I have to echo Ed Hammond's comments about prior work on clinical data elements and acceptable value sets. It doesn't make sense for PCORI to go off and create another ad-hoc data set. As an example we just completed and balloted the HL7 Data Elements for Emergency Department Systems (https://www.hl7.org/implement/standards/product_brief.cfm?product_id=326) incorporating standard representations.
I'll leave it to Jim Campbell to carry issues to the DSSNI. Jim James McClay, MS, MD, FACEP Associate Professor, Emergency Medicine Chair, Biomedical Informatics Graduate Program University of Nebraska Medical Center 402-559-3587, jmcc...@unmc.edu _______________________________ The information in this e-mail is privileged and confidential, intended only for the use of the addressee(s) above. If you have received this e-mail by mistake, please delete it and immediately contact the sender. From: gpc-dev-boun...@listserv.kumc.edu [mailto:gpc-dev-boun...@listserv.kumc.edu] On Behalf Of Russ Waitman Sent: Wednesday, March 19, 2014 4:09 PM To: GPC-DEV@LISTSERV.KUMC.EDU Subject: FW: PCORnet: Draft Common Data Model 1.0 FYI Look forward to GPC thoughts. I'll also draft my thoughts this week and share with the GPC and in turn with PCORNet and in preparation for the March 30th in person meeting, Russ From: Dr Ed Hammond, Ph.D. [mailto:william.hamm...@duke.edu] Sent: Wednesday, March 19, 2014 1:04 PM To: 'Rosenbloom, Trent'; Jenny Ibarra; Lesley Curtis; 'jeff_br...@harvardpilgrim.org'; 'Brie Purcell; Shelley Rusincovitch; 'Rachael Fleurence; 'sgre...@pcori.org'; 'sdaughe...@pcori.org'; 'swa...@pcori.org'; 'snmur...@partners.org'; 'trent.rosenbl...@vanderbilt.edu'; 'dmee...@rand.org'; 'campb...@unmc.edu'; 'michael.k...@ucdenver.edu'; 'wo...@email.chop.edu'; 'hripc...@columbia.edu'; 'abel....@nmff.org'; 'pu...@ochin.org'; 'tuf21...@temple.edu'; 's...@medicine.ucsf.edu'; 'keith.mars...@cchmc.org'; 'kristen_an...@med.unc.edu'; 'mruesch...@partners.org'; 'maryann.mcbur...@kpchr.org'; 'kenneth.bue...@asu.edu'; 'kenneth.yo...@epi.usf.edu'; 'marc.nat...@childrens.harvard.edu'; 'avsher...@partners.org'; 'paul_avill...@hms.harvard.edu'; 'sulli...@mail.med.upenn.edu'; 'youn...@epi.usf.edu'; 'rtw...@mednet.ucla.edu'; 'david.dickin...@arborresearch.org'; 'kwil...@rti.org'; 'dixie.ba...@martin-blanck.com'; Maryan Zirkle; Shanbhag, Avinash (HHS/ONC; jcur...@uab.edu<mailto:jcur...@uab.edu>; JV Selby; Joanne Cochrane; rive...@ochin.org<mailto:rive...@ochin.org>; Travis Crayton; Bauck, Alan; Durham, Mary, Ph.D.; Blake, Michelle A; Laws, Reesa; Day, Michele; christine.dy...@hhs.gov<mailto:christine.dy...@hhs.gov>; rru...@rand.org<mailto:rru...@rand.org>; jessica_malenf...@harvardpilgrim.org<mailto:jessica_malenf...@harvardpilgrim.org>; jessica_sturtev...@harvardpilgrim.org<mailto:jessica_sturtev...@harvardpilgrim.org>; rmil...@ochsner.org<mailto:rmil...@ochsner.org>; Dorie Olson; Hripcsak, George M.; nger...@ghlf.org<mailto:nger...@ghlf.org>; mbr...@pcori.org<mailto:mbr...@pcori.org>; Borromeo, Charles; Beller, Marc; jeff.kl...@mgh.harvard.edu<mailto:jeff.kl...@mgh.harvard.edu>; Dori Bilik; Goel, Satyender (NU; rjesr...@rti.org<mailto:rjesr...@rti.org>; msulli...@lincolnpeak.com<mailto:msulli...@lincolnpeak.com>; bs...@lincolnpeak.com<mailto:bs...