LarryT, Acher, etc., small world, isn't it? This condition supposedly affects only about 1 in 100K, yet, here are TWO of us on this list and a third associated. My pain started 12 - 14 yrs ago as "nail driven into" lft heel, then on to toes, legs, hands, arms; fire, needles on bottoms of feet, etc. Began to have slight hand tremor abt 10 yrs ago. As my averall condition worsened, so did the tremor. By 4 - 5 yrs ago, had lost most feeling below knees. By abt 2 yrs ago, I was nearlly helpless because of the tremor. Trouble walking for several yrs, but I continued to put on good act - tried to make it look to others like I was walking normally, but I was having to think about every step. Started using stick/cane abt 5 yrs ago, went to 4-wheel walker nearly 3 yrs ago. Still use walker around house (one on each floor) and back and forth to car. I keep an elec. scooter in the car trunk for shopping, longer treks from car, etc. I charge the scooter in the car with Diesel, so I ride a Diesel-electric scooter; I even put a smaller, paper decal copy of a MB DIESEL decal on back of the scooter to so designate it.
'Haven't been "bothered" by really bad pain for several yrs. - just slight in feet/legs all the time. I've many times awakened with steady pain in feet and legs, especially knees. 'Took two 650 mg Tylenol/day coupla yrs; last year or so 1/day; sometimes none for 2-3 days. BTW, 'tried Lyrica; made me feel "impaired." Also tried Prednasone, cyclosporine, methotrexate, celcept, imuran, bunch of others, some of which made me sick - all were ineffective; also plasma pheresis and retuxan treatments, but nothing has worked as well as IVIG, especially for last yr @ 2 weeks. Tremor is nearly (~97%) gone. Oh, I also went to MCV (is that UVA?); saw Dr. Phillips there abt 3 yrs ago; 'been going to Duke abt 6 yrs. Wilton, LTCOL, USAF, Ret. 91 350SDL (188 kmi) oil changed via $2 sucker 87 300D (107 kmi) oil changed via $2 sucker _______________________________________ http://www.okiebenz.com For new parts see official list sponsor: http://www.buymbparts.com/ For used parts email [EMAIL PROTECTED] To Unsubscribe or change delivery options go to: http://okiebenz.com/mailman/listinfo/mercedes_okiebenz.com
