Thanks for the update, Mei. It looks like something worth sharing more widely.

I expet that anyone who wants to follow a ticket such as this one can add 
themselves to the cc list, but I'm not quite sure if the trac permissions are 
set up right, so I'd appreciate it if somebody would confirm.

Another option to see all recent updates is report 13.
https://informatics.gpcnetwork.org/trac/Project/report/13

And at a higher granularity, the timeline shows open/closed tickets (which also 
go in our weekly agenda)
https://informatics.gpcnetwork.org/trac/Project/timeline

-- 
Dan

________________________________________
From: GPC Informatics [d...@madmode.com]
Sent: Thursday, February 11, 2016 2:55 PM
To: Russ Waitman; Mei Liu; Dan Connolly; Brittany Zschoche
Subject: Re: [gpc-informatics] #383: tapir trial design

#383: tapir trial design
--------------------------+----------------------------
 Reporter:  rwaitman      |       Owner:  meiliu
     Type:  design-issue  |      Status:  new
 Priority:  major         |   Milestone:  tapir-trial-1
Component:  data-sharing  |  Resolution:
 Keywords:  PMO           |  Blocked By:
 Blocking:                |
--------------------------+----------------------------

Comment (by meiliu):

 TAPIR update 2016-02-11:
 - General workflow design is done (see below and attached).
 - Jason and Mei are working on documenting the TAPIR protocol for
 submission to the KUMC IRB and GPC IRB reciprocity team.
 - Jason and Mei are refining the computable phenotype for GPA.
 - Contract is not officially signed yet. Still waiting on UPenn.

 TAPIR Workflow:
 1. Identify potential patients through i2b2 query building at KUMC and
 deploying across all sites
 2. Identify patients’ treating physicians by extracting provider
 information. Pilot will be conducted at KUMC and deployed across 5
 additional sites (e.g., with most number of patients).
 3. GPC site PIs connect Jason Springer with the treating physicians to
 advocate for the trial
 4. Build RedCap survey for physicians to confirm patient eligibility (~4
 questions)
 5. Contact eligible patients
 6. TAPIR notifies GPC that patient ‘X’ has enrolled (possibly via the
 RedCap survey above)
 7. GPC prepare data extraction and redaction at end of the TAPIR study

--
Ticket URL: 
<http://informatics.gpcnetwork.org/trac/Project/ticket/383#comment:7>
gpc-informatics <http://informatics.gpcnetwork.org/>
Greater Plains Network - Informatics
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