@lincolnpeak.com>; Wehbe, Firas; rj...@lphi.org<mailto:rj...@lphi.org>; kimberly.l...@channing.harvard.edu<mailto:kimberly.l...@channing.harvard.edu>; Richard Platt <richard_pl...@harvard.edu<mailto:richard_pl...@harvard.edu>> (richard_pl...@harvard.edu<mailto:richard_pl...@harvard.edu>); chelsea_jen...@harvardpilgrim.org<mailto:chelsea_jen...@harvardpilgrim.org>; 'matthew_gill...@hms.harvard.edu'; Robert Califf, M.D. Cc: kenneth.ma...@childrens.harvard.edu<mailto:kenneth.ma...@childrens.harvard.edu>; Rothman, Russell; lohnomach...@ucsd.edu<mailto:lohnomach...@ucsd.edu>; Russ Waitman; elizabeth.a.mcgl...@kp.org<mailto:elizabeth.a.mcgl...@kp.org>; akhurs...@lphi.org<mailto:akhurs...@lphi.org>; forre...@email.chop.edu<mailto:forre...@email.chop.edu>; rak2...@med.cornell.edu<mailto:rak2...@med.cornell.edu>; tmaz...@cct.org<mailto:tmaz...@cct.org>; dev...@ohsu.edu<mailto:dev...@ohsu.edu>; hes...@upmc.edu<mailto:hes...@upmc.edu>; mpletc...@epi.ucsf.edu<mailto:mpletc...@epi.ucsf.edu>; peter.margo...@cchmc.org<mailto:peter.margo...@cchmc.org>; ryan_balfour_sar...@med.unc.edu<mailto:ryan_balfour_sar...@med.unc.edu>; michael_kappel...@med.unc.edu<mailto:michael_kappel...@med.unc.edu>; sginsb...@ghlf.org<mailto:sginsb...@ghlf.org>; sredli...@rics.bwh.harvard.edu<mailto:sredli...@rics.bwh.harvard.edu>; richard.a.mular...@kcphr.org<mailto:richard.a.mular...@kcphr.org>; rmcbur...@acceleratedcure.org<mailto:rmcbur...@acceleratedcure.org>; rebecca.sutp...@epi.usf.edu<mailto:rebecca.sutp...@epi.usf.edu>; anierenb...@mgh.harvard.edu<mailto:anierenb...@mgh.harvard.edu>; Laura Schanberg, M.D.; feich...@partners.org<mailto:feich...@partners.org>; meganobo...@gmail.com<mailto:meganobo...@gmail.com>; sulli...@mail.med.upenn.edu<mailto:sulli...@mail.med.upenn.edu>; pmer...@upenn.edu<mailto:pmer...@upenn.edu>; ho...@parentprojectmd.org<mailto:ho...@parentprojectmd.org>; bruce.robin...@arborresearch.org<mailto:bruce.robin...@arborresearch.org>; jbue...@efa.org<mailto:jbue...@efa.org>; ste...@geneticalliance.org<mailto:ste...@geneticalliance.org> Subject: RE: PCORnet: Draft Common Data Model 1.0 There are other examples of all ready defined data elements in other groups. HL7 is one source of a set of data elements That I think we need to look at. In some cases these data elements are different in what is presented. For example, HL7 has defined to types of gender: administrative gender with value set of male, female, unknown and clinical gender which has a rich set of values. The reason is that at the demographic level collected with registration is unlikely to ever include clinical gender. At a minimum, we need to be aware when we are different and why. Then I think we need to make contact with other groups to try to get resolution and achieve a more global common data set. From: Rosenbloom, Trent [mailto:trent.rosenbl...@vanderbilt.edu] Sent: Wednesday, March 19, 2014 1:52 PM To: Jenny Ibarra; Lesley Curtis; 'jeff_br...@harvardpilgrim.org'; 'Brie Purcell; Shelley Rusincovitch; 'Rachael Fleurence; 'sgre...@pcori.org'; 'sdaughe...@pcori.org'; 'swa...@pcori.org'; 'snmur...@partners.org'; 'trent.rosenbl...@vanderbilt.edu'; 'dmee...@rand.org'; 'campb...@unmc.edu'; 'michael.k...@ucdenver.edu'; 'wo...@email.chop.edu'; 'hripc...@columbia.edu'; 'abel....@nmff.org'; 'pu...