I have contacted our IRB regarding this question “whether our current protocol covers the sharing of census tract ID although it did not specifically call it out”. I think the worst case is that it doesn’t and we do a modification. Once I receive a response, I’ll let everyone know.
Mei From: Hood, Daniel Robert [mailto:danh...@regenstrief.org] Sent: Tuesday, July 18, 2017 10:58 AM To: Bernard Black; Mei Liu; gpc-dev@listserv.kumc.edu; Dan Connolly; furmanc...@icnanotox.org; kosin...@mcw.edu Cc: btay...@mcw.edu; vanri...@umn.edu; meye0...@umn.edu; Lindsey Cook; Charon Gladfelter; Brennan Connolly; nicholas-c-sm...@uiowa.edu; phillip.ree...@utsouthwestern.edu; mo...@health.missouri.edu; Hillary Sandoval; George Kowalski Subject: RE: [gpc-informatics] #544: how to convert ACS raw variables to CAP variables (e.g. type of health insurance)? My two cents: My understanding is that sharing census tract ID with Northwestern would constitute the sharing of a limited dataset. The updated protocol already takes into account that we will be sharing a limited data set due to the request to include year and month for patient encounters. To Phillip’s point, we have IRB approval for a limited data set (although the IRB does not explicitly call out the sharing of census tract id). Given that Northwestern has also executed the GPC External Collaborator Agreement which includes the GPC Use Agreement that covers the de-identified data AND limited data sets, it would seem that GPC sites are covered to share the census tract id. Perhaps I am interpreting this incorrectly? Dan Dan Hood | Health Information Project Manager Center for Biomedical Informatics [cid:image003.png@01D15378.62F72500] 1101 West Tenth Street Indianapolis, Indiana 46202 Tel 317-274-9349 Twitter: @Regenstrief | Facebook.com/regenstriefinstitute www.regenstrief.org<http://www.regenstrief.org/> ___________________________________________________ Confidentiality Notice: The contents of this message and any files transmitted with it may contain confidential and/or privileged information and are intended solely for the use of the named addressee(s). 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From: Bernard Black [mailto:bbl...@kellogg.northwestern.edu] Sent: Monday, July 17, 2017 3:00 PM To: Mei Liu <mei...@kumc.edu<mailto:mei...@kumc.edu>>; gpc-dev@listserv.kumc.edu<mailto:gpc-dev@listserv.kumc.edu>; Dan Connelly <dconno...@kumc.edu<mailto:dconno...@kumc.edu>>; furmanc...@icnanotox.org<mailto:furmanc...@icnanotox.org>; kosin...@mcw.edu<mailto:kosin...@mcw.edu> Cc: btay...@mcw.edu<mailto:btay...@mcw.edu>; vanri...@umn.edu<mailto:vanri...@umn.edu>; meye0...@umn.edu<mailto:meye0...@umn.edu>; Lindsey Cook <lindsey.k...@northwestern.edu<mailto:lindsey.k...@northwestern.edu>>; Charon Gladfelter <charon.gladfel...@northwestern.edu<mailto:charon.gladfel...@northwestern.edu>>; Brennan Connolly <bconno...@kumc.edu<mailto:bconno...@kumc.edu>>; nicholas-c-sm...@uiowa.edu<mailto:nicholas-c-sm...@uiowa.edu>; phillip.ree...@utsouthwestern.edu<mailto:phillip.ree...@utsouthwestern.edu>; mo...@health.missouri.edu<mailto:mo...@health.missouri.edu>; Hood, Daniel Robert <danh...@regenstrief.org<mailto:danh...@regenstrief.org>>; Hillary Sandoval <hsando...@kumc.edu<mailto:hsando...@kumc.edu>>; George Kowalski <gkowal...@mcw.edu<mailto:gkowal...