Greetings GPC dev’ers.
One of our charges from PCORI is to develop mechanisms for the
capture of patient generated data. Our current model is a combination of REDcap
questionnaires for unique data capture and delivering patient questionnaires
via each sites’ enterprise patient portal.
As noted in the email below the ONC Structured Data Capture project is
attempting to accomplish the same task in a formal, standardized, universally
implementable fashion.
In one of my other roles as a chair at HL7 I work with the FHIR developers and
clinician informaticists to test FHIR interoperability using real world use
cases developed by the HL7 Clinical Team.
The virtual connectathon discussed below is an opportunity to test GPC related
patient questionnaires with the support of ONC and the FHIR developers.
I wanted to invite other GPC development teams to participate. We will need to
decide if this will be by individual site or going in as the GPC as a group.
Please let me know you interest and I will work to make arrangements.
Jim
James McClay, MS, MD, FACEP
Associate Professor, Emergency Medicine
Chair, Biomedical Informatics Graduate Program
University of Nebraska Medical Center
402-559-3587, jmcc...@unmc.edu
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The information in this e-mail is privileged and confidential, intended only
for the use of the addressee(s) above. If you have received this e-mail by
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From: owner-patientc...@lists.hl7.org [mailto:owner-patientc...@lists.hl7.org]
On Behalf Of Lloyd McKenzie
Sent: Friday, January 30, 2015 12:19 AM
To: fhir; ord; HL7 Patient Care
Cc: perri.sm...@accenturefederal.com
Subject: Interest in a Virtual Connectathon for Structured Data Capture
Structured Data Capture (SDC) is one of the US ONC's S&I projects. The focus
of the project is to develop a mechanism for sharing forms (questionnaires) as
well as completed forms (questionnaire answers). The project also supports the
automatic or pre-population of all or part of a form's content based on
embedded references within the form to predefined data elements.
The project has developed two implementation approaches. The first, developed
through IHE, uses custom schemas for form and completed form exchange. It will
be exercised as part of the IHE connectathon in January. The second makes use
of FHIR resources. The implementation guide will likely be going to DSTU
ballot in May.
The project team is very much interested in getting some implementation
feedback prior to the specification being published as a DSTU. However, the
January connectathon was too close to the IHE connectathon and the May
connectathon is in Paris, which would present logistical challenges for testing
of what is primarily a US-specific implementation guide (though in practice,
the bulk of the implementation guide is realm-agnostic aside from a few
vocabulary bindings).
For this reason, the ONC is considering the possibility of hosting a
virtual-only Connectathon sometime in early March 2015. However, before
scheduling anything, we wanted to get a sense of what level of participation we
could expect.
The connectathon would involve the exchange of form definitions, manual and
automated population of form data and the sharing and rendering of populated
questionnaires. The security mechanisms are already well understood and, due
to the tight timeline for participants, would be optional for this
connectathon. The current draft of the implementation guide (and in all
likelihood, the version of the specification that would be used for this
connectathon) can be found here: http://hl7.org/FHIR-Develop/sdc.html
If you are interested in participating, please send a response to
perri.sm...@accenturefederal.com<mailto:perri.sm...@accenturefederal.com>
indicating:
- name of organization
- likelihood of attendance (definite/probable/possible)
- number of participants
- which role(s) from the implementation guide would you be interested in testing
If you have a strong interest in testing and can't make early March 2015, but
would be willing to participate in a connectathon at some point later in the
year (but prior to May), please let us know that too.
Thank you,
Lloyd
--------------------------------------
Lloyd McKenzie
+1-780-993-9501
Note: Unless explicitly stated otherwise, the opinions and positions expressed
in this e-mail do not necessarily reflect those of my clients nor those of the
organizations with whom I hold governance positions.
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