@ochin.org'; 'tuf21...@temple.edu'; 's...@medicine.ucsf.edu'; 'keith.mars...@cchmc.org'; 'kristen_an...@med.unc.edu'; 'mruesch...@partners.org'; 'maryann.mcbur...@kpchr.org'; 'kenneth.bue...@asu.edu'; 'kenneth.yo...@epi.usf.edu'; 'marc.nat...@childrens.harvard.edu'; 'avsher...@partners.org'; 'paul_avill...@hms.harvard.edu'; 'sulli...@mail.med.upenn.edu'; 'youn...@epi.usf.edu'; 'rtw...@mednet.ucla.edu'; 'david.dickin...@arborresearch.org'; 'kwil...@rti.org'; 'dixie.ba...@martin-blanck.com'; Maryan Zirkle; Dr Ed Hammond, Ph.D.; Shanbhag, Avinash (HHS/ONC; jcur...@uab.edu<mailto:jcur...@uab.edu>; JV Selby; Joanne Cochrane; rive...@ochin.org<mailto:rive...@ochin.org>; Travis Crayton; Bauck, Alan; Durham, Mary, Ph.D.; Blake, Michelle A; Laws, Reesa; Day, Michele; christine.dy...@hhs.gov<mailto:christine.dy...@hhs.gov>; rru...@rand.org<mailto:rru...@rand.org>; jessica_malenf...@harvardpilgrim.org<mailto:jessica_malenf...@harvardpilgrim.org>; jessica_sturtev...@harvardpilgrim.org<mailto:jessica_sturtev...@harvardpilgrim.org>; rmil...@ochsner.org<mailto:rmil...@ochsner.org>; Dorie Olson; Hripcsak, George M.; nger...@ghlf.org<mailto:nger...@ghlf.org>; mbr...@pcori.org<mailto:mbr...@pcori.org>; Borromeo, Charles; Beller, Marc; jeff.kl...@mgh.harvard.edu<mailto:jeff.kl...@mgh.harvard.edu>; Dori Bilik; Goel, Satyender (NU; rjesr...@rti.org<mailto:rjesr...@rti.org>; msulli...@lincolnpeak.com<mailto:msulli...@lincolnpeak.com>; bs...@lincolnpeak.com<mailto:bs...@lincolnpeak.com>; Wehbe, Firas; rj...@lphi.org<mailto:rj...@lphi.org>; kimberly.l...@channing.harvard.edu<mailto:kimberly.l...@channing.harvard.edu>; Richard Platt <richard_pl...@harvard.edu<mailto:richard_pl...@harvard.edu>> (richard_pl...@harvard.edu<mailto:richard_pl...@harvard.edu>); chelsea_jen...@harvardpilgrim.org<mailto:chelsea_jen...@harvardpilgrim.org>; 'matthew_gill...@hms.harvard.edu'; Robert Califf, M.D. Cc: kenneth.ma...@childrens.harvard.edu<mailto:kenneth.ma...@childrens.harvard.edu>; Rothman, Russell; lohnomach...@ucsd.edu<mailto:lohnomach...@ucsd.edu>; rwait...@kumc.edu<mailto:rwait...@kumc.edu>; elizabeth.a.mcgl...@kp.org<mailto:elizabeth.a.mcgl...@kp.org>; akhurs...@lphi.org<mailto:akhurs...@lphi.org>; forre...@email.chop.edu<mailto:forre...@email.chop.edu>; rak2...@med.cornell.edu<mailto:rak2...@med.cornell.edu>; tmaz...@cct.org<mailto:tmaz...@cct.org>; dev...@ohsu.edu<mailto:dev...@ohsu.edu>; hes...@upmc.edu<mailto:hes...@upmc.edu>; mpletc...@epi.ucsf.edu<mailto:mpletc...@epi.ucsf.edu>; peter.margo...@cchmc.org<mailto:peter.margo...@cchmc.org>; ryan_balfour_sar...@med.unc.edu<mailto:ryan_balfour_sar...@med.unc.edu>; michael_kappel...@med.unc.edu<mailto:michael_kappel...@med.unc.edu>; sginsb...@ghlf.org<mailto:sginsb...@ghlf.org>; sredli...@rics.bwh.harvard.edu<mailto:sredli...@rics.bwh.harvard.edu>; richard.a.mular...@kcphr.org<mailto:richard.a.mular...@kcphr.org>; rmcbur...@acceleratedcure.org<mailto:rmcbur...@acceleratedcure.org>; rebecca.sutp...@epi.usf.edu<mailto:rebecca.sutp...@epi.usf.edu>; anierenb...@mgh.harvard.edu<mailto:anierenb...@mgh.harvard.edu>; Laura Schanberg, M.D.; feich...@partners.org<mailto:feich...@partners.org>; meganobo...@gmail.com<mailto:meganobo...@gmail.com>; sulli...@mail.med.upenn.edu<mailto:sulli...@mail.med.upenn.edu>; pmer...@upenn.edu<mailto:pmer...