@mcw.edu>> Subject: RE: [gpc-informatics] #544: how to convert ACS raw variables to CAP variables (e.g. type of health insurance)? Mei: Yes, I think this is correct. That is why we offered both options: Option (i) is easier for you but involves trusting us to take the Census tract information and do *nothing* with it except add the geographic averages to an otherwise suitably limited dataset. Option (ii) involves you doing this yourself. Bernie ************************************************************* Bernard S. Black bbl...@northwestern.edu<mailto:bbl...@northwestern.edu> Nicholas D. Chabraja Professor, Northwestern University Pritzker School of Law Institute for Policy Research Kellogg School of Management, Finance Dep’t Law School: 375 East Chicago Ave., Chicago IL 60611 Kellogg: 2211 Campus Drive, Evanston IL 60208 tel: law: 312-503-2784; Kellogg: 847-491-5049; cell: 847-807-9599 papers on SSRN at: http://ssrn.com/author=16042 ************************************************************ -----Original Message----- From: Mei Liu [mailto:mei...@kumc.edu] Sent: Monday, July 17, 2017 1:55 PM To: Bernard Black <bbl...@kellogg.northwestern.edu<mailto:bbl...@kellogg.northwestern.edu>>; gpc-dev@listserv.kumc.edu<mailto:gpc-dev@listserv.kumc.edu>; Dan Connelly <dconno...@kumc.edu<mailto:dconno...@kumc.edu>>; furmanc...@icnanotox.org<mailto:furmanc...@icnanotox.org>; kosin...@mcw.edu<mailto:kosin...@mcw.edu> Cc: btay...@mcw.edu<mailto:btay...@mcw.edu>; vanri...@umn.edu<mailto:vanri...@umn.edu>; meye0...@umn.edu<mailto:meye0...@umn.edu>; Lindsey Cook <lindsey.k...@northwestern.edu<mailto:lindsey.k...@northwestern.edu>>; Charon Gladfelter <charon.gladfel...@northwestern.edu<mailto:charon.gladfel...@northwestern.edu>>; Brennan Connolly <bconno...@kumc.edu<mailto:bconno...@kumc.edu>>; nicholas-c-sm...@uiowa.edu<mailto:nicholas-c-sm...@uiowa.edu>; phillip.ree...@utsouthwestern.edu<mailto:phillip.ree...@utsouthwestern.edu>; mo...@health.missouri.edu<mailto:mo...@health.missouri.edu>; danh...@regenstrief.org<mailto:danh...@regenstrief.org>; Hillary Sandoval <hsando...@kumc.edu<mailto:hsando...@kumc.edu>>; George Kowalski <gkowal...@mcw.edu<mailto:gkowal...@mcw.edu>> Subject: RE: [gpc-informatics] #544: how to convert ACS raw variables to CAP variables (e.g. type of health insurance)? Based on my limited understanding, ACS variables linked to a census tract contain aggregate/average information. But the census tract ID itself when linked to a patient record is PHI because it identifies a geographic location with <20,000 people. Am I interpreting this correctly? Mei -----Original Message----- From: Bernard Black [mailto:bbl...@kellogg.northwestern.edu] Sent: Monday, July 17, 2017 1:09 PM To: gpc-dev@listserv.kumc.edu<mailto:gpc-dev@listserv.kumc.edu>; Dan Connolly; Mei Liu; furmanc...@icnanotox.org<mailto:furmanc...@icnanotox.org>; kosin...@mcw.edu<mailto:kosin...@mcw.edu> Cc: btay...@mcw.edu<mailto:btay...@mcw.edu>; vanri...@umn.edu<mailto:vanri...@umn.edu>; meye0...@umn.edu<mailto:meye0...@umn.edu>; Lindsey Cook; Charon Gladfelter; Brennan Connolly; nicholas-c-sm...@uiowa.edu<mailto:nicholas-c-sm...@uiowa.edu>; phillip.ree...@utsouthwestern.edu<mailto:phillip.ree...@utsouthwestern.edu>; mo...@health.missouri.edu<mailto:mo...@health.missouri.edu>; danh...@regenstrief.org<mailto:danh...@regenstrief.org>; Hillary Sandoval; George Kowalski Subject: RE: [gpc-informatics] #544: how to convert ACS raw variables to CAP variables (e.g. type of health insurance)? Census tract information *is* averaged, and is not PHI. That is why Census is willing to release it. Bernie ************************************************************* Bernard S. Black bbl...@northwestern.edu<mailto:bbl...