Dear Denise and List,

>     There have been a couple of comments about people who looked quite
able
> bodied using disabled parking spaces.  I'd like to tell you a bit about my
> youngest sister, Tina.  (snip)
>

How I can sympathize with your sister!  I've had arthritis since my
mid-twenties.  There were bad times at the beginning - months on end when
getting me out of bed was the big achievement for the day - but it's settled
down, and I've learnt a lot about how to cope since then.  One of the things
I've learned is that good days can be turned into bad days by overdoing it.
There are times when I've looked and felt reasonably normal, and pain
doesn't necessarily appear early enough to be a useful message:  it may not
come on until the next day, and then take ten days or a fortnight to go away
again.  Also, however much I may take care, there is an accumulation of
residual damage over the years.

So there have been times when I've looked young and active, and still
qualified for my permit.  And I can understand why others might look
askance, when I've often forgotten myself that I've got to take care.
However, what annoys me now is that the presence of my walking stick means I
get frequent offers intended for the over-65s when I'm only just over 50
years old.  Despite doing my best to dress well, dye my hair, (drug
treatments drained a lot of the colour by my early 30s), and stand up
straight and walk properly, these things will keep happening.  Now, I can
understand when youngsters do it - to them, everyone over twenty is 'old' -
but when people of my own age or a lot older do it, I can't help but feel
affronted.

And the worst insult of all is when people assume that a movement disability
is bound to mean a brain disability, and so they treat me as if I were a
small child.  But then I suppose that's an improvement on the times when
I've had to use a wheelchair:  then I've met a lot of people who assume it
means I'm like a baby in a pram, and they direct all their conversation to
the person with me.  Well-known as the "does he take sugar in his tea"
syndrome:  I suppose it saves them having to conduct a conversation with
someone who is below their eye-level.  This has even happened to me at
academic conferences at universities, (even at Oxford University), where I
can only suppose that other attendees assumed that my sister had brought me
along in mistake for her briefcase . . .

Well, I'm sorry for this long rant - I can see that I must have needed to
get these things off my chest, and I'm grateful for the opportunity of your
attention.  To get back to parking for my conclusion.  It doesn't worry me
at all to show my permit if I'm asked; it has my photograph inside, so I can
be identified as someone who has been checked out repeatedly by the
government medical authorities, and has really 'earned' her permit.  It
doesn't surprise me, either, when parking attendants tell me that mine is
the first genuine request for special parking that they've seen all day.
How odd is it that fit people are willing to take on the bad social
perceptions accompanying being seen as a disabled person, just for the sake
of convenient parking?

It's often said that someone who becomes blind or deaf develops other senses
to compensate for their loss.  Whatever and whenever disability strikes, the
thing you need to do most is to develop your sense of humour.  Looking on
the bright side, I suppose that the recent trend to providing easier parking
spaces and easier access to shops for disabled people is part of a wider
recognition that we might have money to spend - which seems to be the only
guarantee that you are a qualified human being these days.  At least we're
not automatically designated as witches any more!

Yours sincerely,
Linda Walton,
(in High Wycombe, Buckinghamshire, U.K.,
where it's grey and gloomy, and is forecast to be wet and windy,
a great day for sitting indoors and making lace,
but I've got to go out and chair a committee meeting).

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