@upenn.edu>; ho...@parentprojectmd.org<mailto:ho...@parentprojectmd.org>; bruce.robin...@arborresearch.org<mailto:bruce.robin...@arborresearch.org>; jbue...@efa.org<mailto:jbue...@efa.org>; ste...@geneticalliance.org<mailto:ste...@geneticalliance.org> Subject: RE: PCORnet: Draft Common Data Model 1.0 Thank you. These standards omit some very important work that the HL7 Pediatric Data SIG has done around necessary standard content for pediatrics. Namely: Need to capture and standardize Birth time when available Weight needs to be in KG/grams if it will support infants Both length and height should use the same units, centimeters S. Trent Rosenbloom, MD MPH Vice Chair of Faculty Affairs & Associate Professor, Department of Biomedical Informatics Director of Patient Engagement Associate Professor, Internal Medicine and Pediatrics Associate Professor, School of Nursing Vanderbilt University Medical Center Office: (615) 936-1541; fax (615) 936-5900 Eskind Biomedical Library 2209 Garland Avenue, Nashville 37232 trent.rosenbl...@vanderbilt.edu<mailto:trent.rosenbl...@vanderbilt.edu> ________________________________ From: Jenny Ibarra [jenny.iba...@duke.edu] Sent: Wednesday, March 19, 2014 9:05 AM To: Lesley Curtis; 'jeff_br...@harvardpilgrim.org'; 'Brie Purcell; Shelley Rusincovitch; 'Rachael Fleurence; 'sgre...@pcori.org'; 'sdaughe...@pcori.org'; 'swa...@pcori.org'; 'snmur...@partners.org'; 'trent.rosenbl...@vanderbilt.edu'; 'dmee...@rand.org'; 'campb...@unmc.edu'; 'michael.k...@ucdenver.edu'; 'wo...@email.chop.edu'; 'hripc...@columbia.edu'; 'abel....@nmff.org'; 'pu...@ochin.org'; 'tuf21...@temple.edu'; 's...@medicine.ucsf.edu'; 'keith.mars...@cchmc.org'; 'kristen_an...@med.unc.edu'; 'mruesch...@partners.org'; 'maryann.mcbur...@kpchr.org'; 'kenneth.bue...@asu.edu'; 'kenneth.yo...@epi.usf.edu'; 'marc.nat...@childrens.harvard.edu'; 'avsher...@partners.org'; 'paul_avill...@hms.harvard.edu'; 'sulli...@mail.med.upenn.edu'; 'youn...@epi.usf.edu'; 'rtw...@mednet.ucla.edu'; 'david.dickin...@arborresearch.org'; 'kwil...@rti.org'; 'dixie.ba...@martin-blanck.com'; Maryan Zirkle; Dr Ed Hammond, Ph.D.; Shanbhag, Avinash (HHS/ONC; jcur...@uab.edu<mailto:jcur...@uab.edu>; JV Selby; Joanne Cochrane; rive...@ochin.org<mailto:rive...@ochin.org>; Travis Crayton; Bauck, Alan; Durham, Mary, Ph.D.; Blake, Michelle A; Laws, Reesa; Day, Michele; christine.dy...@hhs.gov<mailto:christine.dy...@hhs.gov>; rru...@rand.org<mailto:rru...@rand.org>; jessica_malenf...@harvardpilgrim.org<mailto:jessica_malenf...@harvardpilgrim.org>; jessica_sturtev...@harvardpilgrim.org<mailto:jessica_sturtev...@harvardpilgrim.org>; rmil...@ochsner.org<mailto:rmil...@ochsner.org>; Dorie Olson; Hripcsak, George M.; nger...@ghlf.org<mailto:nger...@ghlf.org>; mbr...@pcori.org<mailto:mbr...@pcori.org>; Borromeo, Charles; Beller, Marc; jeff.kl...@mgh.harvard.edu<mailto:jeff.kl...@mgh.harvard.edu>; Dori Bilik; Goel, Satyender (NU; rjesr...@rti.org<mailto:rjesr...@rti.org>; msulli...@lincolnpeak.com<mailto:msulli...@lincolnpeak.com>; bs...@lincolnpeak.com<mailto:bs...@lincolnpeak.com>; Wehbe, Firas; rj...@lphi.org<mailto:rj...@lphi.org>; kimberly.l...@channing.harvard.edu<mailto:kimberly.l...@channing.harvard.edu>; Richard Platt <richard_pl...@harvard.edu<mailto:richard_pl...