Jason,

Thanks for being so reasonable and honest and also sharing some
interesting information about FC in that last post. I still don't
really know a thing about FC, but what you wrote in that last email
makes sense. I really don't like it when hype causes people to make
bad decisions. Those people (the ones who make bad decisions) and the
competitors of the hypesters lose out.

I still don't feel comfortable protesting Gupta's nomination on these
grounds because I don't know why he featured FC in reports. There is
one video of him reporting on FC that I didn't see. Since it was over
15 days old one would have to subscribe to see it. Though a free trial
was available I didn't want to go through the process. I read
everything else and I didn't find Gupta actively promoting FC, but he
did not give clear information about it either. He might have made a
summary at the end of each report stating that FC was only an
effective therapy for a few and probably should only be tried after
other therapies had failed. He also could have warned people who tried
FC to be aware of deceptive and self-deceived FC facilitators. Instead
the whole thing was somewhat sensationalistic and vague. I would
understand if someone felt that this was reasonable grounds to protest
against Gupta’s nomination. If I write a protest letter I may include
my understanding of this situation in that letter, but I will
emphasize the Michael Moore incident. In that case there was a blatant
lying on Gupta's part and no serious apology after he was caught.

There is one more problem with protesting against Gupta; if it
actually makes a difference, some one worse than Gupta may wind up
with the job. I will probably write protest letter anyway.

Thanks for hashing this out for me.


