FYI, prompted by a visit from Brad Pollock, we've had some good cohort characterization discussions in the last couple days. I'm keeping ticket #31 reasonably up-to-date; for example:
________________________________________ From: GPC Informatics [[email protected]] Sent: Wednesday, July 02, 2014 10:28 AM To: Dan Connolly Cc: [email protected]; Russ Waitman; Kieran Pemberton; Jianghua He; [email protected] Subject: Re: [gpc-informatics] #31: data elements for ALS cohort characterization #31: data elements for ALS cohort characterization --------------------------+---------------------------- Reporter: dconnolly | Owner: dconnolly Type: design-issue | Status: accepted Priority: major | Milestone: data-domains2 Component: data-stds | Resolution: Keywords: | Blocked By: 63 Blocking: | --------------------------+---------------------------- Changes (by dconnolly): * owner: tmcmahon => dconnolly * status: assigned => accepted Comment: I discussed this with Tamara. I hope to talk with Dr. Barohn and the ALS group about how initial onset is recorded. - Demographics are easy enough - We don't know what to use for **initial symptom onset**, let alone **location** - ALSFRS-R is deployed, though only recently, so it's recorded only on a small minority of the KUH ALS population - There's a Drooling Scale question in the ALSFRS-R - `003- #7855 $$ Vital Capacity (mL)` recorded on ~10K patients - not sure how to find Neuromuscular Examinations - perhaps Neurology procedure orders (~10K patients) - EMG ORDER (~3K patients) - physical examination: CPT codes such as 99396 look appropriate: - Preventive Medicine Services - Counseling Risk Factor Reduction and Behavior Change Intervention - Preventive Medicine Services for an Established Patient - Preventive Medicine Services for a New Patient - Vital signs: straightforward -- Ticket URL: <http://informatics.gpcnetwork.org/trac/Project/ticket/31#comment:11> gpc-informatics <http://informatics.gpcnetwork.org/> Greater Plains Network - Informatics _______________________________________________ Gpc-dev mailing list [email protected] http://listserv.kumc.edu/mailman/listinfo/gpc-dev
