>> http://freeculture.org/cgi-bin/mailman/listinfo/discuss >>> FAQ: http://wiki.freeculture.org/Fc-discuss >>> >>> >> >> >> -- >> Alex Kozak >> Program Assistant >> Creative Commons >> >> _______________________________________________ >> Discuss mailing list >> [email protected] >> http://freeculture.org/cgi-bin/mailman/listinfo/discuss >> FAQ: http://wiki.freeculture.org/Fc-discuss >> >> > > _______________________________________________ > Discuss mailing list > [email protected] > http://freeculture.org/cgi-bin/mailman/listinfo/discuss > FAQ: http://wiki.freeculture.org/Fc-discuss > > -- http://www.madebyparker.com
_______________________________________________ Discuss mailing list [email protected] http://freeculture.org/cgi-bin/mailman/listinfo/discuss FAQ: http://wiki.freeculture.org/Fc-discuss