On Jan 9, 1:05 pm, "Jason (Memphis)" <[email protected]>
wrote:
> Isparklaria,
>
> You don't know the history of Faciliated Communication (FC).
> Therapists have been using prompting systems to teach people
> communication skills for decades, that is, you help the person use the
> device and slowly fad back as much as possible.
>
> The FC's just packaged this training system, wrapped it in jargon, and
> sold it along with a lot of hype.  Many therapists and researchers get
> annoyed when desperate parents and equally desperate clients get
> snooped because advertising gimmicks--with FC, dolphin therapy, etc.
> Most of the pseudo-treatments are harmless (only wasting time)
> especially when done in conjunction with more effective ones.
>
> Does FC work sometimes?  Sure because fading prompts works to teach
> communication skills.  FC is just a re-packaged prompting system
> wrapped in an aura of mystique AND the hype/mystique/deception sets it
> up for abuse by putting words in the client's mouth, giving parents/
> clients unfilfulled hope, and sometimes neglecting to engage in
> effective training.
>
> This is pure speculation, however, people such as Gupta might like FC
> because of the hype, which helps with media ratings. Whether or not FC
> is beneficial to the client (and population served) should be the
> ultimate criteria.
>
> Jason
>
> On Jan 9, 12:30 pm, Isparklaria <[email protected]> wrote:
>
>
>
> > Jason,
>
> > So you admit that FC works some of the time. That is what more recent
> > studies seem to indicate. It seems like the only problem with it has
> > to do with the nature of the training method. It could be true that no
> > method used other than FC, to train people on augmentive communcation
> > systems would worked for certain people. If that is true than FC is
> > something special. If not than it probably isn't unless there is some
> > other benefit. The downside is the deception and self deceptions
> > possible in obtaining results. But it seems like they have figured out
> > how detect this main problem, so what's the problem and why is it
> > discredited instead of just discredting the individuals who use it
> > frauduantly? Why are they attacking Gupta over it? The only thing that
> > I can figure is that the honest skeptics of FC like to make judgements
> > and stick to them to the point of not even examining new evidence from
> > credible sources. As far as the other Skeptics, I don't know their
> > motivation is.
>
> > On Jan 9, 11:04 am, "Jason (Memphis)" <[email protected]>
> > wrote:
>
> > > Isparklaria,
>
> > > There is not anything special about "Facilitated Communication".  We
> > > train people on augmentative communication systems all the time.  It
> > > is just teaching people to use technology (or techniques) to
> > > communicate.  Some people learn to use the technology/technique and
> > > some people don't; some a litte; some a lot.
>
> > > Now having someone literally holding someone's hand while using the
> > > communication equipment and the majority of careful studies indicate
> > > that the hand-holder is frequently doing the communicating is
> > > concerning.  Augmentative communication systems are supposed to
> > > increase the person's abilities to communicate to the world--not set
> > > up a situation where world thinks that the person said whatever the
> > > hand-holder wants him or her to say.  The person is sort of like the
> > > hand-holder's puppet.
>
> > > On another note: The fact that these researchers are affilitate with
> > > Harvard is irrelevant.  There are a number of researchers (Gina Green
> > > is one) who've done work with Harvard or even taught at Harvard,
> > > Columbia, etc.  I even work with a Harvard graduate at my current
> > > job.  The data and research is more important than the school
> > > affilitation.
>
> > > Jason
>
> > > On Jan 9, 9:25 am, Isparklaria <[email protected]> wrote:
>
> > > > Jason,
>
> > > > Are you saying that these studies that show that FC works in some
> > > > cases are bogus? If you are saying that then please tell me why you
> > > > are saying these studies are bogus. Are you saying that Dr. Weiss and
> > > > Dr. Nisbet, the two men who made this list of studies, some of which
> > > > were negative and some of which were positive got it wrong by
> > > > including positive studies?
>
> > > > Cardinal, D. N., Hanson, D. & Wakeham, J. (1996). Investigation of
> > > > authorship in facilitated communication. Mental Retardation, 34,
> > > > 231-242.
>
> > > > "We examined whether facilitated communication users, under
> > > > controlled
> > > > conditions, could transmit rudimentary information to a na•ve
> > > > facilitator. Forty-three students across 10 classrooms were shown a
> > > > single randomly selected word with their facilitator out of the room.
> > > > The facilitator then entered the room and asked the student to type
> > > > the word, which was recorded exactly as typed and later evaluated;
> > > > approximately 3,800 attempts were conducted over a 6-week
> > > > period" (231).
>
> > > > "There were two main findings of the study. First, under controlled
> > > > conditions, some facilitated communication users can pass information
> > > > to a facilitator when that facilitator is not aware of the
> > > > information, and second, the measurement of facilitated communication
> > > > under test conditions may be significantly benefited by extensive
> > > > practice of the test protocol. This latter result could partially
> > > > account for the inability of several past studies to verify
> > > > facilitated communication-user originated input" (238).
>
> > > > Sheehan, C. & Matuozzi, R. (1996). Investigation of the validity of
> > > > facilitated communication through the disclosure of unknown
> > > > information. Mental Retardation, 34, 94-107.
> > > > "Three individuals (8, 10, and 24 years old with diagnoses of autism
> > > > and mental retardation) participated in a message-passing format to
> > > > determine whether they could disclose information previously unknown
> > > > to their facilitators. Results showed valid facilitated communication
> > > > from each participant" (94).
>
> > > > "The data from the current study lead us to caution that a phenomena
> > > > as complex as facilitated communication eludes a cursory exploration.
> > > > Each participant was able to disclose information accurately and
> > > > deftly at times and was wholly inadequate in his or her attempts at
> > > > other times...The developing picture of an individual's validity
> > > > profile replete with the patterns of required support, inconsistency,
> > > > language impairment, and strides towards independence may well be the
> > > > only reasonable evaluation of a validity confidence level" (104).
>
> > > > Weiss, M.J.S., Wagner, S.H., & Bauman, M.L. (1996). A validated case
> > > > study of facilitated communication. Mental Retardation, 34 (4),
> > > > 220-230.
>
> > > > The case of a 13-year-old boy with autism, severe mental retardation,
> > > > and a seizure disorder who was able to demonstrate valid facilitated
> > > > communication was described. In three independent trials, short
> > > > stories were presented to him, followed by validation test procedures
> > > > with an uninformed facilitator providing physical support to the
> > > > subject's arm. In trials 1 and 3, several specific answers were
> > > > provided that clearly indicated that the young man, not the uniformed
> > > > facilitator, was the source of the information. Moreover, some
> > > > responses seemed to imply that the subject was employing simple
> > > > inferential and abstract reasoning. The case study adds to the small,
> > > > but growing number of demonstrations that facilitated communication
> > > > can sometimes be a valid method of communication for at least some
> > > > individuals with developmental disabilities.
>
> > > > Dr. Michael J. Weiss and Dr. Jan Nisbet contributed to this report.
> > > > Dr. Weiss is a developmental psychologist at Giant Steps School in
> > > > Connecticut, a private school for children diagnosed with autism and
> > > > other developmental disabilities, and also is an adjunct professor in
> > > > psychology at Fairfield University. He has been a faculty member at
> > > > the Schools of Medicine at McGill and Harvard Universities and a
> > > > staff
> > > > psychologist at the Children's Hospitals in Montreal and Boston.
> > > > Weiss
> > > > has worked in private practice and has published numerous articles,
> > > > chapters, and abstracts related to infancy, children and families,
> > > > and
> > > > developmental disabilities.
>
> > > > Dr. Nisbet is director of the Institute on Disability and a tenured
> > > > associate professor in the Department of Education at the University
> > > > of New Hampshire. She has conducted research and writing for the past
> > > > 20 years on topics related to school restructuring and reform,
> > > > transition from school to adult life, supported employment, self-
> > > > determination, inclusive adult lives and aging
>
> > > > On Jan 9, 9:09 am, "Jason (Memphis)" <[email protected]>
> > > > wrote:
>
> > > > > I definitely agree with this statement, "In my opinion anecdotal
> > > > > evidence has some value, but only when the facts are reliable."  Some
> > > > > treatments used are based anecdotal stories if research isn't
> > > > > available.  However, when research exists, therapists are supposed to
> > > > > go with the research findings and not the money trails.
>
> > > > > The key question is whether the facilitator or the person who is being
> > > > > taught is controlling the movement of his or hand to communicate.
> > > > > When this was investigated, it became obvious that when the
> > > > > facilitator and learner were shown different objects, the object named
> > > > > was what the facilitator saw, that is, the facilitator and not the
> > > > > learner was communicating.  There are a series of studies that were
> > > > > noted in an earlier post.
>
> > > > > FC is a big money therapy because children who've never- Hide quoted 
> > > > > text -
>
> - Show quoted text -...
>
> read more »
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