@harvard.edu>> (richard_pl...@harvard.edu<mailto:richard_pl...@harvard.edu>); chelsea_jen...@harvardpilgrim.org<mailto:chelsea_jen...@harvardpilgrim.org>; 'matthew_gill...@hms.harvard.edu'; Robert Califf, M.D. Cc: kenneth.ma...@childrens.harvard.edu<mailto:kenneth.ma...@childrens.harvard.edu>; Rothman, Russell; lohnomach...@ucsd.edu<mailto:lohnomach...@ucsd.edu>; rwait...@kumc.edu<mailto:rwait...@kumc.edu>; elizabeth.a.mcgl...@kp.org<mailto:elizabeth.a.mcgl...@kp.org>; akhurs...@lphi.org<mailto:akhurs...@lphi.org>; forre...@email.chop.edu<mailto:forre...@email.chop.edu>; rak2...@med.cornell.edu<mailto:rak2...@med.cornell.edu>; tmaz...@cct.org<mailto:tmaz...@cct.org>; dev...@ohsu.edu<mailto:dev...@ohsu.edu>; hes...@upmc.edu<mailto:hes...@upmc.edu>; mpletc...@epi.ucsf.edu<mailto:mpletc...@epi.ucsf.edu>; peter.margo...@cchmc.org<mailto:peter.margo...@cchmc.org>; ryan_balfour_sar...@med.unc.edu<mailto:ryan_balfour_sar...@med.unc.edu>; michael_kappel...@med.unc.edu<mailto:michael_kappel...@med.unc.edu>; sginsb...@ghlf.org<mailto:sginsb...@ghlf.org>; sredli...@rics.bwh.harvard.edu<mailto:sredli...@rics.bwh.harvard.edu>; richard.a.mular...@kcphr.org<mailto:richard.a.mular...@kcphr.org>; rmcbur...@acceleratedcure.org<mailto:rmcbur...@acceleratedcure.org>; rebecca.sutp...@epi.usf.edu<mailto:rebecca.sutp...@epi.usf.edu>; anierenb...@mgh.harvard.edu<mailto:anierenb...@mgh.harvard.edu>; Laura Schanberg, M.D.; feich...@partners.org<mailto:feich...@partners.org>; meganobo...@gmail.com<mailto:meganobo...@gmail.com>; sulli...@mail.med.upenn.edu<mailto:sulli...@mail.med.upenn.edu>; pmer...@upenn.edu<mailto:pmer...@upenn.edu>; ho...@parentprojectmd.org<mailto:ho...@parentprojectmd.org>; bruce.robin...@arborresearch.org<mailto:bruce.robin...@arborresearch.org>; jbue...@efa.org<mailto:jbue...@efa.org>; ste...@geneticalliance.org<mailto:ste...@geneticalliance.org> Subject: PCORnet: Draft Common Data Model 1.0 Dear PCORnet Colleagues, We are pleased to distribute the attached draft of the initial PCORnet Common Data Model for your review and welcome your comments and feedback. As you may know, we have a very tight timeline to finalize the PCORnet CDM Version 1.0 (March 31) so we kindly ask that you collate your Network's feedback and submit it to ds...@pcornet.org<mailto:ds...@pcornet.org> by close of business, Tuesday, March 25th. We recognize that this will be an iterative process once partners begin to implement the model. We plan to use the DSSNI TF calls and one-on-one calls to discuss implementation details and gather and communicate lessons learned. We look forward to working with you on this process. Kind regards, Jenny Jenny Ibarra, RN, MSN Project Leader, Clinical Operations Duke Clinical Research Institute 2400 Pratt Street Durham, NC 27705 Phone: 919.236.3291 Email: jenny.iba...@duke.edu<mailto:jenny.iba...@duke.edu> The information in this e-mail may be privileged and confidential, intended only for the use of the addressee(s) above. Any unauthorized use or disclosure of this information is prohibited. If you have received this e-mail by mistake, please delete it and immediately contact the sender.
_______________________________________________ Gpc-dev mailing list Gpc-dev@listserv.kumc.edu http://listserv.kumc.edu/mailman/listinfo/gpc-dev