@northwestern.edu> Nicholas D. Chabraja Professor, Northwestern University Pritzker School of Law Institute for Policy Research Kellogg School of Management, Finance Dep’t Law School: 375 East Chicago Ave., Chicago IL 60611 Kellogg: 2211 Campus Drive, Evanston IL 60208 tel: law: 312-503-2784; Kellogg: 847-491-5049; cell: 847-807-9599 papers on SSRN at: https://urldefense.proofpoint.com/v2/url?u=http-3A__ssrn.com_author-3D16042&d=DwIGaQ&c=yHlS04HhBraes5BQ9ueu5zKhE7rtNXt_d012z2PA6ws&r=UogPJ7VYoAeiC8NNwyY5AxLx8QgaRiMcicgAv7oi3tc&m=kMk6FMeGMKkvajhH3sNxHqinjmIAHAoKxcv6Fel-hbs&s=9pWzo8UHLCWNtjw0ZI9i1Nof20g2dgqoIOHg-yVhTRQ&e= ************************************************************ -----Original Message----- From: GPC Informatics [mailto:d...@madmode.com] Sent: Monday, July 17, 2017 12:11 PM To: Dan Connelly <dconno...@kumc.edu<mailto:dconno...@kumc.edu>>; mei...@kumc.edu<mailto:mei...@kumc.edu>; furmanc...@icnanotox.org<mailto:furmanc...@icnanotox.org>; kosin...@mcw.edu<mailto:kosin...@mcw.edu> Cc: btay...@mcw.edu<mailto:btay...@mcw.edu>; Bernard Black <bbl...@kellogg.northwestern.edu<mailto:bbl...@kellogg.northwestern.edu>>; vanri...@umn.edu<mailto:vanri...@umn.edu>; meye0...@umn.edu<mailto:meye0...@umn.edu>; Lindsey Cook <lindsey.k...@northwestern.edu<mailto:lindsey.k...@northwestern.edu>>; Charon Gladfelter <charon.gladfel...@northwestern.edu<mailto:charon.gladfel...@northwestern.edu>>; bconno...@kumc.edu<mailto:bconno...@kumc.edu>; nicholas-c-sm...@uiowa.edu<mailto:nicholas-c-sm...@uiowa.edu>; phillip.ree...@utsouthwestern.edu<mailto:phillip.ree...@utsouthwestern.edu>; mo...@health.missouri.edu<mailto:mo...@health.missouri.edu>; danh...@regenstrief.org<mailto:danh...@regenstrief.org>; hsando...@kumc.edu<mailto:hsando...@kumc.edu>; George Kowalski <gkowal...@mcw.edu<mailto:gkowal...@mcw.edu>> Subject: Re: [gpc-informatics] #544: how to convert ACS raw variables to CAP variables (e.g. type of health insurance)? #544: how to convert ACS raw variables to CAP variables (e.g. type of health insurance)? --------------------------+----------------------- Reporter: dconnolly | Owner: meiliu Type: design-issue | Status: assigned Priority: major | Milestone: next-d Component: data-stds | Resolution: Keywords: | Blocked By: Blocking: 598 | --------------------------+----------------------- Comment (by meiliu): Our most recent IRB protocol is in the attachment. - As noted in the protocol, "...variables such as income, educational attainment, likelihood of employment, poverty status, owner-occupied house value, and health insurance coverage derived from geocoded address data will be used only as average values, not tied to any specific individual but rather to study populations." - I did not find any language on sharing census tract information. I've discussed this with Tamara McMahon and agree that since census tract may be PHI, we currently don't have the governance to take approach 1. Welcome any input from other sites. -- Ticket URL: <https://urldefense.proofpoint.com/v2/url?u=http-3A__informatics.gpcnetwork.org_trac_Project_ticket_544-23comment-3A15&d=DwICaQ&c=yHlS04HhBraes5BQ9ueu5zKhE7rtNXt_d012z2PA6ws&r=CqPxCu-EywA2wo4iO-6BFqfwPQ2roHdsnjQi7SSLgLE&m=wjt2QT-caC0BaQoqA-1jzlQgfOhmfVhDcHV0oV9o_sA&s=SiG0BJXb-ag0DCYa_svdEDeEWNVOJVkGOkV0JtvXSAY&e=> gpc-informatics <https://urldefense.proofpoint.com/v2/url?u=http-3A__informatics.gpcnetwork.org_&d=DwICaQ&c=yHlS04HhBraes5BQ9ueu5zKhE7rtNXt_d012z2PA6ws&r=CqPxCu-EywA2wo4iO-6BFqfwPQ2roHdsnjQi7SSLgLE&m=wjt2QT-caC0BaQoqA-1jzlQgfOhmfVhDcHV0oV9o_sA&s=Mpnaed_RgiVlMRfvyIbhydJzr6UR3yEq9-l7Cbir8co&e=> Greater Plains Network - Informatics
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