Hi all this was sent to me in email I thought you all would be interested in it also :) -- Kathy E "I can only please one person a day, today is NOT your day, and tomorrow isn't looking too good for you either" http://members.delphi.com/kathylaw/ Law & Issues Mailing List http://pw1.netcom.com/~kathye/rodeo.html - Cowboy Histories http://www.geocities.com/CapitolHill/Lobby/2990/law.htm Crime photo's
(Please excuse the interruption, but I thought that this may present another angle on the Noe case. I tried to post this to the L&I list, but I'm not a subscriber.) ------- Letter posted to the Philadelphia Magazine ------- Dear Ms. ____, The copy of the magazine arrived today, and I was most intrigued my Mr. Fried's story "Cradle To Grave". Thank you for the gift of the magazine. After reading Mr. Fried's article, "Cradle To Grave", I find myself agreeing with Dr. Robert Naviaux (founder of the MMDC at UCSD, and also assistant professor of internal medicine at UCSD) and Angie Longenecker (clinical nurse coordinator), both of the Mitochondrial and Metabolic Disease Center at the University of California, San Diego; that the Noe case has all of the hallmarks of a family possibly suffering from a mitochondrial myopathy-based or related disorder. All of the children's deaths could be consistent with the symptoms and complications associated with mitochondrial myopathy-based disorders, as can be shown by the various case histories of the 127 families in our Mitochondrial Myopathies and Related Disorders support group (listserv-based), the MMRD-List. Even my own wife's case would show similarities to the Noe's, with the loss of three children (one additional child survived, my son is currently 11 yo and symptom free, "nda", "not diagnosed with anything"), and her mental deterioration and death (in '92). One note, my wife's mental deterioration was much more pronounced than Mrs. Noe's. There is a downloadable PDF file at our website containing a condensed version of my wife's case history, should you or Mr. Fried desire to read it. I would not be adverse to presenting a survey of Mr. Fried's questions to our group should Mr. Fried desire to get their opinions on the Noe case. The group is already aware of the case via the Philadelphia Inquirer/Daily News articles of recent print. I also agree that it's possible that the blood test, and/or the fresh muscle biopsy test done by Dr. John Shoffner at Scottish Rites Children's Medical Center in Atlanta, GA. would be helpful to the current investigation. Unfortunately, neither test is 100% successful in diagnosing a mitochondrial disorder (though, in the opinion of our support group folk, the fresh muscle biopsy test is preferred over frozen muscle or the blood test.) Sincerely yours, Mike Jackson, Director/Administrator ------- MELAS Online Network & the Following Listservs: MMRD-List -=- KIDS_MMRD-List -=- MITO_NET-List Dad to Mike, a tiggerrific son (11 & nda), two Gerbils & a Bunny Email: <[EMAIL PROTECTED]> - AOL IM ID: <Mike MMRD> MELAS Online Network: <http://www.melas.org>
